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@achronicvoice.comOct 9, 2026, 8:30 PM

"Then there is the #guilt that comes when we cannot keep up, when the #routines we are trying to force ourselves into, don’t work for us. These routines just become another source of pressure.": buff.ly/ezpevaz

by @beverleybutterfly.bsky.social
#ChronicPain #ChronicFatigue #disabled

@smartpatient.bsky.socialOct 9, 2026, 8:00 PM

Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie

@smartpatient.bsky.socialOct 8, 2026, 2:30 PM

Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie

@bebhinn.bsky.socialOct 8, 2026, 8:31 AM

Finally getting the coverage this disease deserves #endo #chronicfatigue #chronicpain
RTÉ News: Doctor calls for better #endometriosis care after surgery abroad www.rte.ie/news/investi...

@achronicvoice.comOct 8, 2026, 4:30 AM

"As the decline [into Haemolytic #Anemia ] had been gradual, the impact did not seem too harsh. The everyday #nausea, lack of appetite and general #malaise had become my norm without me even realising it.": buff.ly/U8i0CVz

#ChronicIllness #ChronicFatigue #NEisVoid #ChronicPain #lupus #Sjogrens

How Many Times Can You Hit Rock Bottom with Chronic Illness?
@smartpatient.bsky.socialOct 7, 2026, 1:30 PM

Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie

@mavnn.bonfire.mavnn.eu.ap.brid.gyOct 7, 2026, 11:51 AM

Ouch. Wondering if it's a good idea to get the flu vaccine with #ChronicFatigue and the current medical guidance seems to be "normally a good idea 'coz if you catch flu with chronic fatigue it's much more likely to kill you - but there's a none zero chance it will cause a huge relapse in all […]

@fabulousphoenixboy.bsky.socialOct 6, 2026, 6:24 PM

[?][currently awaiting assessment/diagnosis for] #ChronicFatigue #CFS #ME #POTS #hEDS #endo #endometriosis

@tomkindlon.bsky.socialOct 6, 2026, 6:16 PM

10/
What fatigue in ME/CFS feels like

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "Bone crushing. Always. I mean always present. But the intensity fluctuates. But ALWAYS present. When other symptoms of ME/CFS worsen, so does the intensity of fatigue increase...." RESEARCH i (. SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 6, 2026, 4:56 PM

9/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "ME/CFS-related fatigue is very different from ordinary tiredness. It feels like my body has an extremely limited amount of energy available, and even very small amounts of physical or mental activity can use up far more energy than they should. It can feel like my whole body is heavy, weak and drained, as though I have run out of fuel. Resting or sleeping does not reliably restore that energy.... RESEARCH UK SCO,6942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 6, 2026, 4:03 PM

8/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS "...My hobbies went one by one, friends disappeared. Cooking, eating, showering, cleaning the house have all been reduced over time. I can rarely cook from scratch now, it's exhausting. I rarely go out and can't go far when I do, I can't drive far any more...." Response from ME Research UK Symptom Saturday Fatigue Survey hel% RESEARCH UK SCO369.42 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 6, 2026, 3:10 PM

7/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

7/ Impact of fatigue in ME/CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife
@tomkindlon.bsky.socialOct 6, 2026, 3:06 PM

8/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "Exhaustion in my bones. Like walking through treacle...." RESEARCH UK SCO36942 '\ INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 6, 2026, 2:14 PM

6/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS "...I had to stop working, that had a huge impact on my mental health, I felt useless. My income and independence were gone and I felt like I wasn't a person who had anything to give anymore. I had to give up sports, hiking and anything that used my energy. My family life suffered, my partner became my carer. I couldn't do many things for my child and felt so guilty that she had a sick parent. Our lives changed from being very active to almost nothing...." Response from ME Research UK Symptom Saturday Fatigue Survey RESEARCH K ,CO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 6, 2026, 2:09 PM

7/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "Fatigue in ME/CFS is not tiredness as healthy people experience it. It is not tiredness after a busy day but more like the drained and weakened fatigue that healthy people would feel when they have a dose of flu and they are wiped out with all their strength gone...." 1414 RESEARCH UI SCC,6942 \ INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 6, 2026, 1:35 PM

6/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "Fatigue doesn't even begin to describe it. It feels like a whole body shut down...." MI UK SCO36942 IN FORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 6, 2026, 1:08 PM

5/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS "I struggled through by pacing myself & a sympathetic system that allowed me up to 6 months unpaid leave , but I couldn't care for my daughters in the way I wanted to" Response from ME Research UK Symptom Saturday Fatigue Survey RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 6, 2026, 11:42 AM

4/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS "...The change to a completely sedentary lifestyle is a major challenge and I am missing out on my retirement and not enjoying it. I can no longer engage with the same circle of friends. Adjusting to living with the condition is depressing." Response from ME Research UK Symptom Saturday Fatigue Survey RESEARCH UK ,C0692 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 6, 2026, 11:30 AM

5/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "Remember the time you were so exhausted you couldn't wait to go to sleep? I feel like that everyday. The difference is that when I wake up, I feel the same. Remember when you came down with the flu and felt like you were hungover, your head throbbed, you had no energy, and everything hurt? I feel like that everyday." RESEARCH UK SCO36942 \ INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 5, 2026, 10:23 PM

4/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "Like a battery that only partially charges and then drains ridiculously fast. I can feel the energy leave my muscles with every step I take or word I speak...." lit:. C H UK SCO36942 \ INFORM. INFLUENCE. INVEST.
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