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Long Covid Kids

@longcovidkids.bsky.social

675 Following5.1k Followers

The charity supporting & advocating for children & young people with Long Covid & overlapping illness. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness #MECFS

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@longcovidkids.bsky.socialOct 8, 2026, 9:02 AMReposted by @longcovidkids.bsky.social

6 years on. Long Covid is our foundation. Children are our future. 🧡

We're revisiting the films that helped make children's experiences of Long Covid visible.
Our understanding continues to evolve. Our commitment remains unchanged.

www.youtube.com/watch?v=RiIa...

#LongCovidKids #ForEveryChildhood

@longcovidkids.bsky.socialOct 8, 2026, 9:02 AM

Every child deserves a childhood they can participate in.

www.youtube.com/watch?v=RiIa...

#LongCovidKids #ForEveryChildhood #LongCovid #LivedExperience

@longcovidkids.bsky.socialOct 8, 2026, 9:02 AM

6 years on. Long Covid is our foundation. Children are our future. 🧡

We're revisiting the films that helped make children's experiences of Long Covid visible.
Our understanding continues to evolve. Our commitment remains unchanged.

www.youtube.com/watch?v=RiIa...

#LongCovidKids #ForEveryChildhood

@thecovidinfoguy.bsky.socialOct 6, 2026, 5:24 AMReposted by @longcovidkids.bsky.social

Kids housebound or bedbound with Long COVID created superheroes inspired by their experiences with chronic illness and disability. Their heroes find strength in resting, asking for help and compassion. The characters now feature in a 72-page full-colour comic, Long Covid Superheroes.

#LongCOVIDkids

@longcovidkids.bsky.socialOct 6, 2026, 6:13 AM

Thank you for sharing.
@longcovidkids.bsky.social have been pleased to supoort this worthy project.

It’s given so much joy and is a wonderful resource.

@longcovidkids.bsky.socialOct 2, 2026, 7:12 AM

Growing up with Long COVID—Risk factors and #school impacts

RECOVER #researchers and caregivers shared insights into Long COVID social risk factors and how #LongCovid affects children’s learning and school experiences - inc what next.

recovercovid.org/r3-seminar-s...

@rachelgross-md.bsky.social

@benking01.bsky.socialOct 2, 2026, 6:02 AMReposted by @longcovidkids.bsky.social

Many children have #LongCovid too.

@longcovidkids.bsky.social does a great job raising awareness of this growing problem.

youtu.be/e0U7K54RiSg?...

@longcovidkids.bsky.socialOct 2, 2026, 4:41 AM

Free resources are available to download here:

www.longcovidkids.org/download-res...

#Resources #LongCovidKids #LongCovid

@longcovidkids.bsky.socialOct 2, 2026, 4:41 AM

A dedicated group of peer collaborators and young people worked alongside researchers to share their experiences and co-produce three resources.

Long Covid Lives
Long Covid: A Young Person’s Guide
Living with Long Covid: A Young Person’s Glossary

www.longcovidkids.org/post/covid-m...
#Resources

@longcovidkids.bsky.socialOct 2, 2026, 4:08 AM

In this video, children and young people with lived experience of Long Covid share how the illness affects their everyday lives, helping others understand what it can feel like to live with Long Covid.

www.youtube.com/watch?v=e0U7...

#LongCovidandMe #LongCovid #PEM #LongCovidKids

@longcovidkids.bsky.socialSep 29, 2026, 7:09 AM

We hope she has a wonderful day as she celebrates this achievement, and continue to raise awareness of Long Covid and the experiences of children, and families.

#WomenOfTheYear #WOY2026 #CelebratingWomen
#LongCovidKids

Graphic from Women of the Year featuring a photograph of Sammie McFarland. Text reads: “I am a 2026 Woman of the Year. Celebrating extraordinary women since 1955.” Women of the Year logo and sponsor logos appear on the graphic.
@longcovidkids.bsky.socialSep 29, 2026, 7:09 AM

to make sure their experiences are seen and heard, and to help create change.
We’re really pleased to see that work recognised and for @sammiemc.bsky.social to have the opportunity to meet and learn more about women doing brilliant things and touching lives across the UK and beyond.

@longcovidkids.bsky.socialSep 29, 2026, 7:09 AM

🧡 A little bit of LCK orange is heading to #WOY2026.
We’re delighted that our Founder and CEO, Sammie McFarland, has been invited to this year’s Women of the Year Lunch and Awards.

Since founding LCK in 2020, Sammie has advocated alongside children, young people, families & colleagues

Graphic from Women of the Year featuring a photograph of Sammie McFarland. Text reads: “I am a 2026 Woman of the Year. Celebrating extraordinary women since 1955.” Women of the Year logo and sponsor logos appear on the graphic.
@longcovidkids.bsky.socialSep 25, 2026, 7:54 PM

longcovidfeature.netlify.app

#LongCovidKids #LongCovid #SchoolAttendance #InclusiveEducation #ChildHealth #MedicalNeeds

@longcovidkids.bsky.socialSep 25, 2026, 7:54 PM

For children and young people living with Long Covid and other prolonged, fluctuating and energy-limiting illnesses, there can be significant barriers to accessing and participating in education.

@longcovidkids.bsky.socialSep 25, 2026, 7:54 PM

“Look beyond absence. See the child living with Long Covid.”

We’re really pleased to share that Long Covid Kids & Friends is featured by the National Attendance Portal.

longcovidfeature.netlify.app

#LongCovidKids #LongCovid #SchoolAttendance #InclusiveEducation #ChildHealth #MedicalNeeds

@longcovidkids.bsky.socialSep 24, 2026, 9:12 AM

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed.
@georgemonbiot.bsky.social

www.theguardian.com/commentisfre...

#ME #LongCovid

@angryhacademic.bsky.socialSep 22, 2026, 11:20 PMReposted by @longcovidkids.bsky.social

If a child or young person in your life (in the UK) has long COVID and they need support, please reach out to @longcovidkids.bsky.social. If you know of support groups for children and young people for other post-acute infection syndrome, please link in the comments 🙏🏻

@longcovidkids.bsky.socialSep 22, 2026, 10:34 AM

Congratulations to @profmarkfaghy.bsky.social, LCK Trustee, and his research team.

The ERASE_LC trial evaluated whether a 5-day course of intravenous remdesivir is feasible, safe, and acceptable for people living with Long COVID. (Adults)

#LongCovid #Remdesiver

@longcovidkids.bsky.socialSep 20, 2026, 5:59 AM

So much work has gone into this project to make sure it’s accessible.

You can listen or watch, as well as read.
Check out the narrated Long Covid Superhero’s comic here:

youtu.be/IAspWRcpFAk?...

#Dreamweavers #LongCovid

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