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@myseveralworlds.comOct 9, 2026, 4:26 PM

Reminder: seasonal changes make disabled people feel like shit.

It has to do with the
barometric changes.
Or we're witches.
We'll never say.

Credit: Crutches&SpookySpice

#MySeveralWorlds #AutumnVibes #Spoonies #DisabledLife

Reminder: seasonal changes make disabled people feel like shit.

It has to do with the
barometric changes.
Or we're witches.
We'll never say.

Credit: Crutches&SpookySpice

#MySeveralWorlds #AutumnVibes #Spoonies #DisabledLife
@myseveralworlds.comOct 8, 2026, 3:50 PM

Mirror: Lookin' good today.
Grocery store window: You could use some sleep.
Target checkout camera: T'was winter when she contracted the cholera, quickly succumbed & was buried in a shallow grave marked with a rough-hewn tombstone & wisps of lemongrass.
@paigekellerman.bsky.social

#MySeveralWorlds

Mirror: Lookin' good today.

Grocery store window: You could probably use some sleep.

Target checkout camera: T'was winter when she contracted the cholera, quickly succumbed, and was buried in a shallow grave marked only with a rough-hewn tombstone and wisps of lemongrass.

Credit: Paige Kellerman @PaigeKellerman

#MySeveralWorlds #SpoonieHumour #LifeWithPain
@myseveralworlds.comOct 7, 2026, 6:21 PM

Appropriate after spending the whole night at the Carleton Place Chamber of Commerce mixer masking my pain and migraine.

CHRONIC ILLNESS MASKING

Forcing yourself to keep plans even when you feel awful.

@THEMIGRAINENETWORK

#MySeveralWorlds #LifewithPain #Masking #InvisibleDisabilityAwareness

Appropriate after spending the whole night at the Carleton Place Chamber of Commerce mixer masking my pain and migraine.

CHRONIC ILLNESS MASKING
The invisible ways we pretend to be "okay,” even when we're not.

Forcing yourself to keep plans
even when you feel awful.

Over-explaining or justifying why you can't do something.

Powering through when you need rest.

Saying "I'm fine" when you're anything but.

Laughing to hide brain fog or
confusion.

Hiding mobility aids or medications out of
embarrassment.

Minimizing your symptoms so you don't seem "dramatic."

Silently struggling because asking for support feels too vulnerable.

Pretending noise or light isn't bothering you.

Acting "normal" so no one
worries.

Apologizing for needing help.

Smiling when you're in pain.

Credit: @THEMIGRAINENETWORK

#MySeveralWorlds #MigraineAwareness  #LifewithPain #Masking  #InvisibleDisabilityAwareness
@myseveralworlds.comOct 6, 2026, 3:47 PM

Here's the real truth:
If you smile, you're "doing better."
If you cry, you're "too emotional."
If you speak up, you're "difficult."
Pick your poison.

Credit @dear chronic pain

#MySeveralWorlds #ChronicIllnessAwareness

Here's the real truth:
If you smile, you're "doing better."
If you cry, you're "too emotional."
If you speak up, you're "difficult."
Pick your poison.

Credit @dear chronic pain

#MySeveralWorlds #ChronicIllnessAwareness
@myseveralworlds.comOct 5, 2026, 2:21 PM

Few people know I took a 9 month pro course on #LymphaticsDrainage in Oct 2025. I learned how to drain fluid from my own limbs & chest. I do not have a firm dx yet. My 2023 clot crisis shows there is something wrong with my lymphatics system.

Credit: Unknown

#MySeveralWorlds #LymphaticDrainage

Very few people know I took a nine month professional course on lymphatics drainage last year that started in October 2025. 

I learned so much including how to drain fluid from my own limbs and chest. 

I do not have a proper diagnosis yet, but my clot crisis in August 2023 demonstrated that there is something wrong with my lymphatics system. 

👉 LYMPHEDEMA FACTS OF MY LIFE
People don't realize that #lymphedema doesn't just swell our limbs - it weakens our immune system

When your lymph fluid isn't moving the way It should, vour body can't fight off germs like everyone else. 

So yes... we really do catch everything and it hits us harder, lasts longer. and drains us in ways most imagine.

But no matter where we are in our journey whether we're up, resting, or bed bound - we are still fighting in our own way.

Our strength isn't measured by movement. It's measured by endurance, courage, and the will to keep going through things most people will never understand.

