Do you live with Dysautonomia?
What do you want people to know about living with it?
#Dysautonomia linktr.ee/thezebraalliance #chronicillness #EDS #ehlersdanlossyndrome #hEDS #HSD
@thezebraalliance.bsky.social
@thezebraalliance.bsky.socialDo you live with Dysautonomia?
What do you want people to know about living with it?
#Dysautonomia linktr.ee/thezebraalliance #chronicillness #EDS #ehlersdanlossyndrome #hEDS #HSD
@zebrabande.bsky.socialWofür bist du heute dankbar?
#sonnenscheinMomente #dankbarkeit #SchöneDinge #Ehlers-DanlosSyndrom #hEDS #zähne #chronischKrank
@cultcabinet.bsky.socialNou mensen, als je je nou afvraagt waarom je de zorgverzekering omhoog gaat, dan is dat vanwege ego's van (huis)artsen.
Ongelooflijk wat ik hier meemaak na al 10 jaar een diagnose te hebben #heds
@longcovidjourney.bsky.socialWhat if hypermobility is part of the Long COVID puzzle?
Research is finding links between hypermobility, hEDS, dysautonomia and Long COVID.
Maybe COVID doesn’t create every vulnerability,it exposes some of them.
@zebrabande.bsky.socialBeispiele, die #KonservativeTherapie sehr groß schreiben, auch wenn OP deutlich lukrativer wäre
-und bei meiner Indikation problemlos zu begründen wäre-
#EhlersDanlosSyndrom #hEDS #SmallFiberNeuropathie #wirbelsäule #gleitwirbel #op #krankenhaus #bandscheibenVorfall #spastik #selteneErkrankung
@zebrabande.bsky.socialEinfach ein wenig besser in der "vogel-Strauß Taktik" wäre...
Ich weiß rational,
Dass es gut ist, dass dem nicht so ist...
Aber...
#EhlersDanlosSyndrom #hEDS #SelteneErkrankung #rareDisease #dis #dissoziativeIdentitätsstörung #Kptbs #trauma #punktehund
@fabulousphoenixboy.bsky.social[?][currently awaiting assessment/diagnosis for] #ChronicFatigue #CFS #ME #POTS #hEDS #endo #endometriosis
@fernaenova.bsky.socialFound the big one with the screenshots and such
tagging again sorry #EDS #hEDS #ehlersdanlos #hypermobileEDS I'm posting this because I feel like the owner of this sub is not a safe person, and these subs often have people posting personal details or images.
@fernaenova.bsky.social#EDS #hEDS #ehldersdanlos #hypermobileeds gang who use reddit, do yourself a favor and avoid r/hypermobileEDS. The owner of the sub is a militant transphobe and MAGAt with a good ole hint of racism too. r/transzebras has been talking about it in multiple threads. This is just the most recent.
@rachelbc.bsky.socialHopefully this gets connected with the #heds community as a potential to support weak joints and improve mobility options