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Long Covid UK

@longcoviduk.bsky.social

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Long Covid UK is a charity working to reduce the impact of Long Covid and improve the lives of all affected. Long Covid UK is a working name of Long Covid Support (Registered Charity in England and Wales: 1198938 | Company: 13422248)

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@longcoviduk.bsky.socialOct 6, 2026, 4:01 PM

If your family is feeling inspired, you can check out the fundraising section on our website or email [email protected] to get started. Thank you so much to everyone involved, and we hope you’re not feeling too sore! 🙏

@longcoviduk.bsky.socialOct 6, 2026, 4:01 PM

The family has raised an incredible £ 2,864, including Gift Aid, which will go a long way. Can we get them over the £3000 line by the end of the week? If you would like to contribute to the campaign, please follow the link below.

www.justgiving.com/page/nik-hol...

@longcoviduk.bsky.socialOct 6, 2026, 4:01 PM

As part of our #ForThoseWhoCant campaign, we have been really keen to get more friends and families of those with Long Covid involved in fundraising activities. This is the perfect example of the power of communities coming together to show their support. 💙

@longcoviduk.bsky.socialOct 6, 2026, 4:01 PM

Last weekend, 16 members of the Hollinghurst and Hole families set off on their annual family fundraising walk. This year, they very kindly decided to raise money for Long Covid UK, as a member of their family has been impacted by the illness.

#Fundraisingheroes #LongCovidUK

@longcoviduk.bsky.socialOct 5, 2026, 10:01 AM

Kris: “I’m delighted to join Long Covid UK and to use my financial leadership experience to support the charity’s long-term sustainability. I’m particularly looking forward to working with the Board, team and wider community to help ensure the charity can continue making a meaningful difference."

@longcoviduk.bsky.socialOct 5, 2026, 10:01 AM

He has extensive experience in strategic financial planning, financial recovery, transformation and governance, working closely with clinical, operational and executive leaders to support sustainable services and better patient outcomes.

@longcoviduk.bsky.socialOct 5, 2026, 10:01 AM

We're delighted to welcome Kris Prosser to our board as our new Treasurer! Kris is a Fellow Chartered Certified Accountant (FCCA) and senior NHS finance leader, currently working as Senior Finance Business Partner and Head of Finance for Medicine at Cardiff and Vale University Health Board.

@longcoviduk.bsky.socialOct 5, 2026, 9:01 AM

ONE WEEK LEFT to apply for the position of in-person peer support project assistant!

We're looking for an organised, enthusiasticself-starter to build on the success of this work and help grow attendance.

Find out more and apply here: longcoviduk.livevacancies.co.uk#/job/details...

@longcoviduk.bsky.socialOct 2, 2026, 1:00 PM

📢 Help shape the future of care for Long COVID and ME/CFS! The HERITAGE study is looking for people with lived experience of Long COVID and ME/CFS to take part in our study! As a part of Work Packages 1 and 2, you will: ✅ Complete 5 questionnaires over 12 months ✅ Share your symptoms and experie…

Image with a header saying Health Effects From Infection Sequelae Tailoring Services and Advancing Guidance. Logos for the Heritage study, the University of Leeds, the University of Leicester, the University of Oxford and the NIHR are also shown. Main text reads Why is Heritage needed? Care for Long Covid and ME/CFS varies across the NHS. Heritage will explore what services are provided, what people experience, what works, what needs to change. Your experiences can help inform the future of Long Covid and ME/CFS care. There is a QR code above which it says Join the Heritage Study. A website address is also given of https://heritage.leeds.ac.uk/join/
@longcoviduk.bsky.socialOct 2, 2026, 9:00 AM

To find out more details and to register please follow this link:
www.eventbrite.co.uk/e/in-person-...

#LongCovid #PeerSupport #SupportGroup #Chester

@longcoviduk.bsky.socialOct 2, 2026, 9:00 AM

🏘️ Parade Enterprise Centre, Blacon 📅 Thursday 8 October 2026 (but runs monthly, if you can't make it this time!) 🕙️ 10:15/30 AM (British Summer Time). 🖥️ If you prefer to join online, contact us at [email protected] ❤️‍🩹 We provide an air purifier in the room and t he building is fully accessible.

@longcoviduk.bsky.socialOct 2, 2026, 9:00 AM

For anyone that lives in Blacon, Chester and surrounding areas, please join us at the Long Covid in-person peer support group meeting next week! Whether you're a long-hauler or a caregiver, this is a safe space to share experiences, ask questions, and connect with others facing similar challenges.

@longcoviduk.bsky.socialSep 29, 2026, 3:42 PM

📝 Please support the APPG if you can by writing to your MP and encouraging them to attend this meeting!

#LongCovid #APPG #LongCovidAwareness #Parliament #PatientVoice #LongCovidUK

@longcoviduk.bsky.socialSep 29, 2026, 3:42 PM

Jo will remain an active member of the APPG, but as she has been appointed as a Parliamentary Private Secretary (PPS), she is no longer able to hold an officer position within the group.

@longcoviduk.bsky.socialSep 29, 2026, 3:42 PM

📢 Important Update from the APPG on Long Covid: Following Jo Platt MP stepping down from her role as Chair, the APPG on Long Covid will hold an Extraordinary General Meeting (EGM) to elect a new Chair on Tuesday 20 October at 2pm.

@longcoviduk.bsky.socialSep 25, 2026, 10:00 AM

Back in May this year, the House of Commons Library shared a new briefing on Long Covid, sharing information on a range of issues.

Why not take a read? The briefing is available here: commonslibrary.parliament.uk/research-bri...

#LongCovid #ResearchBriefing #HouseOfCommons

@longcoviduk.bsky.socialSep 23, 2026, 1:00 PM

Are you based in Northern Ireland and want to join us next time? Sign up via our Facebook Support Group, which you can join here: www.longcovid.org/support-serv...

#LongCovid #NorthernIreland #NILongCovid

@longcoviduk.bsky.socialSep 23, 2026, 1:00 PM

We've published a summary blog about the session here: www.longcovid.org/blog/norther... - huge thanks to Rebecca for so carefully holding the space, and also to Richard Sullivan from the Sunday World who interviewed Rebecca about her experience.

@longcoviduk.bsky.socialSep 23, 2026, 1:00 PM

We recently ran an online peer support group session, facilitated by the wonderful Rebecca Logan, who brought together a small group of people from Northern Ireland to share support, solidarity and experiences in NI.

@longcoviduk.bsky.socialSep 23, 2026, 10:44 AM

This is a paid role on a fixed-term contract, subject to renewal.

Interested? Apply now! longcoviduk.livevacancies.co.uk#/job/details...

#LongCovid #Recruiting #Job

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