Credit: Unknown

#MySeveralWorlds #LymphaticDrainage #Lymphatics #inflammation
@myseveralworlds.comOct 4, 2026, 4:57 PM

"Me on my way to leave a review for the dr who gaslit
me."

Credit: @chronically_nell

#MySeveralWorlds #MedicalGaslighting #MedicalTrauma

"Me on my way to leave a review for the dr who gaslit
me."

Credit: @chronically_nell

#MySeveralWorlds #MedicalGaslighting #MedicalTraum

Image of Taylor Swift on stage.
@myseveralworlds.comOct 3, 2026, 2:11 PM

On my way to the hospital again. Sigh...

Gonna light their MRI equipment up like a Christmas tree.

Appointment #5 this week!

Chronically yours,
Carrie

Credit: Chronic illness memes

#MySeveralWorlds #MedicalBurnout #ComplexCare #ComplexIllness #CanadianHealthcare

On my way to the hospital again. Sigh... 

Gonna light their MRI equipment up like a Christmas tree.

Appointment #5 this week!

Chronically yours,
Carrie

"When you swing into your third doctor's appointment in a week... 

How's my favorite waiting room doing?"

Credit: Chronic illness memes 

#MySeveralWorlds #MedicalBurnout #ComplexCare #ComplexIllness #CanadianHealthcare
@myseveralworlds.comOct 2, 2026, 2:50 PM

It's that time of year when tasks like holding a glass are hard! Cold weather makes fine motor skills tough for arthritis patients. It might look easy, but it is a difficult thing to do for many arthritis patients.

Do you struggle with basic tasks?
#InflammatoryArthritis #MySeveralWorlds

Life with arthritis: It's that time of year when tasks like holding a glass are difficult. Cold weather makes fine motor skills tough for arthritis patients.

It might look easy to hold a glass or pick up a pen, but it is a difficult thing to do for many arthritis patients. 

I've had grip and strength problems for over a decade. To this day, my grip and hand/wrist/arm strength continues to decline. 

I never thought it would be so difficult or painful to perform a simple task that most people do not think twice about. 

I also find it difficult to use cutlery and chopsticks! I have life hacks for getting around it on extra difficult days. 

Do you struggle with 'basic' tasks that no one gives a second thought to? 

Here are some other examples: getting in a car, 
putting something on a shelf over your head, 
tipping your head back to drink, and looking over your shoulder. 

#PsoriaticArthritis #AxialSpondyloarthritis #InflammatoryArthritis #MySeveralWorlds #ArthritisAdvocate
@myseveralworlds.comSep 30, 2026, 3:27 PM

I am surprised by how often the 1-10 pain scale is used here. I'm glad to hear so many do not like this scale!

How would you rate your pain today?

For my last post this month, I'm sharing "A more realistic chronic pain scale by @PINKYANDTHEPAIN

#PAM2026 #PainAwarenessMonth #MySeveralWorlds

We've had a lot of talk about the pain scale here on this page during #PainAwarenessMonth. 

I, too, was very surprised by how often the 1 to 10 pain scale is used here in North America. And I've been glad to hear from so many of you who have said that you also do not like this scale.

❓How would you rate your pain today? 
 
For my last post this month, I'm sharing "A more realistic chronic pain scale by @PINKYANDTHEPAIN

0-2
Really?! I didn't know this even existed 

3-4 
My normal every day / lower normal. Can almost function as a normal person and very easy to hide.

5-6
ANNOYING. Also my normal on the medium days or after a busy day. Can normally continue every day things and can be hidden pretty well.

7-9
ANGRY. IRRITABLE. Can be my background during my high pain days. Often a warning of what is to come and when the mask starts to slip. Should plan to be home or close to home. Will be around close friends who understand only.

10-12
NOPE. Intermittent crying. This is high background with multiple spasms/shocks an hour. Will need to go home now and only be around those closest to me. Probably in bed/resting.

13+
NO WORDS TO DESCRIBE. UNCONTROLLED. Inconsolable or silent. Unable to move. Should probably see a doctor but I never do it. It will pass.

#PAM2026 #LetsTalkAboutPain  #MySeveralWorlds
@myseveralworlds.comSep 28, 2026, 3:36 PM

How does it make you feel when a pain specialist questions how you talk about your pain?

Have you experienced problems with doctors telling you how you should and shouldn't talk about pain?

We'd love to hear about your experiences for #PainAwarenessMonth #PAM2026
#DontPunishPain #MySeveralWorlds

@myseveralworlds.comSep 27, 2026, 4:09 PM

"If you don't have to factor in losing 40% of your day in exchange for A Thing, you have no right to comment
on my ability to do A Thing.

