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@ustinoff.eurosky.socialOct 9, 2026, 11:17 PM

Da es bei #MECFS bzw. #PostCovid keine wirksame Behandlung gibt, bekämpft man mit verschiedenen Medikamenten und Nahrungsergänzungsmitteln einige Symptome. Das gibt leichte Linderung. Man findet das nur durch Herumprobieren.

@melmecfs.bsky.socialOct 9, 2026, 3:12 PM

#MECFS #LongCovid #PostCovid #PostVac #severeME #verysevereME

Bitte RT, danke.

@verhac.bsky.socialOct 9, 2026, 3:05 PM

Habe heute eine Nachricht einer Hausärztin aus einem anderen EU-Land bekommen, die ich vor ein paar Wochen im Urlaub kennengelernt habe: wo sie nochmal diese 🇦🇹 Off-Label-Med.liste - für ihre #PostCovid Patientin - finden kann, von der ich gesprochen habe?

HIER ‼️🔊🔝➡️
www.postviral.at/fileadmin/Bi...

@pflegeherz.bsky.socialOct 9, 2026, 12:29 PM

1/1 Leider können Krankenkassen nur verarbeiten, was sie geliefert bekommen. Der Vorwurf der Falschverschlüsselung ist daher berechtigt, weil #PostCovid, #LongCovid und #MECFS bevorzugt gern falsch verschlüsselt wurde und nach wie vor wird! Nachweis folgt im Thread!

www.zeit.de/arbeit/2026-...

@marriemar2.bsky.socialOct 9, 2026, 8:21 AM

#PostCovid knallt wieder rein.
In 30 Minuten Arbeitszeit schon 2 Fehler gemacht und berichtigen müssen.
Konzentration ist am Ende.

@tomkindlon.bsky.socialOct 9, 2026, 12:02 AM

From Ireland

Characterizing Host Inflammatory Bioprofiles in People With Postacute Sequelae SARS-CoV-2 Infection (PASC)

onlinelibrary.wiley.com/doi/10.1155/...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19

Characterizing Host Inflammatory Bioprofiles in People With Postacute Sequelae SARS-CoV-2 Infection (PASC) — Marmont et al
"six distinct inflammatory clusters were identified within people with PASC, three of which showed elevated biomarkers related to tissue damage and repair, coagulation, axonal injury, and antiviral immune responses and were associated with component 3 of the complement pathway."
Article | Thread
@tomkindlon.bsky.socialOct 8, 2026, 11:51 PM

From the US

Neurocognitive Indices of Long COVID: Dysregulated Engagement of Inhibitory Control and Oscillatory Slowing

www.mdpi.com/2673-4087/7/...

Screenshot from latest Science for ME weekly update

#LongCovid #NeuroPASC #COVIDBrain #PASC #PwLC #postcovid #postcovid19

Neurocognitive Indices of Long COVID: Dysregulated Engagement of Inhibitory Control and Oscillatory Slowing — White et al
"Taken together, these findings clearly indicate that even mild PASC is associated with significant alterations in cell signaling, characterized by oscillatory slowing."
Article | Thread
@desnips.nlOct 8, 2026, 7:19 PM

Rechter verbiedt omstreden postcovid-thuisbehandeling; directeuren kliniek bezitten zelf de patenten

https://desnips.nl/984d962-postcovid-lidoca-nebehandeling/

#Postcovid #Excellentcareclinics #Lidocaine

@kunterbuntesnk.bsky.socialOct 8, 2026, 3:59 PM

Der Mann wollte sich heute impfen lassen, (Angehöriger von #PostCovid -Patientin). Jetzt erstmal Krankenkassen abtelefonieren (meine + seine). Er hat erstmal nur Grippe intus. Nächste Woche dann beide (hoffentlich) neuen Coronaimpfstoff. Wenn's blöd läuft nur alten. 😭

B.

#LongCovid

@meassociation.org.ukOct 8, 2026, 12:46 PM

Nature: Safety of cardiopulmonary exercise testing in patients with severe post-COVID-19 condition: a matched case-control study

Read more, including comment from Dr Charles Shepherd, MEA Hon. Medical Adviser, on the blog: https://meassociation.org.uk/dijw

#MECFS #LongCovid #PostCovid #pwME #CPET

@martinbihl.bsky.socialOct 8, 2026, 12:15 PM

Small businesses still want banks who are “partners” despite many believing that they’re not currently getting from them what they need. We try to resolve this contradiction by raising a bigger problem. www.martinbihl.com/business-thi... #banks #business #postCovid

@melmecfs.bsky.socialOct 8, 2026, 9:53 AM

Der VDK Nord plant einen Podcast zu unsichtbaren Symptomen in Zusammenhang mit Gutachten.
Fragen können hier eingereicht werden:

nord.vdk.de/aktuelles/ne...

