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@serenebutterfly.bsky.socialOct 3, 2026, 12:29 AM

"The night stretches ahead of me, not as a time for sleep, but as something to endure: hour by hour, minute by minute." www.brainlesionandme.com/painsomnia-w...

#ChronicPain #Painsomnia #NEISVoid #PainAwarenessMonth

@serenebutterfly.bsky.socialOct 2, 2026, 8:20 PM

"The decision whether to take a painkiller is a catch-22. Whether I choose to endure the pain or take a painkiller and face the side effects, it feels that I lose either way." www.brainlesionandme.com/pain-or-pain...

#ChronicPain #PainAwarenessMonth #NEISVoid

@apainprincess.bsky.socialSep 30, 2026, 4:23 PM

“Confined to my bed… #Pain and illness are insidious… You hurt, you’re sick; you can’t leave the house. #Anxiety develops. The claws of #depression come out… Hours pass; it could be minutes… feeling every microsecond in the small fibers of your body.” https://buff.ly/IFhazBV #PainAwarenessMonth

@kbi-uhn.bsky.socialSep 30, 2026, 4:12 PM

🔗 Visit this link to learn more from our Your Complex Brain podcast episode “Chronic Pain & The Brain”!

#PainAwarenessMonth @uhn.ca @uhnresearch.ca @krembilfoundation.bsky.social

@myseveralworlds.comSep 30, 2026, 3:27 PM

I am surprised by how often the 1-10 pain scale is used here. I'm glad to hear so many do not like this scale!

How would you rate your pain today?

For my last post this month, I'm sharing "A more realistic chronic pain scale by @PINKYANDTHEPAIN

#PAM2026 #PainAwarenessMonth #MySeveralWorlds

We've had a lot of talk about the pain scale here on this page during #PainAwarenessMonth. 

I, too, was very surprised by how often the 1 to 10 pain scale is used here in North America. And I've been glad to hear from so many of you who have said that you also do not like this scale.

❓How would you rate your pain today? 
 
For my last post this month, I'm sharing "A more realistic chronic pain scale by @PINKYANDTHEPAIN

0-2
Really?! I didn't know this even existed 

3-4 
My normal every day / lower normal. Can almost function as a normal person and very easy to hide.

5-6
ANNOYING. Also my normal on the medium days or after a busy day. Can normally continue every day things and can be hidden pretty well.

7-9
ANGRY. IRRITABLE. Can be my background during my high pain days. Often a warning of what is to come and when the mask starts to slip. Should plan to be home or close to home. Will be around close friends who understand only.

10-12
NOPE. Intermittent crying. This is high background with multiple spasms/shocks an hour. Will need to go home now and only be around those closest to me. Probably in bed/resting.

13+
NO WORDS TO DESCRIBE. UNCONTROLLED. Inconsolable or silent. Unable to move. Should probably see a doctor but I never do it. It will pass.

#PAM2026 #LetsTalkAboutPain  #MySeveralWorlds
@pedspainmed.bsky.socialSep 30, 2026, 2:15 PM

Thank you for following along with us throughout #PainAwarenessMonth
We are honored to be doing our part in caring for children with pain.

#SPPM #pediatricpain #chronicpain #pediatric #painmedicine

@ifaiarthritis.bsky.socialSep 30, 2026, 1:20 PM

For many of us with chronic pain, 1–10 doesn't tell the whole story. Sometimes an image, color, sound, or word says more.
For #PainAwarenessMonth: How would you describe your pain without using a number?

@myseveralworlds.comSep 30, 2026, 3:44 AM

I made this graphic years ago to help people visualize life with #ChronicPain. It reflects conditions relevant to my own medical history — not every painful condition that exists.

Some pain ends. Chronic pain can last for decades.

#PainAwarenessMonth #Fibromyalgia #AxSpA #CRPS #MECFS

Graphic titled “The McGill Pain Index” showing a vertical pain scale from 0 to 50. Conditions listed include sprain 14, fracture and arthritis 18, toothache 19, post-shingles nerve pain 22, non-terminal cancer 26, chronic back pain 28, chronic migraine 29, fibromyalgia 30, ankylosing spondylitis and psoriatic arthritis 32, childbirth 32–36, finger or toe amputation 39, and CRPS 46. The image includes black human silhouettes and MySeveralWorlds.com branding.
@nikkiserenity.bsky.socialSep 30, 2026, 12:42 AM

