@mgnews.bsky.socialA little space to acknowledge how unpredictable MG weakness can be🫶: https://bit.ly/4rj7kXu
#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessWarrior #MGJourney #MGWarrior #ChronicIllness
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@smartpatient.bsky.socialThe worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.
@kernasaurus.bsky.social@mgnews.bsky.socialLeave a 📝 in the comments if flares are pop quizzes nobody wants but everyone gets. #InvisibleIllness
@mgnews.bsky.socialA wave of compassion for anyone feeling worn down: https://bit.ly/4qRYccE
#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior #MGCrisis
@achronicvoice.com"Many of us don’t really open up about such things [like #ChronicIllness ] as well, especially if there’s a #mental aspect to it, which still holds quite a bit of #stigma in most #Asian #societies.": buff.ly/f6ITgUV
#singapore #MentalHealthAwareness #culture #InvisibleIllness #inclusive #humanity
@mgnews.bsky.socialA slower plan can still be a strong plan: https://bit.ly/4p1bPF3
#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@smartpatient.bsky.socialThe mental load of managing a chronic condition is exhausting on its own. Appointments, medications, insurance calls, symptom tracking. It's basically a part-time job nobody signed up for.
@angioedemanews.bsky.socialYou’re not alone in this journey.
#HAE #ChronicIllness #HereditaryAngioedema #OctoberSlide #SeasonalChange #SelfCare #InvisibleIllness #PatientSupport #ChronicFatigue #MentalHealth #PacingYourself #HAECommunity
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@mgnews.bsky.socialA moment of validation: MG is real, heavy, and you’re doing your best: https://bit.ly/4rkfT4v
#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior #MGCrisis #Thymoma
@smartpatient.bsky.socialThe mental load of managing a chronic condition is exhausting on its own. Appointments, medications, insurance calls, symptom tracking. It's basically a part-time job nobody signed up for.
@apainprincess.bsky.social“We’re not being anti-social, we’ve probably just run out of spoons…our able bodied counterparts have an infinite number of spoons, a person with #disability does not. Every little action, movement or choice costs a spoon.” https://buff.ly/3ORzK9u #PainAwarenessMonth #InvisibleIllness #spoonies
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@thezebraalliance.bsky.social"Things not to say for $500"
Waaaaay too relatable 😏🤣😂🤣
What "suggestions" do you wish people would stop suggesting? 😉 One of my favorites is, "you need to meditate." 🧘♀️🧘♂️😒😏🫠
linktr.ee/thezebraalliance #chronicillness #raredisease #chronicpain #invisibleillness #disability #EDS
@tomkindlon.bsky.social“I look fine, but dealing with chronic illness is my full-time job” (Pittsburgh's Public Source)
www.publicsource.org/pots-long-co...
First person account about coping with chronic illness triggered by COVID infection.
@nynaeve88.bsky.socialCosentyx & Ajovy help, but there’s no magic fix. I’m learning to pace myself, respect my limits and celebrate the good days. ❤️
These conditions are part of my life — but they are not all of me. 🐘💜
#ChronicIllness #InvisibleIllness #PsA #Fibromyalgia #Migraine #FND #POI