Do you live with Dysautonomia?
What do you want people to know about living with it?

#Dysautonomia linktr.ee/thezebraalliance #chronicillness #EDS #ehlersdanlossyndrome #hEDS #HSD

Playful democracy workshop #nsdok Köln. Running through an election campaign for an animal-candidate , played out by 30 engaged primary-teachers. DemocrAnimals addresses children from 6-12 and was developed in Co-Creation with #courage-netzwerk #HSD #Forena @ec.europa.eu #democrat-horizon #RDC

Dysautonomia can occur in people with Ehlers-Danlos syndromes (EDS) & hypermobility spectrum disorders (HSD). Most research on #dysautonomia in #EDS & #HSD has focused on #hypermobileEDS (hEDS) and HSD. Dysautonomia has also been reported in people with other types of EDS, including #cEDS & #vEDS.

Zó blij met mijn kniebrace 🎉 Ik kan weer wandelen en erop uit 😊 #HSD

How would you explain the effort it takes to stay stable so that people might understand?

linktr.ee/thezebraalliance #hypermobility #EDS #hEDS #HSD #ehlersdanlossyndrome #hypermobilityspectrumdisorder #connectivetissue #raredisease

Wat fijn. Moest het wel even opzoeken #hsd 🤭

Ik kwam er na 56 jaar achter dat ik #HSD heb en de achteruitgang was niet te stoppen. Wandelen ging bijna niet meer totdat … ik vorige week mijn kniebrace kreeg. 🎉 Nu loop ik zonder pijn en angst 😊🦾 #indesteigers Nog wel werken aan de conditie 😮‍💨

EVERY doctor should know this: Share it far and wide 👌😀

linktr.ee/thezebraalliance (found this comment on a FB post) #EDS #ehlersdanlossyndrome #HSD #hypermobilityspectrumdisorder #connectivetissue #raredisease #chronicillness #chronicpain #disability

Den Haag versterkt positie als internationale cyberhoofdstad 070online.nl/2026/09/17/d... #DenHaag #Cybersecurity #HSD #Cyberveiligheid #DigitaleWeerbaarheid #RichardDeMos #HouseOfCyber #NationaleCyberCampus #Innovatie #Economie

Mijn lijf (en leven) is vandaag een beetje stabieler geworden 😊 #HSD #silversplints

Vandaag vroeg op want ik mag mijn kniebrace en silversplints ophalen in Leiden 🎉🎉
#HSD

Have you learned to pace yourself? What tips do you have? What has worked for you? All the questions & answers 😉👉 I want all EDS types to share, because all have (co)morbidities.

#hEDS #HSD #EDS #chronicillness #chronicpain #invisibleillness #hypermobilityspectrumdisorder linktr.ee/thezebraalliance

Dr. Sarah Cohen-Solomon explains how #HSD and #hEDS comorbidities affect day-to-day activities, pacing techniques and approaches, and why it's important for the short and long term, and picking back up after a setback: youtu.be/qOujPfvwplQ?...

#PainMonth #HypermobileEDS

Bad joint day.
Not even in terms of pain necessarily but the instability and weakness are frustrating as hell.
My arms basically just feel like two absolutely useless cooked noodles.
#hsd #chronicpain

Who wants to share what its like when you have a hip subluxation? Hip subluxations aren't discussed as much as shoulders, jaws, hands, and knees. Share your experience(s) 🩵🦓🩵
linktr.ee/thezebraalliance
#hEDS #EDS #HSD #hypermobility #hypermobilityspectrumdisorder #subluxations #ehlersdanlossyndrome

Has anyone tried this RPG yet?
I've dug through the book, and I love the setting and lore, but I can't seem to wrap my brain around the rules.
I don't mind "crunchy", since I play Rifts and Shadowrun, of course.
#HSD #RPG @weaponsgradefunk.bsky.social