#MECFS #PostCovid #LongCovid #PostVac

nord.vdk.deUnsichtbare Symptome durchsetzen: Ihre Frage an die ExpertenUnsichtbare Symptome durchsetzen: Ihre Frage an die Experten
@melmecfs.bsky.socialOct 7, 2026, 11:15 AM

Heute Nachmittag liest Martin Rücker aus seinem Buch "Anna und das Biest".

Die Online-Veranstaltung ist kostenlos.
Hier kann man sich anmelden:

www.berlin.de/land/kalende...

#MECFS #LongCovid #PostCovid #PostVac

@marriemar2.bsky.socialOct 7, 2026, 4:06 AM

#PostCovid
Crash von Überanstrengungen,
Soweit so klar mittlerweile.
Ungewohnte Gespräch, Abweichungen, Mehr-Arbeit.

Aber das Auto waschen,
Auto in eine Waschablage stellen, rausgehen, zusehen,
überanstrengt, hätte ich jetzt nicht erwartet.
😵‍💫

@tomkindlon.bsky.socialOct 4, 2026, 10:16 PM

New from France

Interesting long Covid research where all participants satisfy ME/CFS criteria

Evidence for transcriptomic changes impacting muscle contraction in patients with post-acute COVID-19 syndrome

www.sciencedirect.com/science/arti...

#LongCovid #MEcfs #PwME #CFS #postcovid #postcovid19

Post-acute COVID-19 syndrome (PACS) overlaps with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) but, due to frequent muscle pain and exertional intolerance, neuromuscular disorders are often suspected. We report the results of a comprehensive neuromuscular evaluation in 27 PACS patients (22F/5M; median age 41 ys). All patients developed chronic fatigue (>6 months), post-exertional malaise, and cognitive impairment, with muscle pain in 88% but no neuromuscular deficits at clinical examination. 18/27 patients were unable to work. All patients fulfilled established ME/CFS diagnostic criteria (CDC 1994, ICC 2011, Inst Medicine 2015, NICE 2021). Electrophysiological studies and CK levels were normal. Brain 18FDG-PET/MRI (14/27) showed posterior hypometabolism in 8/14. Muscle biopsy (7/27) showed moderate dysimmune changes in 2/7. Exploratory transcriptomic analyses performed in muscle biopsies from PACS patients and pre-COVID controls unveiled in PACS differentially expressed genes in the cytokine and autophagy pathways. Interestingly, other genes were also differentially expressed in pathways affecting actin, the cytoskeleton, and contraction. Indeed, we found upregulated genes involved in the troponin-tropomyosin complex, a key regulator of muscle contraction through calcium binding. We also found downregulated genes involved in the formation and stabilization of actin bundles at sarcomere Z discs and in mechanical signaling. These findings indicate that PACS patients with prominent muscular symptoms do not exhibit overt neuromuscular involvement on standard investigations but may show subtle myopathic or dysimmune changes and central metabolic alterations. At the transcriptomic level, the data show an impact on key pathways involved in contraction. The overlap with ME/CFS highlights the importance of careful differential diagnosis and suggests a complex pathophysiology beyond a basic muscle disease.
@dgspsoa.eurosky.socialOct 4, 2026, 7:10 PM

Für mich ist die Suche nach Einwahldaten und Login bei der Bank 'Hacking'.

#Brainfog
#PAIS
#MEcfs
#PostCOVID

@kikkererwtje.bsky.socialOct 2, 2026, 4:28 PM

Postcovid lijkt best wel op ADHD, of niet?

#postcovid

@apresj20.bsky.socialOct 2, 2026, 3:27 PM

🔗 Les modalités d'inscription sont à retrouver ici :

#CovidLong #LongCovid #DemystifyingLongCovid #ApresJ20
#MedicalConference #POSTCOVID #COVID19 #ClinicalPractice #COVIDResearch #MedicalEducation #Research #LONGCOVIDINTL @academicmededu.bsky.social

@tomkindlon.bsky.socialOct 2, 2026, 12:41 AM

From Sweden

Booster dose of COVID-19 vaccine and its effectiveness against post COVID-19 condition in individuals with pre-existing immunity

www.thelancet.com/journals/ecl...

Screenshot from Science for ME update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome

Booster dose of COVID-19 vaccine and its effectiveness against post COVID-19 condition in individuals with pre-existing immunity: a sequential propensity score-matched cohort study — Morris et al
"we demonstrate that receiving a fourth dose of COVID-19 vaccine is associated with a decreased risk of being diagnosed with post COVID-19 condition during the first 6 months after vaccination, although the incidence rate difference was small."
Article | Thread
@frieke72.mastodon.social.ap.brid.gyOct 1, 2026, 7:31 PM

Interview of @georgemonbiot.bsky.social about the Guardian opinion, by David Tuller. With more details.
https://youtu.be/MaaeQ7crLz4

#mecfs #longcovid #postcovid #lyme #qkoorts

@mecfs @longcovid

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