@coolhand.bsky.social insights from a lifetime of seeking wisdom to impart and I'm losing the ability to type 🫠
#NEISVoid

Wylder is very dear to me. I charge you all to do what you can to help. #MutualAid #HelpSky #ForTinu #HelpFolksLive #NEISVoid

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CW loss of mobility (mine)

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Recently I've been coming to terms with losing much of what little ability to walk I still have to progressive peripheral neuropathy 😢

Semi-ambulatory status has led to a lot of conflicting feelings about mobility.
#NEISVoid

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CW mortality (mine)

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Advantages of being semi-terminal with a decided approximate end date: I get a lot of slack socially & I get to be the center of attention. (I'm gregarious to a fault.)
#SilverLinings #NEISVoid

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CW mortality (mine)

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#NEISVoid

No, therapist, I'm not being hyperbolic when I describe my pain.... #NEISVOID

#neisVoid gotta maintain our standards!

lmao

"Joy is not a finish line. It’s not what comes after the #HealingJourney is complete. #Joy is part of the journey itself. And you deserve to feel it again.": buff.ly/NdetWC0

via tinybuddha
#Healing #LifeLessons #grief #loss #ChronicIllness #disability #NEisVoid #BeKind

Im allowed to grieve that. Im allowed to grieve that should i ever have a child in the future i will not be able to keep up w them. I cant go out and do the things i want to anymore. Myfingers have permanent curves and i have so much nerve damage.

Let sick ppl grieve what could have been
#NEISvoid

"My #body moves in ways I can’t #control —or it refuses to move at all. It aches quietly, collapses without warning & spasms for no reason. It hides things from me, keeps its secrets & exposes me in the worst ways.": buff.ly/e50reOt

by @serenebutterfly.bsky.social
#ChronicIllness #FND #NEisVoid

"As the decline [into Haemolytic #Anemia ] had been gradual, the impact did not seem too harsh. The everyday #nausea, lack of appetite and general #malaise had become my norm without me even realising it.": buff.ly/U8i0CVz

#ChronicIllness #ChronicFatigue #NEisVoid #ChronicPain #lupus #Sjogrens

"I have always been a fan of #Autumn ..now the #kids are older and I am #disabled and all I have is photos to remember the fun we had.": buff.ly/U5elMuN

by @raisiebay.bsky.social
#ChronicIllness #ChronicallyIll #WritingPrompts #disability #NEisVoid #spoonie

#MECFS #LongCOVID #pwME #NEISvoid #Spoonie #LongCovidResearch #Genomics #OpenScience
#Biosky #Medsky

#XMen just finished playing in the #ChronicLoaf stream

#XMen2 is starting now

Hop in and watch with us @ mzelo.com/app/rooms/ch...

#Criptober #Mutation #spookyseason #SciFi #MarvelComics #ForTinu #NEISvoid #Disability #longcovid

"I know what I was #capable of before I lived with #ChronicPain, and it can be so #frustrating when I see that I can’t do that anymore. I know in the back of my mind I can do better, but #pain prevents me from doing so.": buff.ly/SGcCYXG

by sarahlynn358
#endometriosis #ChronicIllness #NEisVoid

#TheFly(1958) is playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#Criptober #Mutation #Halloween #DisCo #spookyseason #ForTinu #horror #neisvoid #mecfs #scifi

"I have learned that #disappointment comes in many forms. Sometimes, it arrives as a storm rolling across the horizon. At other times it arrives quietly, in the form of a #body that simply cannot do what my heart longs for.": buff.ly/1PWVPql

by @serenebutterfly.bsky.social
#ChronicIllness #NEisVoid

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CW hospital, surgery

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Talked to the surgeon; we're going to replace the stent in a few hours and then probably send me home after recovery until I come back for the kidney stone removal surgery in 8 days.
#NEISVoid

"U don’t walk into a #doctor's office expecting help anymore. U walk in preparing yr opening statement like u r defending a dissertation..U bring color-coded binders & timeline spreadsheets as evidence because u hv to prove yr case to skeptics": buff.ly/Yb5E61P

via ZebrasUnderground
#NEisVoid