Credit: Women With Chronic lllness

#PainAwarenessMonth #PAM2026
#MySeveralWorlds #ArthritisAwarenessMonth
#MigraineAwarenessWeek

"What abled people dont understand is that even if a disabled person manages to do A Thing, there is a cost for A Thing

We had a family member hours today visit for 3 hours. I collapsed from pain and fatigue when they left and slept for 10 hours straight.

If you don't have to factor in losing 40% of your day in exchange for A Thing, you have no right to comment
on my ability to do A Thing.

Credit: Women With Chronic lllness

#PainAwarenessMonth #PAM2026
#MySeveralWorlds  #ArthritisAwarenessMonth
#MigraineAwarenessWeek
@myseveralworlds.comSep 26, 2026, 4:45 PM

NEW: What happens when a disabled person’s need for assistance is seen as dependence? When the floor they can’t mop becomes more visible than the biz they’re running?

The Invisible Weight of a Disabled Wife
🔗
www.myseveralworlds.com/2026/09/10/t...
#Ableism #MySeveralWorlds #DisabilityAndMarriage

What happens when a disabled person’s need for physical assistance gets mistaken for dependence?

When the floor they can’t mop becomes more visible than the business they’re running. When the groceries they can’t carry matter more than everything they carry that no one can see.

This is a deeply personal story, but it’s also about something much bigger: ableism, invisible labour, and the dangerous assumption that needing help means being helpless.

And yes, it starts with a mop. The actual fucking mop. 🧹

The Invisible Weight of a Disabled Wife
🔗
https://www.myseveralworlds.com/2026/09/10/the-invisible-weight-of-a-disabled-wife/

#Ableism #MySeveralWorlds  #DisabledWomen #InvisibleLabour #DisabilityAdvocacy #DisabilityAndMarriage 

Pinterest
What happens when a disabled person’s need for physical assistance gets mistaken for dependence?

When the floor they can’t mop becomes more visible than the business they’re running. When the groceries they can’t carry matter more than everything they carry that no one can see.

This is a deeply personal story, but it’s also about something much bigger: ableism, invisible labour, and the dangerous assumption that needing help means being helpless. And yes, it starts with a mop. 🧹
@myseveralworlds.comSep 26, 2026, 3:51 PM

My little dwarf with a pick axe has been very active these past two months. I am still averaging 2-4 health appointments a week.
This results in HIP Days. (High Impact Pain Days) It's my way of using some humor for pain.

#PainAwarenessMonth #PAM2026 #MySeveralWorlds #ChronicPainIs #LifeWithPain

My little dwarf with a pick axe has been very active these past two months. I am still averaging 2-4 health appointments a week. 

Next week I have five appointments that conclude with an MRI next Saturday. The following week begins with a bang and another full appointment with my GP about the ER fiasco.

So I'm stressed out from doing too much and that results in HIP Days. (High Impact Pain Days)

This is my way of using some humor for pain.

#PainAwarenessMonth #PAM2026 #MySeveralWorlds #ChronicPainIs #LifeWithPain
@myseveralworlds.comSep 25, 2026, 4:29 PM

DID YOU KNOW?
The National Center for Chronic Disease Prevention & Health Promotion states that people with fibromyalgia are 3.4 times more likely to develop more depression compared to people who do not have fibromyalgia.
~ #MySeveralWorlds

#PainAwarenessMonth #FibroNerds #TeamFibro #SupportFibro

DID YOU KNOW?

"The National Center for Chronic Disease Prevention and Health Promotion states that people with fibromyalgia are 3.4 times more likely to develop more depression compared to people who do not have fibromyalgia. "

Credit: Carrie, My Several Worlds - Stories of Disability, Illness & Belonging 


#PAM2026  #PainAwarenessMonth  #MySeveralWorlds #FibroNerds #TeamFibro #SupportFibro
@myseveralworlds.comSep 24, 2026, 3:09 PM

Fibromyalgia is known for having more than 200 symptoms! This is why it is known as one of the most painful medical conditions to have. This word cloud is a list of things I experience daily because of fibro.
🔗
www.myseveralworlds.com/fibromyalgia/

#MySeveralWorlds #PainAwarenessMonth
#PAM2026

@myseveralworlds.comSep 23, 2026, 3:25 PM

It happened to me in ER in Sept despite my pharmacy list.

"I can't treat you, or give you any pain medication because that's not my field. But, I'm going to refer you to five other doctors who won't help you either."

