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@drelke.bsky.socialOct 2, 2026, 7:29 AM

#LongCovid
#ME

www.theguardian.com/society/2026...

The GP who responds here to George Montbiot's article admirably seems to know about PEM, but at the same time puts doubt on whether physical rehabilitation might not be beneficial after all for people with ME.
First, we need all GPs to not just know about PEM, but understand what it means - in the presence of PEM, physical rehabilitation is not possible, beyond trying to remain as active as can be within one's limited energy
envelope.
Only once we can trust all GPs to understand that, can we trust that those GPs are giving good and safe advice to people with ME.
@longcovidkids.bsky.socialOct 2, 2026, 7:12 AM

Growing up with Long COVID—Risk factors and #school impacts

RECOVER #researchers and caregivers shared insights into Long COVID social risk factors and how #LongCovid affects children’s learning and school experiences - inc what next.

recovercovid.org/r3-seminar-s...

@rachelgross-md.bsky.social

@benking01.bsky.socialOct 2, 2026, 6:02 AM

Many children have #LongCovid too.

@longcovidkids.bsky.social does a great job raising awareness of this growing problem.

youtu.be/e0U7K54RiSg?...

@benking01.bsky.socialOct 2, 2026, 5:54 AM

Friday morning.

All good.

#Pacing to avoid overexertion.

Avoiding #LongCovid #PEM

Visible Health 4 out of 5. Looking StableEliteHRV 8 out of 10 Readiness and well balanced SNS to PNSKubiosHRV High Readiness of 88%
@longcovidkids.bsky.socialOct 2, 2026, 4:41 AM

Free resources are available to download here:

www.longcovidkids.org/download-res...

#Resources #LongCovidKids #LongCovid

Photo, no description
@chronicloaf.bsky.socialOct 2, 2026, 4:18 AM

#TheFairyKing (1998) just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#Criptober #FaerieRealm #FilmDis #ForTinu #insomnia #spoonie #ThrowbackThursday #disability #NEISvoid #longcovid

The Fairy King, myth becomes truth
@longcovidkids.bsky.socialOct 2, 2026, 4:08 AM

In this video, children and young people with lived experience of Long Covid share how the illness affects their everyday lives, helping others understand what it can feel like to live with Long Covid.

www.youtube.com/watch?v=e0U7...

#LongCovidandMe #LongCovid #PEM #LongCovidKids

@marushka-t.bsky.socialOct 2, 2026, 4:04 AM

#COVID #longCOVID #pediatrics #childhealth #cleanair #publichealth

@violetblue.bsky.socialOct 2, 2026, 3:44 AM

Add to this:

- Likely significant number of people who don't realize they have #LongCovid
- Uninformed doctors
- Medical gaslighting
- People avoiding care due to cost

😢

@firebel.lyOct 2, 2026, 1:29 AM

Can't even spell right. #longcovid

@chronicloaf.bsky.socialOct 2, 2026, 12:45 AM

S1E1 of #FateTheWinxSaga, based on the #WinxClub series, is playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#Criptober #FaerieRealm #Halloween #spookyseason #ForTinu #disability #longcovid #autism #spoonie

Fate: The Winx Saga series poster
@tomkindlon.bsky.socialOct 2, 2026, 12:41 AM

From Sweden

Booster dose of COVID-19 vaccine and its effectiveness against post COVID-19 condition in individuals with pre-existing immunity

www.thelancet.com/journals/ecl...

Screenshot from Science for ME update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome

Booster dose of COVID-19 vaccine and its effectiveness against post COVID-19 condition in individuals with pre-existing immunity: a sequential propensity score-matched cohort study — Morris et al
"we demonstrate that receiving a fourth dose of COVID-19 vaccine is associated with a decreased risk of being diagnosed with post COVID-19 condition during the first 6 months after vaccination, although the incidence rate difference was small."
Article | Thread
@tomkindlon.bsky.socialOct 2, 2026, 12:24 AM

Serum NfL and GFAP in post-COVID syndrome: minimal evidence of CNS injury after adjusting for confounders

www.frontiersin.org/journals/cel...

Screenshot from latest Science for ME weekly update

#LongCovid #NeuroPASC #COVIDBrain

Serum NfL and GFAP in post-COVID syndrome: minimal evidence of CNS injury after adjusting for confounders — Wunderle et al
"[ME/CFS] was present in 61.4% of PCS and absent in controls" "serum neurofilament light (NfL) concentrations did not differ between patients with PCS and recovered controls in either crude or adjusted analyses, arguing against ongoing neuroaxonal injury in this cohort. GFAP levels were modestly elevated […] indicating a small disease-related astroglial signal."
Article | Thread
@debsoc.bsky.socialOct 2, 2026, 12:20 AM

Coming up soon on 10/9, as the 13th surge continues!
#HealthDisparities
#HealthEquity #LongCovid #HealthCareDisparities
#HealthPolicyResearch
@togetherwemask.bsky.social

@tomkindlon.bsky.socialOct 2, 2026, 12:18 AM

A systems microbiology framework for reproducible multi-dataset omics integration with application to long COVID

Screenshot from latest Science for ME weekly update

www.frontiersin.org/journals/sys...

#LongCovid

A systems microbiology framework for reproducible multi-dataset omics integration with application to long COVID — Varga et al
"the value of this result lies not in the novelty of individual genes, but in the reproducible emergence of a coordinated immune–metabolic expression pattern across datasets" "The resulting seven-gene system (PPP2CB, SOCS3, ARG1, FZD2, IL6R, TRGV3/5, and ECHS1) reflects coordinated immune and metabolic expression patterns."
Article | Thread
@microburin.bsky.socialOct 1, 2026, 11:43 PM

Add in please #LongCOVID. It's equally as horrifying. From neglect to proposed therapies that do severe harm. There's no systematic medical-side training, simply a lottery, and no meds as yet, simpy ongoing research. Meanwhile, or lives switched off, disabled, and politically ignored.

@violetblue.bsky.socialOct 1, 2026, 11:21 PM

ICYMI: all 5 US measles deaths = unvaccinated, Ebola exceeds 8,000 cases, 13th US Covid surge continues, Covid elevated in UK, Iran urges masks, Phase 3 begins for promising #LongCovid drug, Clean Air Inside the Actors' Studio, risk levels by location, and more: www.patreon.com/violetblue/p...

@longcovidsignal.bsky.socialOct 1, 2026, 11:03 PM

Brain fog linked to reduced brain electrical responses during attention tasks vs both non-fog and pre-pandemic controls.

Lower accuracy and slower reaction times persisted ~23 months after symptom resolution, suggesting lasting attentional deficits. #LongCovid

@ellybrosius.bsky.socialOct 1, 2026, 10:13 PM

The preprint "A Mechanical Basis: Brainstem Dysfunction as a Potential Etiology of #MECFS and #LongCovid"
now has over 100 votes in the Popular Preprints of the Decade Award voting. You can vote for it and others daily until 11/30/2026. @renegaderesearch.bsky.social