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Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-12 04:31:30 EDT

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@thezebraalliance.bsky.socialOct 9, 2026, 4:42 PM

Do you live with Dysautonomia?
What do you want people to know about living with it?

#Dysautonomia linktr.ee/thezebraalliance #chronicillness #EDS #ehlersdanlossyndrome #hEDS #HSD

@hannemiriam.bsky.socialOct 4, 2026, 7:51 PM

🎯
#ChronicPain #ChronicIllness #Disability #EhlersDanlosSyndrome #EDSSucks

@disabilitybooks.bsky.socialSep 28, 2026, 8:23 PM

We've added new titles to our children's and young adult's Bookshelf that deal with Ehlers-Danlos Syndrome. For more information see www.disabilitybookshelf.com/invisible-di... #booksondisability #disabilitywriters #DisabilityBookshelf #disabilityissues #ehlersdanlossyndrome #invisible-disabilities

Book covers
@disabilitybooks.bsky.socialSep 28, 2026, 2:20 AM

We've added new titles to our children's and young adult's Bookshelf that deal with Ehlers-Danlos Syndrome. For more information see www.disabilitybookshelf.com/invisible-di... #booksondisability #disabilitywriters #DisabilityBookshelf #disability #ehlersdanlossyndrome @bethanymangle.bsky.social

Book covers
@903whpc.bsky.socialSep 27, 2026, 11:30 AM

📣 New Podcast! "Loss, Purpose, Legacy: Rosemarie Nania and the Mission Behind BELOvEDS" on @Spreaker #aorticdissection #athlete #athletemindset #belovedsfoundation #beyondthefinishline #collegeradio #ehlersdanlossyndrome #eliteathlete #elitemindset #familylegacy #geneticdisorder #grieftopurpose

@disabilitybooks.bsky.socialSep 26, 2026, 9:05 PM

We've added new titles to our Bookshelf that deal with Ehlers-Danlos Syndrome. For more information see www.disabilitybookshelf.com/invisible-di... #invisible-disabilities #booksondisability #disabilitywriters #DisabilityBookshelf #eds #ehlersdanlossyndrome
@alexnonymous.bsky.social #booksky

Book covers
@disabilitybooks.bsky.socialSep 25, 2026, 11:33 PM

We've added new titles to our Bookshelf that deal with Ehlers-Danlos Syndrome. For more information see www.disabilitybookshelf.com/invisible-di... #invisible-disabilities #booksky #disabilitywriters #DisabilityBookshelf #eds #ehlersdanlossyndrome @laurelholl.bsky.social @brittneyarena.bsky.social

Book covers
@disabilitybooks.bsky.socialSep 25, 2026, 4:45 AM

We've added new titles to our Bookshelf that deal with Ehlers-Danlos Syndrome. For more information see www.disabilitybookshelf.com/invisible-di... #disability #booksky
#booksondisability #disabilitywriters #DisabilityBookshelf #eds #ehlersdanlossyndrome @rebeccayarros.bsky.social

Book covers
@thezebraalliance.bsky.socialSep 23, 2026, 11:45 PM

How would you explain the effort it takes to stay stable so that people might understand?

linktr.ee/thezebraalliance #hypermobility #EDS #hEDS #HSD #ehlersdanlossyndrome #hypermobilityspectrumdisorder #connectivetissue #raredisease

Image by @ehlersdanlosbody showing the difference between typical mobility and hypermobility.
@thezebraalliance.bsky.socialSep 23, 2026, 11:34 PM

The Zebra Alliance is here you 🩵🫂🩵

linktr.ee/thezebraalliance #chronicillness #chronicpain #disability #dynamicdisability #invisibleillness #raredisease #EDS #ehlersdanlossyndrome #mentalhealth

Drawing by @sketchy.whiskers Cat sitting on a couch, gesturing towards to cushion beside it. "You dont have to tell me what's wrong. Come sit with me anyway."
@thezebraalliance.bsky.socialSep 23, 2026, 12:05 AM

What is your favorite adaptive/mobility aid(s)?
Some of mine include braces, heating pads, and hiking poles.

