Do you live with Dysautonomia?
What do you want people to know about living with it?

#Dysautonomia linktr.ee/thezebraalliance #chronicillness #EDS #ehlersdanlossyndrome #hEDS #HSD

What if hypermobility is part of the Long COVID puzzle?

Research is finding links between hypermobility, hEDS, dysautonomia and Long COVID.

Maybe COVID doesn’t create every vulnerability,it exposes some of them.

#LongCovid #hEDS #Dysautonomia

longcovidjourney.com/long-covid-h...

Day 1 of midodrine. Nonstop waves of goosebumps on my head and arms, and I feel the slightest tension headache. But also my head feels clear for the first time in months. #dysautonomia

From Austria

Hair cortisol concentration and basal heart rate variability differentiate long COVID from depressive disorders in youth

www.sciencedirect.com/science/arti...

Screenshot from latest Science for ME weekly update

#LongCovid #depression #Dysautonomia #NeuroPASC #PASC

From Ireland

Dysautonomia and Postural Orthostatic Syndrome of Hypocapnia in Long COVID Syndrome

Screenshot from latest Science for ME weekly update

#LongCovid #POTS #Dysautonomia #NeuroPASC #PASC

POTS (postural orthostatic tachycardia syndrome-form of dysautonomia. Heart rate climbs when standing. Dizzy, fainting, brain fog & fatigue are reported. AI assisted; do your own research.

#UnveilingUnicorns #InvisibleIllness #Spoonie #POTSAwareness #Dysautonomia #ChronicIllness #ButYouDontLookSick

I’d really like a chance at life.
I need a stable, safe environment. Without it, I will continue to decline & die.

#MutualAid #ChronicIllness #MyalgicEncephalomyelitis #MECFS #MCAS #POTS #EhlersDanlos #LongCovid #Endometriosis #ChronicPain #Dysautonomia

chuffed.org/project/1619...

“When you’re living with #POTS - gravity is NOT your friend. Our bodies do not function properly when upright. As a result - most of us feel our best when we’re horizontal": buff.ly/nVZz8Ge

by @Broadwaybabyto.bsky.social
#dysautonomia #ChronicIllness #InvisibleIllness #spoonie #NEisVoid #disabled

So basically, fuck #dysautonomia and the horse it rode in on!

I'm sorry you are going through so much. 😑

☁️ Dysautonomia Awareness Month! ☁️

PoTS can look different for everyone. For example, I don't faint but I frequently experience presyncope. It can take years to get diagnosed, and many don't even know PoTS exists.

#PoTSAwareness
#Dysautonomia

One of the most frustrating parts of #dysautonomia is that when my body gets triggered into a fight or flight response, it takes hours or even days before my body adjusts back to “normal“.

And for obvious reasons, my anxiety has been through the roof lately, so every time I have a panic attack…. 🙄

Dysautonomia can occur in people with Ehlers-Danlos syndromes (EDS) & hypermobility spectrum disorders (HSD). Most research on #dysautonomia in #EDS & #HSD has focused on #hypermobileEDS (hEDS) and HSD. Dysautonomia has also been reported in people with other types of EDS, including #cEDS & #vEDS.

As more people are developing #dysautonomia from COVID infections, the number of people experiencing the disabling symptoms of this condition are growing. Visit DysautonomiaInternational.org

Me: I feel weird. Something's wrong. I don't know what's up. I can't figure it out. Am I having anxiety? I am having anxiety... Everything hurts, I feel uncomfortable...

Me after taking a leak: that was it.

#dysautonomia #pondiposting #AdventuresWithMECFS #AdventuresWithPostCovid

What's the best advice you've received for your chronic illness?

Let's share the help. I was told to remember nothing ever stays the same. Tomorrow something will be different it won't always feel bad, something will change

#chronicillness #POTS #dysautonomia #UCTD #spinalcordinjury #advice

I eat dinner, so I start sweating profusely. I sweat, so I start itching and breaking out in hives. I shower to get rid of the sweat, I get dizzy and exhausted. I lay down, I start hurting. I use my heat pad, so I start sweating again. 🫩🫩

#dysautonomia #mecfs #mcas

Wow, 10/10 no notes. #Care4Complex #Dysautonomia

Find expert answers to your FAQs 👉https://www.eosnetwork.org/egids-connective-tissue-disorders-pots#FAQ

Curious about the connection between #EosinophilicOesophagitis (EoE), #ConnectiveTissueDisorders, and #dysautonomia? Dr Joshua Wechsler answers common community questions.

#Hypermobility #POTS

"So many #health discoveries came next: #hEDS, #autoimmune concerns & Sjogren’s, migraines, #dysautonomia, neuropathy, osteoarthritis, ostopenia, mast cell disorder..& more. These #diseases were found 1 at a time, over the years.": buff.ly/cJ9G1n2

by ehrmanlisa1
#ChronicIllness #EDS #disabilities

👆 or, if you're not into webinars, there is also an article on that website:

ADHD Connections to Chronic Inflammation and Dysautonomia:
https://www.additudemag.com/mast-cell-activation-syndrome-pots-adhd/

#mcas #pots #adhd #mecfs #dysautonomia