@sedsconnective.orgof the whole person. Not two separate things. One person but not all are symptomatic.
Free to use and share.
#Hypermobility #Neurodivergence #neurodivergent #EDS #ADHD #Autism #Connective #neurodiverse #neurodiversity #NeuroAffirmative #neuroaffirmative #BodyBrain
@plopkin.bsky.socialIf you live with fatigue you eventually learn a New Rule.
The first day is a trick.
The second day it hits you if you don't respect the first day.
@stickmancomms.bsky.socialIf you want to support my work, please share it with your friends, families, support groups etc. It makes a huge difference - and is the main reason I can keep creating my disability resources while managing my #PoTS #Hypermobility etc! stickmancommunications.co.uk
@thezebraalliance.bsky.socialHow would you explain the effort it takes to stay stable so that people might understand?
linktr.ee/thezebraalliance #hypermobility #EDS #hEDS #HSD #ehlersdanlossyndrome #hypermobilityspectrumdisorder #connectivetissue #raredisease
@pipsissiwa.bsky.socialThis, put very simply, is why I'm almost always so physically tired, and esp if I've done, well, anything but just sit/lay in bed. It's not just my knees either. #hypermobility
@sedsconnective.orgDid you know there is more under the skin to eczema?
Inflammation, anxiety, pain, brain fog and fatigue can all be part of the picture.
We are SEDSConnective, the hypermobility neurodivergence charity.
@plopkin.bsky.socialI've had to learn how to help myself my whole life.
I've also learnt the things on offer aren't what I need.
Keep your nose out of my business. I'm not hurting anyone.
Leave me alone to look after myself.
@plopkin.bsky.socialThis is what worries me.
They'll find loopholes and catch22s where I don't get the money or the help.
And a huge part is the money gives me financial independence and crucially the 'freedom to choose'..
@sedsconnective.orgWe exist!
Hypermobility and Neurodivergence does not disappear by saying it does not exist
www.sedsconnective.org the community charity formed from unmet needs changing systems and laying the path for others to follow
#hypermobility #neurodivergence
@plopkin.bsky.socialI went to M&S and got my Dad some trousers.
So I did also get me a little old lady lamb dinner mini meal while I was there.
Actually should be getting medals for the parking as well.
Oh AND I'd been to the dentist and had a clean...
@jgjanegreenmbe.bsky.socialLooking forward to connecting and speaking with others on SEND. Free tickets with code JG-SEND
Email igpp.org.uk
#hypermobility #neurodivergence @sedsconnective.org
@whatkonnerth.bsky.socialAnyone have any first hand or actually know someone that's used Body Braid?
#neurodivergent
#hypermobility
@longcoviduk.bsky.social@thezebraalliance.bsky.socialWho wants to share what its like when you have a hip subluxation? Hip subluxations aren't discussed as much as shoulders, jaws, hands, and knees. Share your experience(s) 🩵🦓🩵
linktr.ee/thezebraalliance
#hEDS #EDS #HSD #hypermobility #hypermobilityspectrumdisorder #subluxations #ehlersdanlossyndrome
@lookmomnocondom.bsky.socialGet fucked right before the festival! - My hips
@thebrambler13.bsky.socialHealth issue they don't talk about for hypermobility / connective tissue problems. Every time you sneeze your joints feel like they've been hit with hammers. My shoulders and wrists hurt so much from this.
@plopkin.bsky.socialI had a Surprise Sneeze once.
Trapped nerve in my back for 3 days.
One week before a 9 hour flight to India.
@smkellat.mastodon.social.ap.brid.gyYou don’t understand how much of an act of loving affection it is to give an #actuallyadhd #actuallyautistic person with #hypermobility a hug. Containment is a precious gift in helping feel your body’s boundaries.
I’m still ashamed that I didn’t tell my safe person on Wednesday that that was […]
@jgjanegreenmbe.bsky.socialPain. Who else has sensory issues or historically has learnt to mask or dismiss pain ?
Very apt as September is pain month.
#Hypermobility is not just about joints but the whole body brain connections and is multisystemic.