#adaptiveaids #chronicillness #chronicpain #disability #dynamicdisability #invisibleillness #EDS #ehlersdanlossyndrome #mobilityaid

@hannemiriam.bsky.socialSep 20, 2026, 2:41 PM

🎯
#Ableism #ChronicIllness #ChronicPain #Disability #EhlersDanlosSyndrome #EDSSucks

@dhsc-answers.bsky.socialSep 18, 2026, 2:10 PM

A question on #EhlersDanlosSyndrome tabled by Jim Shannon on 10-09-2026 has been answered by Mr James Frith. https://questions-statements.parliament.uk/written-questions/detail/2026-09-10/28726

@thezebraalliance.bsky.socialSep 17, 2026, 3:31 PM

EVERY doctor should know this: Share it far and wide 👌😀

linktr.ee/thezebraalliance (found this comment on a FB post) #EDS #ehlersdanlossyndrome #HSD #hypermobilityspectrumdisorder #connectivetissue #raredisease #chronicillness #chronicpain #disability

My doctor said "if you cant connect the issues, think connective tissues" and I just wish someone had thought of that sooner.
@merilizzie.bsky.socialSep 16, 2026, 10:04 PM

It would go ~ stage 1 -> stage 2 -> stage 3 -> back to stage 1 ~ even back to stage 2 sometimes, or would even reboot after stage 2, Bach to stage 1. My resting point is “always tired”. They don’t know if it was the drugs/alcohol my birth parents did, or the #EDS #EhlersDanlosSyndrome

@thezebraalliance.bsky.socialSep 11, 2026, 10:22 PM

Who wants to share what its like when you have a hip subluxation? Hip subluxations aren't discussed as much as shoulders, jaws, hands, and knees. Share your experience(s) 🩵🦓🩵
linktr.ee/thezebraalliance
#hEDS #EDS #HSD #hypermobility #hypermobilityspectrumdisorder #subluxations #ehlersdanlossyndrome

@cyanosisvt.bsky.socialSep 9, 2026, 12:45 PM

DESK DONOTHON DAY ONE IS UNDERWAY!₍˄·͈༝·͈˄₎◞ ̑̑
Come help me get an adaptive desk and stay for horror games, utau, baking, doodles, truth or pop rox , and more! LIVE NOW #vtuber #Vsky #indieVtuber #EhlersDanlosSyndrome #DisabledVtuber

CYANOSESVT'S ACCESSEBLE DESK DONOTHON neip cyanosis get a desk suitable for use from their wheelchair/bed! Stretch goal lace breaking ASAR Mic INCENTIVES doodle of supporters (any donation) get featured on screen (any) get featured on model ($160+) spin redeems: (every $25) write my post eat pop rox truth or drink (ramune) call my girlfriends Map +MOre!!! Capped-Style Streams full of horror games, ASHR, B3D + nore! GOALS $25 play Stairway t $50 make an UTAU $100 JD throwable raffle $150 VRCHAT party $200 reveal game VAs $250 dakimakura $275 Baking Stream $300 merch giveaway $350 Tomodachi Life $400 Minecraft server $450 reaction stream $500 ASHR vid by vote $550 confession stream STRETCH GOALS $700 Baldur's Gate Playthrough $800 roll around Japan vlog $1000 cosplay myself
@jendaby.bsky.socialSep 8, 2026, 5:20 PM

#shiner #EDS #collagen #EhlersDanlosSyndrome #hEDS

blue dot background with a clipart eyes and clipart smudges under the eyes. In white sans-serif font, it reads "Ehlers-Danlos Syndrome Experienced that may seem bizarre to those with functional collagen:" Then in a thinnner font, "Always looking like you lost a prize fight because the skin under your eyes is extremely translucent" Meme compiled of human-made licensed clipart by another human. All words are human-written.