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@deborahh.cosocial.ca.ap.brid.gySep 27, 2026, 2:11 PM

👆 or, if you're not into webinars, there is also an article on that website:

ADHD Connections to Chronic Inflammation and Dysautonomia:
https://www.additudemag.com/mast-cell-activation-syndrome-pots-adhd/

#mcas #pots #adhd #mecfs #dysautonomia

@benking01.bsky.socialSep 27, 2026, 4:56 AM

I've had #LongCovid for 4 years now.

I soon learnt to Pace myself better, to avoid Crashes in my #PEM symptoms and worsening #Dysautonomia.

#VisibleHealth has revealed improvement over time.

Now #EliteHRV seems to be doing the same 🙏

1-year trend graph showing HRV rising since last DecemberrMSSD graph over the past year, showing a rising trendSDNN graph rising over the past yearResting Heartrate dropping over the past year
@benking01.bsky.socialSep 26, 2026, 7:05 AM

Saturday, 8am.

Plodding along at my ridiculously slow pace.

But it's working - If working involves avoiding debilitating Post-Exertional Symptom Crashes 🙏

Ending this thread now.

#LongCovid #PEM #Dysautonomia

Visible Health Stability 4 out of 5. Looking Stable. HR lower than my normal range, HRV higher than my normal.EliteHRV 10 out of 10 Readiness. Perfect SNS to PNS Balance.Kubios 65% Readiness. Normal for me
@benking01.bsky.socialSep 23, 2026, 5:52 AM

Careful #pacing on my Tuesday-off-work, followed by a good night's sleep, has staved-off another potemtial #ParasympatheticSwing 🙏

Body seems RESET, STABLE, BALANCED and READY for a busy day ahead #teaching 😊

#SymptomManagement #LongCovid #Dysautonomia #PEM

Visible Health morning check in says 4 out of 5. Looking StableEliteHRV morning check in 9 out of 10 Readiness and PNS to SNS balanceKubiosHRV 77% Readiness
@benking01.bsky.socialSep 21, 2026, 5:46 AM

EliteHRV and KubiosHRV are also noting my body's continuing Stability, Balance and Readiness this Monday morning 🙏

#Pacing to avoid overexertion.

#LongCovid #Dysautonomia #PEM

EliteHRV morning check in. 9 out of 10 Readiness. Very slight Parasympathetic nervous system dominance over SympatheticKubios High 77% Readiness
@thelolgic.bsky.socialSep 21, 2026, 2:20 AM

1 in 5 people with POTS also get an autoimmune diagnosis like lupus.

Researchers say a dysregulated immune system may "chew" away at nerves controlling heart rate and digestion, driving symptoms shared by POTS, long COVID and ME/CFS.

#Thelolgic #POTS #LongCovid #AutoimmuneDisease #Dysautonomia

@limp-lift-love.bsky.socialSep 20, 2026, 12:03 AM

I need to get up. Dinner needs stirring. I'm trying, I'm still here. My brain wants to, my body can't. It needs a minute, one I don't want to give, it feels too long, like betrayal, a "normal" person would just do it.

I need to get up, but for now, I'll just wait
#chronicillness #UCTD #dysautonomia

@edsissuchamess.bsky.socialSep 19, 2026, 9:06 PM

So I still have a cold, and for whatever reason (thanks #dysautonomia), every time I cough or blow my nose, my vertigo gets so bad that I almost pass out.

So much fun! 

@benking01.bsky.socialSep 18, 2026, 5:36 AM

Friday on waking. Reset by 12 hours of REST, including a good night's sleep 🙏

#Pacing #Dysautonomia #PEM #LongCovid #Disability

Visible Health morning check in. 4 out of 5. Looking Stable. Resting HR lower than my normal range. Morning HRV higher.Readiness 8 out of 10 on EliteHRV69% Readiness on Kubios
@clin-auton-res.bsky.socialSep 17, 2026, 10:56 PM

In their letter to the Editor, Lucy Norcliffe-Kaufmann and Alejandra Gonzalez-Duarte report a 71-year old woman who developed disabling orthostatic tremor and severe orthostatic hypertension following cosmetic neck lift surgery. Read more here: link.springer.com/article/10.1...

