explore | Grilled Cheese

Drove my car to pick up the family in town today. First time I've driven since Feb. I'm still a mess. Driving a mile has worn me out as if I ran a mile in the heat. Still need to nap every day or I start to crash again but better than before. #mecfs #longcovid

From Germany

Brain-binding auto-antibodies in subjects with and without post-COVID-syndrome after SARS-CoV-2 infection

www.sciencedirect.com/science/arti...

Screenshot from latest Science for ME weekly update

#LongCovid #NeuroPASC #PASC

Most reviewed studies found no link between prior vaccination and cognitive deficits after infection using objective testing.

One larger study found a subtle benefit from ≥2 doses. Evidence remains limited and inconclusive in mini-review. #LongCovid

The Greens are the only party with responsible evidence-based policy solutions to the real threats we face.
#ClimateEmergency #FoodSecurity #EnergySecurity #Covid #LongCovid #PandemicPlanning #CyberSecurity #AI
Well said @elliechowns.bsky.social 💚

Is your child missing school because of #MECFS or #LongCOVID? Join Emerge Australia and MissingSchool for a free online session on educational supports for students with chronic illness. 📅 15 Oct, 2pm AEDT 🔗 zurl.co/6Ldjy

What if hypermobility is part of the Long COVID puzzle?

Research is finding links between hypermobility, hEDS, dysautonomia and Long COVID.

Maybe COVID doesn’t create every vulnerability,it exposes some of them.

#LongCovid #hEDS #Dysautonomia

longcovidjourney.com/long-covid-h...

“It is possible that, on a 5-year horizon, you would be able to give a blood sample & we could say, ‘Yes, based on these 3 markers, we can confirm that you have #LongCovid & it is the autoimmune phenotype, for example, & these are the treatments we’re going to give you,’” — @putrinolab.bsky.social

"We recognized the very fragmented and ad hoc way that these efforts were coming together," said
@michaelpelusomd.bsky.social. “And we really wanted to provide a central organized structure within which that work could take place.” #LongCovid

"Another problematic factor is that #LongCovid is a fluctuating condition. Biomarkers that appear to be prominent early on might play no role at later stages, said @ahandvanish.bsky.social, co-founder of the Patient-Led Research Collaborative (PLRC)."

Fear of masks; fear of admitting that #COVID is airborne; is not just a bad cold; is not yet endemic, that vaccine-acquired immunity is too short lived to #VaxAndRelax; that #Reinfections are bad, that #LongCOVID is real, & still without a cure (the risk of which is cumulative), etc.

PLRC co-founder @ahandvanish.bsky.social spoke to @thesicktimes.org about the importance of illness duration in validating #LongCovid biomarkers:

“If your study has patients that are all over the place in terms of illness duration, that’s going to complicate the findings”

A reminder to anyone who, like me, is trying to work out what on Earth is going on inside our #LongCovid bodies:

Pacing as I do and keeping within my daily 'energy envelopes' for Movement (KiActiv) and PacePoints (Visible Health) I am keeping free of Post-Exertional-Malaise #PEM symptoms 🎉

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Bedenke: Jede(!) weitere Reinfektion, auch asymptomatisch, ist eine erneute Lotterie-Teilnahme für #LongCovid !🧐

Mit jeder #Covid19 Reinfektion kumuliert das Risiko. Das bedeutet, mit jeder Infektion wird das Risiko größer (LongCovid, teils lebenslange Beeinträchtigungen)! Wird so hingenommen?🤬

🦠 Around 250,000 people could be affected by #LongCOVID in Catalonia, yet only around 14,000 cases are recorded in the healthcare system.

A new expert report identifies major gaps in diagnosis, care, research and support.

🔗 Read more: https://shorturl.at/G5ITf

#GlobalHealth