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@mia-67198.bsky.socialOct 10, 2026, 1:47 PM

1 Woche Ivabradin wg #pots

Es hat Probleme im Stehen gegen meinen oft 150er Puls anzukommen, wobei selbst 120 dann ja schon echt gut ist.

Aber wenn ich danach liege merke ich wie mein Puls schneller niedriger ist & fühle mich dadurch innerlich entlastet.

Bin gespannt wie's weiter geht.

@liminal-fox.bsky.socialOct 10, 2026, 10:38 AM

Long overdue but I finally started watching Star Trek for the first time.
And honestly that salt craving tentacle monster in the first episode?
So relatable as a POTSie

#longcovid #mecfs #pots #trekkie #scifi

@barracuda-22.bsky.socialOct 10, 2026, 7:12 AM

Bamboo Hut Kitchen with Hanging Lanterns
#ai #aigenerated #digitalpainting #aiart #bamboo #lanterns #hut #kitchen #shelves #baskets #crates #pots #wooden #woven #interior #warm #light #traditional #rustic #indoor #hanging #lantern #bamboostructure #woodenfloor #earthytone #cozy #homemade #cultural

@untonuggan.myatproto.socialOct 9, 2026, 8:21 PM

Anyway: if you've got #POTS and all the POTS treatments are only sort of helping

Or you're getting POTS symptoms at weird not-POTS-flare times (eg while laying down in a cool room)

It's very valid to check and see if you're dealing with bonus medical problems on top of the POTS

@untonuggan.myatproto.socialOct 9, 2026, 8:00 PM

periodically tapping the sign:

#POTS is not the only medical condition that can cause fluid build up in your legs + tachycardia

@aserranzira.bsky.socialOct 9, 2026, 3:43 PM

I had a doctor tell me the other day that "exercise is whatever gets your heart rate up." So, like standing? #POTS

@chemdrv.bsky.socialOct 9, 2026, 3:17 PM

Nbd, buying 3lbs of salt online
#POTS

@parunzel.bsky.socialOct 8, 2026, 7:40 PM

Aimovig
Vyepti
Ajovy

Habt ihr zu einem davon Erfahrung mit #MECFS, #POTS und #Migräne? Mein Neurologe schickt mich zu euch, weil ihr das besser wisst und ich darf dann aussuchen was ich gerne hätte. 🥹

Erfahrungsberichte von "nur" Migränikern sind aber auch herzlich willkommen!

@nemechekprotocol.bsky.socialOct 8, 2026, 5:04 PM

Dr. Nemechek answers the top questions from this week's videos on cerebral hypoperfusion and the protocol. Real questions, real answers. #NemechekProtocol #BrainHealth #POTS #Autism

@jawless-fish.bsky.socialOct 7, 2026, 5:55 PM

Absolutely wild to have POTS bc then your doctors say stuff like "we need to heighten your blood pressure" "You need to increase your salt intake" "have you tried eating ramen?" which is like the exact opposite of typical advice

#pots

@fabulousphoenixboy.bsky.socialOct 6, 2026, 6:24 PM

[?][currently awaiting assessment/diagnosis for] #ChronicFatigue #CFS #ME #POTS #hEDS #endo #endometriosis

@nemechekprotocol.bsky.socialOct 6, 2026, 5:02 PM

Cerebral hypoperfusion mimics depression, brain fog, POTS, and autism. Here's the silent sign and what actually reverses it. #BrainHealth #POTS #NemechekProtocol #AutonomicMedicine

@lawerne.bsky.socialOct 6, 2026, 4:58 PM

Ich hab jetzt mal 5 Grad kälter geduscht und siehe da, der Puls fiel von 145 auf 125. 👍

#pots #mecfs

@tomkindlon.bsky.socialOct 6, 2026, 1:44 AM

Conference in Iceland - Bridge between continents

The conference will be held in English and will be live-streamed (for free).

mefelag.is/bridge-betwe...

mefelag.is/bridge-betwe...

Screenshot from latest Science for ME weekly update

#LongCovid #MEcfs #POTS

Conference in Iceland - Bridge between continents
Thursday, 29th October
The ME Society of Iceland in collaboration with other groups is holding a conference to bring together "leading Icelandic and international experts in ME, Long COVID, Environmental illness and POTS" to share knowledge from research and clinical practice. The conference will be held in English and will be live-streamed. Registration closes Oct 20th.
Announcement l Program | Thread
@tomkindlon.bsky.socialOct 6, 2026, 1:15 AM

From Ireland

Dysautonomia and Postural Orthostatic Syndrome of Hypocapnia in Long COVID Syndrome

Screenshot from latest Science for ME weekly update

#LongCovid #POTS #Dysautonomia #NeuroPASC #PASC

Dysautonomia and Postural Orthostatic Syndrome of Hypocapnia in Long COVID Syndrome — O’Brien et al
"Patients from this cohort with LCS, dysfunctional breathing and hypocapnia based on the lean test were referred for targeted pulmonary rehab." "There was no significant change in end-tidal CO2 or heart rate following the intervention."
Article | Thread
@accintouch.bsky.socialOct 5, 2026, 10:20 PM

Recognition of POTS is rising, but gaps in diagnosis, management and access to specialized care remain.

During Dysautonomia Awareness Month, explore new survey findings and expert insights in Cardiology magazine: https://bit.ly/4hE0Y1F

#POTS #CardiologyMag