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@fndireland.bsky.socialOct 9, 2026, 8:38 AM

πŸ“’ Just over two weeks to go to join Charis at our first #FNDIreland Young Adult Event for those aged 18-26 living with #FND. πŸ’šπŸ§‘

πŸ“… Saturday 24 October 2026
⏰ 11am to 4pm
πŸ“ Talbot Hotel, Dublin

Only 20 places remaining, scan QR code to find out more and book your ticket!
@fndportal.bsky.social

@fndireland.bsky.socialOct 8, 2026, 2:03 PM

It was great to have new members join our regular members at our #FNDIreland peer support meeting in Leitrim last month. A big THANK YOU to all those who shared their experience of living with #FND.

Our final meeting of the year in Leitrim will take place on November 7th. πŸ’šπŸ§‘

@achronicvoice.comOct 8, 2026, 9:30 AM

"My #body moves in ways I can’t #control β€”or it refuses to move at all. It aches quietly, collapses without warning & spasms for no reason. It hides things from me, keeps its secrets & exposes me in the worst ways.": buff.ly/e50reOt

by @serenebutterfly.bsky.social
#ChronicIllness #FND #NEisVoid

@sip-com-acpe.bsky.socialOct 7, 2026, 4:01 PM

Title: Researchers probe the oxytocin system for clues to functional neurological disorder

Link: ift.tt/KobULmX

#oxytocin #FND #interoception #trauma-informed #spiritually-integrated-psychotherapy

@darkvamp.bsky.socialOct 7, 2026, 1:40 AM

#FND is destroying most of my life yet I still find it difficult to even accept it's real.

If I were to travel back in time ten years and tell myself I would experience vocal and motor tics, lose the ability to speak, move... I would have thought the possibility insane.

@linseigh.bsky.socialOct 6, 2026, 5:41 PM

I lost the ability to read & write in the middle of my Cambridge Creative Writing degree. As if that weren't enough, I also struggled w mobility & speech.

I was diagnosed w FND & in lieu of treatment or a cure, I was given a therapist to help me cope.

#writer #author #disability #fnd #books

@fndireland.bsky.socialOct 6, 2026, 2:31 PM

It was great to host our first #FNDIreland peer support meeting in Laois last month. A big THANK YOU to all those who attended and shared their experience of living with #FND.

Our next meeting in Laois will take place at 10.30am on the 31st October. Please register to attend. fnd.ie/contact-us/ πŸ’š 🧑

@ukfndnetwork.bsky.socialOct 4, 2026, 5:00 PM

Our newly designed UK FND Network Newsletter is coming out this week! πŸ“°
Featuring the latest FND research, news, events and updates from across the Network.

Want it delivered to your inbox? Sign up here:
πŸ”— ukfndnetwork.org/join/

#FND #UKFNDNetwork

@fndireland.bsky.socialOct 3, 2026, 9:30 AM

We are like Cian excited with only 3 weeks to go to our first #FNDIreland Young Adult Event. πŸ’šπŸ§‘

Join us for FND Forward, a relaxed event for those aged 18-26 living with #FND.

πŸ“… Saturday 24 October 2026
⏰ 11am to 4pm
πŸ“ Talbot Hotel, Stillorgan

Scan QR code to book!
@fndportal.bsky.social

@fndireland.bsky.socialSep 30, 2026, 12:32 PM

It was great to have new faces meet familiar faces at our #FNDIreland peer support meeting in Louth this month. A big THANK YOU to all those who attended and shared their experience of living with #FND.

Our next meeting in Louth will take place on the 17th October. πŸ’šπŸ§‘

@fndireland.bsky.socialSep 29, 2026, 3:02 PM

Looking forward to our #FNDIreland South Dublin/Wicklow Peer Support Meeting next month. Full details on the poster. Please email us or contact us via our website to register to attend. fnd.ie/contact-us/ πŸ’šπŸ§‘

πŸ“… 10th October 2026
⏰ 10.15am
πŸ“ Dun Laoghaire

#FND @donpsi.bsky.social

@nynaeve88.bsky.socialSep 27, 2026, 7:56 PM

Cosentyx & Ajovy help, but there’s no magic fix. I’m learning to pace myself, respect my limits and celebrate the good days. ❀️

These conditions are part of my life β€” but they are not all of me. πŸ˜πŸ’œ

#ChronicIllness #InvisibleIllness #PsA #Fibromyalgia #Migraine #FND #POI

@fndireland.bsky.socialSep 27, 2026, 5:16 PM

Our founder, Eamon as one of the #BrainTalks winners was delighted to have the opportunity to shine a light on #FND and the advocacy work of #FNDIreland in his talk at the European Federation of Neurological Associations Conference in Dublin.

Congrats to the @efna.net team on a wonderful event. πŸ’šπŸ§‘

@evilbabycat69.bsky.socialSep 26, 2026, 6:12 AM

my fucking body is shaking like it’s a fucking parade or whatever. my therapist says it’s the nervous system releasing energy but i just feel like i’m having a fucking seizure. #FND

@achronicvoice.comSep 25, 2026, 3:30 PM

"The #CAMHS & a specialist team from Great Ormond Street #Hospital created a #progress chart that would help motivate me to achieve my #dreams. I would get a point..whenever I moved an arm or finger.": buff.ly/epCpeIW

#ChronicIllness #FND #ProgressiveDisease #disability #NeurologicalDisorder

Liam’s FND Story β€” Read about Liam’s diagnosis and recovery process, and how me achieved his dream of visiting London.
@rachelgilmourld.bsky.socialSep 24, 2026, 4:42 PM

...are too often seen as a "liability." Carers, too, are often left to cope with enormous stress and time pressures of their own.

It's a condition that's too often dismissed, and that needs to change. Thank you to everyone at FND FrieNDs for such a productive conversation. (2/2)

#FND #FNDAwareness

@fndireland.bsky.socialSep 23, 2026, 5:20 PM

Kayleigh shares how important it is to bring young adults with #FND together to connect & share ideas.πŸ’š 🧑

Join us for FND Forward, a relaxed event for those aged 18-26 living with FND.

πŸ“… Saturday 24 October 2026
⏰ 11am - 4pm
πŸ“ Talbot Hotel, Stillorgan

Scan QR code to book!
@donpsi.bsky.social

@ninodatino.bsky.socialSep 22, 2026, 8:07 PM

On her father's birthday, my close friend collapsed and was rushed to the ER. Over the next two weeks she went back five times until she had her first non-epileptic seizure. That was the start of her life with Functional Neurological Disorder (FND). I want her story to be told.

#fnd #disability

@baseisvt.bsky.socialSep 22, 2026, 4:01 PM

Time for the Brain to Spin the Wheel of Bullshit! And it looks like it's landed on "Cannot taste/register Sugar"! Well ain't that a laugh folks?! Tune in next time for more! #FND #functionalneurologicaldisorder #thefleshvessel

@fndireland.bsky.socialSep 22, 2026, 12:56 PM

Great to see #FND on the agenda at the Irish IICN Annual Neurology Update Meeting this week. πŸ’šπŸ§‘

Dr Munteanu, Neurologist: β€œI picked some of the most common neurological conditions – epilepsy, migraine, Parkinsonism, and functional neurological disorder.." www.medicalindependent.ie/in-the-news/...

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