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@smartpatient.bsky.socialOct 10, 2026, 2:00 AM

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

@benking01.bsky.socialOct 8, 2026, 7:07 PM

Decided to attend our orchestra rehearsal. Parked just outside, so just a few additional steps. All very relaxing.

Back behind my #VisibleHealth pacesetter line 😎

#TubaPlayer #LongCovid #Pacing

0.5 pacepoints behind today's pacesetter
@tomkindlon.bsky.socialOct 8, 2026, 1:46 PM

8/

From today. I should say that I do sometimes get orange bits during the sleep period, certainly if I need to go to the bathroom but also the odd bit of orange on some nights.

#pacing #mecfs

Screenshot from Garmin Battery
@tanjas-pacingblog.bsky.socialOct 8, 2026, 7:06 AM

Früher konnte Pacing heißen: Spaziergang oder Telefonat? Heute: Telefonieren oder mich morgens mit Hilfe waschen? Mein Spielraum ist kleiner geworden. Was das mit meinem Pacing macht, erzähle ich in meinem neuen Blogbeitrag.
pacing-mecfs.de/150-beitraeg...
#MECFS #Pacing

@achronicvoice.comOct 7, 2026, 7:30 PM

" #Naming what is actually going on — You have chronic #sicknesses. It is not your #fault. It’s not for lack of effort or sleep that u can’t do all the things. I’m #sick; it's not my fault I can’t do all the things.": buff.ly/xZzGwfh

#ChronicIllness #ChronicPain #disabled #depression #pacing

@smartpatient.bsky.socialOct 7, 2026, 3:31 PM

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

@smartpatient.bsky.socialOct 7, 2026, 3:28 PM

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

@obol-the-ponderer.bsky.socialOct 6, 2026, 7:20 PM

ON PERCEIVED TIME

Does the current hour feel like it is dragging, or rushing past you?

Put the phone face down. Count to sixty without a clock, and see how your internal rhythm aligns.

#TimePerception #Pacing

@benking01.bsky.socialOct 6, 2026, 4:18 PM

Lovely couple of hours chewing the fat with a friend, then Flu vaccination and bus journey home.

Walked everywhere at snail's pace, so still have 10 minutes of 'Moderate' movement available if needed this evening.

Feels pretty amazing not to have relied on Driving to town 😊

And perfect #pacing!

Just 7.5 pace points used. Pacing line is nearly 10 pace points behind my pacesetter
@benking01.bsky.socialOct 6, 2026, 11:21 AM

Watching the World go by - Cross-legged in my folding camping chair.

#Totnes #DayOff #LongCovid #Pacing

@benking01.bsky.socialOct 6, 2026, 10:26 AM

It feels quite Autumnal down beside the River Dart. Slow stroll to town, via each and every bench; with my folding camping-chair with me for back-up 🙏

Three part-days of #fieldwork upcoming and I need to reassess my walking capacity.

#Pacing to avoid overexertion and debilitating #LongCovid #PEM

@benking01.bsky.socialOct 6, 2026, 8:57 AM

Just had *another* five hours of sleep 😮

#Sleeping is my #Superpower 🙏

Feeling much better for the Rest and, with approaching eight #visible_health PacePoints in hand, #Pacing should be very easy today 😊

It has been a long time since I walked to town 🤔

0 out of today's 24 pace points used. I have been in bed for 15 hours
@smartpatient.bsky.socialOct 5, 2026, 5:31 PM

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

@sanguinecpu.itch.ioOct 5, 2026, 2:51 PM

it's very unfortunate that my body is exploding in real time at the start of a gamejam but i am determined in my #HealthyGirl era. #NoCramming #Breaks #Pacing

@screenwriterpod.bsky.socialOct 5, 2026, 2:29 PM

📣 New Podcast! "EP 318 - - Rewriting, Pacing & the Rules Writers Get Wrong" on @Spreaker #a #advice #bad #character #death #draft #drafts #dramatic #first #horror #irony #pacing #podcast #rewriting #rules #screenplay #screenwriting #story #structure #writing

@achronicvoice.comOct 3, 2026, 1:30 PM

" #Pacing isn’t about doing less. It’s about distributing what u have across what matters in a way that you can sustain..sometimes the thing that looks like #GivingUp ..is the exact right #choice ..that left u something for tomorrow.": buff.ly/seSam9h

by @thethrivingspoonie.com
#ChronicIllness

@benking01.bsky.socialOct 3, 2026, 12:33 PM

13:30 Saturday afternoon.

LOTS of welcome REST 🙏

A single #VisibleHealth PacePoint, despite a shopping trip and a fair bit of light housework this morning.

#LongCovid #Pacing to avoid debilitating #PostExertionalMalaise

1.2 out of today's 24 pace points
@benking01.bsky.socialOct 3, 2026, 11:42 AM

...but a busy week of #teaching has left me exhausted (in a standard/ non-Long-Covid way).

Also looking after my unwell partner, so taking things slowly today 🙏

#Pacing to avoid #PEM

#LongCovid

@achronicvoice.comOct 2, 2026, 9:30 PM

"“Don’t beat yourself up, just give your body what it needs right now. Rest, love and nourishment.” — Invisible_Hypo.": buff.ly/f8IrrcI

#ChronicPain #healing #SelfCare #ChronicIllness #resting #pacing #acceptance

40 People with Chronic Illness Share Their Best Pain Management Tips (What to Do if an Unforeseen Pain Flare Hits)
@smartpatient.bsky.socialOct 2, 2026, 3:02 PM

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing