I've been hoping a newer country, like Ireland or New Zealand would lead the way on safe medical management of #ME. Take a look at this, given by microbiologist Prof Warren Tate, findings linking epigenetics with #PEM in NZ.
Thanks to ANZMES for making it public www.youtube.com/watch?v=giis...

From the popular Diploma Duck account on IG, FB and probably elsewhere

“ME/CFS (explained by ducks)” (58 seconds)

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PEM

A reminder to anyone who, like me, is trying to work out what on Earth is going on inside our #LongCovid bodies:

Pacing as I do and keeping within my daily 'energy envelopes' for Movement (KiActiv) and PacePoints (Visible Health) I am keeping free of Post-Exertional-Malaise #PEM symptoms 🎉

It feels quite Autumnal down beside the River Dart. Slow stroll to town, via each and every bench; with my folding camping-chair with me for back-up 🙏

Three part-days of #fieldwork upcoming and I need to reassess my walking capacity.

#Pacing to avoid overexertion and debilitating #LongCovid #PEM

Es emocionalmente tan intensa que al salir del cine, le dije a mi marido, voy a tener PEM durante más de una semana #SFC-EM #LongCovid #PEM #CovidPersistente

On to the next hurdle! 😤 Because I wanna see how far I can push myself

#Pem | #3D | #WIP

First treadmill run felt AMAZING - I could have continued for much longer, but I have #LongCovid #PEM to avoid 🙏

5 extra 'Moderate' movement minutes and 2 'Vigorous' minutes during my 3 minutes of actual running.

Before my LC Rehab course here at #NuffieldHealth I hadn't run since early childhood!

This is important. #ME #LongCovidME pose clinical challenges to every medical discipline.
#pwME the neglect of your illness is far more profound than the paradigm shift everyone has been fixated upon since the PACE debacle.
Medics urgently need proper training in safe management of #PEM

was being simultaneously manipulated to advance 2 careers at the expense of a full finding of fact. It felt like I was living through a mirror image of PACE).
So I met afterwards with Peter Barry, chair of the NICE review, to discuss findings. In three hours talking, he did not understand #PEM 😲

🪡 They do not understand #PEM.
Not a single witness in 14 day #MaeveInquest (public hearings & sworn statements), except the sadly discredited Dr Weir, knew what anaerobic metabolism means. They were not bad doctors; some very good.
NG206 did not help them. On the judicial finding of this fact, NICE

Post-Exertional Malaise in Long COVID and Post-Vaccine Syndrome: Why “Exercise More” Is the Wrong Answer

drpierrekory.com/blog/post-ex...

Pity that there is only one reference to ME/CFS in the (long) article

Screenshot from October AMMES newsletter

#LongCovid #PostExertionalMalaise #PEM

...but a busy week of #teaching has left me exhausted (in a standard/ non-Long-Covid way).

Also looking after my unwell partner, so taking things slowly today 🙏

#Pacing to avoid #PEM

#LongCovid

found improvements in fatigue and physical functioning in some people following exercise-based interventions, albeit with important limitations" shows how NICE failed to explain #PEM to its key audience: doctors.

#ME is not chronic fatigue! Specialist NHS services are needed to shut that quack

2/3

umgehen und das nicht an mich ran lassen, aber ich bin sowas von fertig, weil ich mich seit Wochen bewusst überlaste, im Grunde im Dauer- #PEM bin, immer wieder den schmalen Grad überschreite und tagelang fast gar nichts mehr geht

Weil die Not mein Haus verkaufsfähig zu bekommen, endlich aus dem

Friday morning.

All good.

#Pacing to avoid overexertion.

Avoiding #LongCovid #PEM

In this video, children and young people with lived experience of Long Covid share how the illness affects their everyday lives, helping others understand what it can feel like to live with Long Covid.

www.youtube.com/watch?v=e0U7...

#LongCovidandMe #LongCovid #PEM #LongCovidKids

Ending my busy (5-lesson) teaching day EIGHT #VisibleHealth PacePoints behind today's Pacesetter.

Strangely the busiest teaching loads can often lead to lower exertion 🤔

Good times.

#LongCovid #Pacing to avoid overexertion and debilitating #PEM symptoms 🙏