#Dysautonomia

Three-panel figure. Panel A is a blood pressure tracing showing beat-to-beat systolic and diastolic overshoot following a Valsalva strain, with the systolic overshoot lasting 24.5 seconds and diastolic overshoot lasting 21 seconds. Panel B is a shaded area chart showing blood pressure and heart rate over a 60-minute tilt-table test, with pink shading marking periods in the malignant hypertensive range during tilt. Panel C is a schematic of the neural pathways controlling sympathoadrenal activity, showing carotid and cardiopulmonary baroreceptors, the nucleus tractus solitarius, rostroventrolateral medulla, limbic area, and adrenal medulla, with blue lines indicating the normal baroreflex pathway and red lines indicating the impaired pathway in a non-compliant artery.
@drjanetscott.bsky.socialSep 16, 2026, 10:17 AM

Presenting 2 posters @NRS ID Event in Dundee today.

🏡 Home NASA Lean Test: access for remote & rural communities
🫀 Dysautonomia in Long COVID:
Come and say hello at lunch!
#LongCOVID #PAIS #Dysautonomia #RuralHealth

@longcoviduk.bsky.social @longcovidscot.bsky.social
@nhshighland.scot.nhs.uk

@limp-lift-love.bsky.socialSep 14, 2026, 11:53 PM

Chronic Illness crew - If today is good, your energy is good, you have enough spoons to do what you love, you feel "normal", it's OK to enjoy it!

We don't have to feel guilty for a day of grace they are what help us survive the hard ones.

#UCTD #POTS #dysautonomia #chronicillness #spinalcordinjury

@vestibularfirst.bsky.socialSep 14, 2026, 4:15 PM

Recognizing Balance Awareness Week! Visit dz.care/FreeTrack for tips and a free template (see bottom of the page) for symptom tracking, and join the ABS email list at v1st.co/emailabs to get your Zoom link to a free Dysautonomia webinar.

#balanceawarenessweek #dysautonomia #vestibularmigraine

@benking01.bsky.socialSep 14, 2026, 4:08 AM

September 2026 Functional Capacity

Not getting better. But STABLE 🙏

HT #VisibleHealth

#LongCovid #Dysautonomia #PEM #Disability #FUNCAP27

Functional Capacity score of 5 out of 6. Various categories. I struggle with walking around much and being upright for too long.
@limp-lift-love.bsky.socialSep 13, 2026, 1:49 AM

It's Ok - you can rest today, He's got you.

#chronicillness #christian #rest #uctd #spinalcordinjury #undifferentiatedconnectivetissuedisease #POTS #dysautonomia

@longcoviduk.bsky.socialSep 12, 2026, 1:34 PM

FOLLOW DR ECCLES

linktr.ee/bendybrain

#LongCovid #LongCovidLive #Neurodivergence #Hypermobility #ADHD #Autism #Dysautonomia #POTS #MECFS #BrainBodyMedicine #PostViralIllness #ChronicPain #ChronicFatigue #LongCovidResearch #LongCovidTreatment

@saltshakerannie.bsky.socialSep 11, 2026, 9:42 AM

No one is immune from accidents or debilitating illnesses. #Dysautonomia #Orthostatichypotention

@limp-lift-love.bsky.socialSep 10, 2026, 3:18 AM

You are not your diagnosis. You are important. You are loved. You are valuable. You're brave enough to ask for help. You are strong. You're a warrior.

Your diagnosis doesn't define you - it only serves to prove how incredible you are.

#pots #dysautonomia #jia #uctd #spinalcordinjury

@benking01.bsky.socialSep 9, 2026, 5:37 PM

Made it! 🎉

#Pacing to avoid overexertion.

#LongCovid #PEM #Dysautonomia

In line with pacesetter line
@benking01.bsky.socialSep 9, 2026, 2:47 PM

Stopped for a coffee at an otherwise empty cafe and enjoyed the peace and quiet on a sofa, with my feet up in front of me.

But only when I reclined across the back seat of my car did I manage to get my heartrate back to Resting Pace - for the first time in 7 and a half hours.

Clear #dysautonomia ?

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