@systemfound.bsky.socialYesterday, I felt out of breath trying the stairmaster at the gym. Subconsciously, I thought 30 minutes had passed, then I looked and only 3 min 50 sec had gone by.
Turns out I hadn't had my medicine.
Then I remembered: THIS (chronic tiredness) is the normal state.
#Hashimoto's #chronicillness 🐱
@sacrifusion.com3 years later, I took the next step towards recovery and had the nerves in my neck burnt (ablation) to help with #ChronicPain that might be exacerbating #CognitivelyDeferredPain / making my fatigue and focus worse
Hoping I'll gain back more of my life here soon
@kingtiger.bsky.socialfri nite SHAW
BanShi is playing Silksong! LIVE NOW on Twitch
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
@smartpatient.bsky.socialFriendly reminder that comparing your health journey to someone else's helps nobody. Your timeline is your own. Your progress counts even when it's slow.
@smartpatient.bsky.socialLearning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.
@colbounds.bsky.socialI am an artist as much as I am an Environmental Student.
#art #artist #smallartist #stickers #store #nature #environmental #naturalresources #STEM #chronicillness
@wordwitchlife.bsky.socialA bit #sick and fighting #fatigue so take a look at the poem I wrote earlier this week. Enjoy!
#amwriting #writingcommunity #poetsofbluesky #skypoets #chronicillness #mentalhealth #writersofbluesky #bskypoets #blueskypoetry #writersky
@alsnewstoday.bsky.socialLove shows up in the small moments as much as the big ones.
#ChronicIllness
@mgnews.bsky.socialStart your own reply: https://bit.ly/440DaPx
#MyastheniaGravis #MyastheniaGravisNews #Bionews #MGWarrior #ChronicIllness #RareDisease
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@mgnews.bsky.socialStarting your day positively sets the tone for everything else. What’s one morning routine you never skip? #ChronicIllness
@micaleesmith.bsky.socialThe fatigue is brutal and my pain levels are steadily rising.
But you know what? I keep trying. I meet my body where it's at and see what it can do, even if it says today is a rest and relax day.
No matter how much I do or don't get done today, that's what matters: I persist.
@alsnewstoday.bsky.socialIllness life: where “I’m fine” can mean “I’m doing my best to hold on.”
#ChronicIllness
@thezebraalliance.bsky.socialDo you live with Dysautonomia?
What do you want people to know about living with it?
#Dysautonomia linktr.ee/thezebraalliance #chronicillness #EDS #ehlersdanlossyndrome #hEDS #HSD
@apainprincess.bsky.social“#ChronicIllness is unpredictable. One day you’ll be thinking, “I can handle it” then bam. The next…find yourself bed-bound as the weeks fly by, wondering if it will ever let up… Now… I give myself #compassion — I am doing my absolute best — and that is OK.” https://buff.ly/2yHONMo #ChronicPain
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@smartpatient.bsky.socialTip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.
@buttahflyk.bsky.socialMany people with #ChronicIllness have a long list of #medications that keep us going. #TalkAboutPrescriptions Month (who knew that was a thing?) is a great reminder of why we should be talking about them all year long.
🦋
sarcoidosisnews.com/columns/crit...
#PatientExperience #sarcoidosis #SpoonieSky
@whitneydafoe.bsky.socialThe absolute agony when your mind doesn’t have enough energy to be conscious and process simply being alive and yet you still exist.
@sidneyeileen.bsky.socialFun Friday!
What brought joy into your life recently, no matter how big, small, or fleeting? Joy is the fuel that sustains and reminds us why we keep going.
#WitchSky #QueerSky #ChronicIllness #resist #wellness #support #depression #MentalHealth #SelfCare #community #disabled