September is Pain Awareness Month and Echo Water may be able to help! Use my discount code NIKKISERENITY10 @ echowater.com?ref=NIKKISER...
#EchoWater #HydrogenWater #Hydrogen #PainAwareness #PainAwarenessMonth #Recovery #Antioxidants #OxidativeStress #WorkoutRecovery #HydrogenRichWater #Inflammation

@apainprincess.bsky.socialSep 30, 2026, 12:23 AM

“There is still a part of me that wants to push through, to pretend I can manage what I had planned and refuse to let my symptoms dictate my day… The acceptance can feel like a loss. But it can also be an act of #kindness towards myself.” https://buff.ly/x6hwpg4 #PainAwarenessMonth #ChronicallyIll

RobinReach
@apainprincess.bsky.socialSep 29, 2026, 4:23 PM

“Never in my life did I think that taking a shower would actually be hard. It’s an exhausting activity that usually requires me to sit or lie down for a while afterward to recover.” Challenging Daily Decisions https://buff.ly/4d11C5j #PainAwarenessMonth #Disability #ChronicIllness

@davidlow.bsky.socialSep 29, 2026, 2:18 PM

Dr. Carley Ouellette is a Canadian nurse, clinical scientist, and prominent chronic pain advocate who has successfully blended her lived experience of chronic pain as a patient with her academic and clinical work. #PainAwarenessMonth 🇨🇦

@rutgersods.bsky.socialSep 29, 2026, 2:04 PM

💙 Your strength matters. This Pain Awareness Month, we honor the resilience of those living with chronic pain and celebrate the hope that brighter days can come.

#PainAwarenessMonth #HopeAndHealing #ChronicPainAwareness

A Pain Awareness Month graphic featuring a blue awareness ribbon and an illustration of a person seated in a chair surrounded by nails symbolizing persistent pain. The text reads: “Despite all the fatigue. All the pain. All the flares. You're still here.” A Rutgers Disability Services logo appears in the lower-right corner.
@navigatems.bsky.socialSep 29, 2026, 1:15 PM

Pain is real, even when no one can see it. 💙

This #PainAwarenessMonth, meet Navigate MS: an app-based self-guided psychological intervention for invisible symptoms in MS, including pain.

We're now recruiting!

🔗 Follow the link below to learn more and join.

qualtrics.kcl.ac.uk/jfe/form/SV_...

@apainprincess.bsky.socialSep 28, 2026, 11:23 PM

“People who see us ‘able’ to carry out activities are oblivious to the pain involved, aftermath or inability to repeat that activity. The swift flare from ‘normal’ pain to being entirely unable to speak can also be perplexing.” https://buff.ly/3XV4FYt #PainAwarenessMonth #CentralPain #NervePain

@kbi-uhn.bsky.socialSep 28, 2026, 7:35 PM

How would you describe #chronicpain? 🤔

September is #PainAwarenessMonth: a reminder to raise awareness and elevate lived experiences to help reduce the stigma around pain and improve care for those who experience it.

@asahq.bsky.socialSep 28, 2026, 7:00 PM

September is Pain Awareness Month!

ASA continues to advocate for fair coverage and access to non-opioid pain treatments. Members, learn more about these efforts in this week's Monday Morning Outreach: https://ow.ly/MltM50ZR6Il

#PainAwarenessMonth

@axs-studio.comSep 28, 2026, 6:29 PM

Voltage-gated sodium (Nav) channels transmit pain signals along nerves in the peripheral nervous system. Because Nav channels are outside of the brain and spinal cord, they are being explored as potential targets for a new class of non-opioid pain medicine. #PainAwarenessMonth #chronicpain #sciart

@sandrawoodsmtl.bsky.socialSep 28, 2026, 5:12 PM

2 years ago, I was preparing to co-present a TED-type talk on neuroscience & #chronicpain at @qnjpi-paintalks.bsky.social - and how my art practice uses neuroplasticity for both my chronic pain & my Mild Cognitive Impairment (from the same rare disease)🎤
youtu.be/1SRx46Cn9kg?...
#PainAwarenessMonth

@apainprincess.bsky.socialSep 28, 2026, 4:23 PM

“We’re not being anti-social, we’ve probably just run out of spoons…our able bodied counterparts have an infinite number of spoons, a person with #disability does not. Every little action, movement or choice costs a spoon.” https://buff.ly/3ORzK9u #PainAwarenessMonth #InvisibleIllness #spoonies

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