Gutes #Pacing ist alles?
Habe die letzten 2 Wochen perfekt geplant, weil heute mein Kind für länger kommt.

Gestern ging es mir viel besser. Ich konnte schon um 17 Uhr denken.

Direkt danach: Laptop kaputt, rum versucht, telefonische Unterstützung, 2 Sachen improvisiert erledigt.

Heute Crash 😭😭😭

Monday morning check-in and my body remains nicely Stable and Ready for a new working week 😊

#LongCovid #Pacing

" #Pacing isn’t really a system. It’s a series of #questions you’re answering constantly, usually without time to think too hard: What actually has to happen today? What can I adjust? What can I let go of entirely?": buff.ly/BhMcvrX

by @thethrivingspoonie.com
#SelfAwareness #ChronicIllness #spoonie

#Cadence
#Pacing

Just 42 minutes of 'Moderate' movement today and 2 crazy minutes sprinting on the treadmill.

I try to keep below 60 minutes of Moderate movement each day - according to my #KiActiv smartwatch - as I then avoid PEM symptoms.

Well-within my daily movement limits 😊

#LongCovid #Pacing

Being SIXTEEN Visible Health pacepoints behind today's pacesetter, the only thing that will keep me #pacing and #resting between exercises is my self-control and memories of awful Post-Exertional-Malaise.

I don't want #PEM so I enjoy the exercise in short bursts only.

#LongCovid

Mangels kausaler und ausreichender symptomatischer Therapie bleibt bei ME/CFS oft nur Pacing: keine Therapie, sondern Schadensminderung.
Diese erzwungene Selbstbegrenzung kann zudem als Angst oder Vermeidungsverhalten psychologisiert werden.
#MEcfs #Pacing

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

ON PERCEIVED TIME

Does the current hour feel like it is dragging, or rushing past you?

Put the phone face down. Count to sixty without a clock, and see how your internal rhythm aligns.

#TimePerception #Pacing

Lunchtime!

Quick check with #VisibleHealth

Important to note that I have increased my daily PacePoints quota to 24PP, but in any case this shows good #pacing and a lack of Exertional heartrates 👇

A pneumologist, who supposedly is specialized on #LongCOVID, giving me an appointment for a three hour session?! Yup.
They may well have never heard of #PEM and the need for #Pacing.

Micropacing the orchestra rehearsal 🎶

#Pacing #LongCovid #TubaPlayer

Jürgen ist am Meer. Ich sehne mich dorthin. Aber mein Körper sagt Nein.
Was, wenn ich jetzt noch fahren könnte – und später nicht mehr? Was, wenn ich es tue und mir dadurch genau die Stabilität fehlt, die ich später brauche? 👉 pacing-mecfs.de/letzte-moegl...
#MECFS #Pacing

Thursday 06:15

PEM Crash averted 🎉

#VisibleHealth Looking Stable

#EliteHRV 10 out of 10 Readiness for the day ahead and perfect PNS/SNS Balance

#KubiosHRV High (80%) Readiness

A good Baseline for a full day of teaching, plus orchestra rehearsal this evening.

#LongCovid #Pacing

Visible Achievement Unlocked. 2 pace to 3 points. This is borderline mythical. My energy was considerably lower than I thought, and even on my best days, getting to 2 points for the day was not possible, but inevitable.

#pacing #chronicillnessiswar #visible #pwme #cwyszzebralife

Made it! 🎉

#Pacing to avoid overexertion.

#LongCovid #PEM #Dysautonomia

Busy morning.

Proud of this #pacing though!

#LongCovid #Teacher

I have SO MANY tactics! And I'm going to try to use them all this morning!

This has become like a game, I suppose 🤔

#Pacing to avoid a #ParasympatheticSwing leading to a debilitating #PEM crash 🙏