Credit: Unknown

#PainAwarenessMonth #PAM2026 #MySeveralWorlds #DontPunishPain

This is what happened to me on Sept 5th when I forgot my meds at home at 3am and ended up being in ER for 24 hours. For the first five hours I was refused completely despite having my legit pharmacy med list on me with my doctor's name and only needing one tablet. 🤦

There were no referrals. I was told to "wait my turn" 🤷‍♀️ while hemorraging, and triaged as CTAS 3 (urgent) with 10/10 acute pain. 

"| can't treat you, or give you any pain medication because that's not my field. But, I'm going to refer you to five other doctors who won't help you either."

Credit: Unknown

#PainAwarenessMonth #PAM2026 #MySeveralWorlds #DontPunishPain
@myseveralworlds.comSep 20, 2026, 3:40 PM

I admit that I don't like the idea of "making" anyone suffer just to prove point however a few seconds might be interesting! It could be like those birth shocker videos that are going around that show men what women go through.

#PainAwarenessMonth #PAM2026 #MySeveralWorlds
#LetsTalkAboutPain

I admit that I don't like the idea of "making" anyone suffer just to prove point however a few seconds might be interesting! It could be like those birth shocker videos that are going around that show men what women go through. 

"I wish they could invent a medical device that temporarily transfers your symptoms and pain to the doctor treating you and it worked like a shock collar. "I think light exercise would" and then bam they're rolling around the floor clutching their stomach in agony and dry heaving."

Credit: byjove The Aesthetic
Indie Hipster

#PainAwarenessMonth #PAM2026 #MySeveralWorlds 
#ChronicMeme #LetsTalkAboutPain
@myseveralworlds.comSep 19, 2026, 4:28 PM

For #ArthritisAwarenessMonthi, an AxSpA signs & symptoms list. It is a complex disease. Its severity & progression can vary greatly among. This list is not exhaustive. Always discuss your symptoms with your medical provider.
#AnkylosingSpondylitis
#MySeveralWorlds #PAM2026 #PainAwarenessMonth

For #ArthritisAwarenessMonth I'm sharing a short AxSpA signs and symptoms list.  

#AxSpA is a complex disease. Its severity and progression can vary greatly among individuals.

✔️ Has your pain started before the age of 45? 
✔️ Has your back pain lasted from more than 3 months? 
✔️ Does your pain get worse with rest? 
✔️ Do you have pain in your hips and buttocks?
✔️ Do you wake up from pain at night?
✔️ Are you stiff for more than 30 minutes in the morning?

This list is not exhaustive. Always discuss your symptoms with your medical provider. 

#FiercelyFightingArthritis #AnkylosingSpondylitis 
#MySeveralWorlds #SpondyWhat #PAM2026 #PainAwarenessMonth
@myseveralworlds.comSep 18, 2026, 2:30 PM

#ChronicPain affects every aspect of your life
It has lasting effects on your body
It limits your ability to work & earn money
Chronic pain changes your personality, confidence & relationships
It makes you fearful & scared
It requires a superhuman power of pain tolerance
© #MySeveralWorlds
#PAM2026

8 Ways Chronic Pain Changes You

Chronic pain affects every aspect of your day to day life

Chronic pain has lasting effects on your body

Chronic pain limits your ability to work and earn money

Chronic pain changes your personality

Chronic pain can affect your confidence

Chronic pain can change your relationships with others

Chronic pain makes you
fearful and scared

Living with chronic pain requires a superhuman power of pain tolerance

Credit: Carrie, My Several Worlds

Read more in the comments ⬇️

#PainAwarenessMonth #PAM2026 #LetsTalkAboutPain
#MySeveralWorlds
@myseveralworlds.comSep 17, 2026, 4:18 PM

17 long years of waking up in pain & feeling like someone took a meat tenderizer to my body. I don't know how we get through other than through willpower. If I didn't have basic pain treatment options, I don't know where I'd be now.

#PainAwarenessMonth #LifeWithPain #PAM2026
#MySeveralWorlds

LIFE WITH CHRONIC PAIN 

17 long years of waking up in pain and feeling like someone took a meat tenderizer to my whole body. I don't know how we get through this day after day other than through willpower. If I didn't have basic pain treatment options, I don't know where I'd be now.

LEARN MORE AT
My Several Worlds - Stories of Disability, Illness & Belonging 

#PainAwarenessMonth #LifeWithPain #PAM2026
#MySeveralWorlds
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