How would you explain the effort it takes to stay stable so that people might understand?

linktr.ee/thezebraalliance #hypermobility #EDS #hEDS #HSD #ehlersdanlossyndrome #hypermobilityspectrumdisorder #connectivetissue #raredisease

Do you have a favorite adaptive device or mobility aid?⁠
⁠
Mars Lombardi talks about dynamic disability & various types of adaptive aids and devices that can be helpful when managing pain and fatigue: youtu.be/03VfEULK65w?...

#PainAwarenessMonth #EhlersDanlosSyndromes #HypermobilitySpectrumDisorder

EVERY doctor should know this: Share it far and wide 👌😀

linktr.ee/thezebraalliance (found this comment on a FB post) #EDS #ehlersdanlossyndrome #HSD #hypermobilityspectrumdisorder #connectivetissue #raredisease #chronicillness #chronicpain #disability

Have you learned to pace yourself? What tips do you have? What has worked for you? All the questions & answers 😉👉 I want all EDS types to share, because all have (co)morbidities.

#hEDS #HSD #EDS #chronicillness #chronicpain #invisibleillness #hypermobilityspectrumdisorder linktr.ee/thezebraalliance

Who wants to share what its like when you have a hip subluxation? Hip subluxations aren't discussed as much as shoulders, jaws, hands, and knees. Share your experience(s) 🩵🦓🩵
linktr.ee/thezebraalliance
#hEDS #EDS #HSD #hypermobility #hypermobilityspectrumdisorder #subluxations #ehlersdanlossyndrome