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@benking01.bsky.socialSep 22, 2026, 11:32 AM

Two hours of well-paced food preparation and batch-cooking.

Much rarer than I'd like it to be, as I find it quite exhausting using my arms and standing for long.

#LongCovid #Pacing and #Micropacing to avoid overexertion 🙏

Visible Health heartrate graph showing lots of rest periods
@germainehypher.bsky.socialSep 22, 2026, 10:13 AM

Resisting A Rest - pen and pencil drawing by Germaine Hypher.

#drawing #cartoon #humour #humor #pacing #art #spoonie #chronicfatigue #chronicpain #chronicillness #invisibleillness #ME/CFS #fibromyalgia #longcovid #mecfs

A black and white drawing of a woman in pyjamas sitting at a table covered with set and craft materials. She is making a poster that says “don’t make me stop”. Behind her is a bed. Between her and the bed is a smiling, friendly police woman wearing fluffy slippers, holding a sleep mask and pointing to the watch on her wrist. Her walkie talkie is emitting the words of a lullaby, her badge says Sleep Police and a speech bubble from her mouth says “I strongly advise you against resisting a rest”.
@obol-the-ponderer.bsky.socialSep 21, 2026, 7:07 PM

ON PERCEIVED TIME

Does the current hour feel like it is dragging, or rushing past you?

Put the phone face down. Count to sixty without a clock, and see how your internal rhythm aligns.

#TimePerception #Pacing

@smartpatient.bsky.socialSep 21, 2026, 5:30 PM

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

@benking01.bsky.socialSep 21, 2026, 5:46 AM

EliteHRV and KubiosHRV are also noting my body's continuing Stability, Balance and Readiness this Monday morning 🙏

#Pacing to avoid overexertion.

#LongCovid #Dysautonomia #PEM

EliteHRV morning check in. 9 out of 10 Readiness. Very slight Parasympathetic nervous system dominance over SympatheticKubios High 77% Readiness
@benking01.bsky.socialSep 20, 2026, 3:19 PM

Well-within today's #visible_health PacePoints because I have mostly been lying down today - including during my time here in the gym!

#Pacing and #Micropacing to avoid exertion and debilitating #LongCovid #PEM symptoms 🙏

4.8 out of 22 daily pace points used so far today. It's after 4pmHeartrate graph shows HR reaching 140bpm during running
@benking01.bsky.socialSep 20, 2026, 1:59 PM

On arrival at the gym:

So far today I've used 40 minutes of my 60-minute daily quota of 'Moderate' movement [ #KiActiv smartwatch accelerometer ].

A reduced series of Flexibility, Strength and Cardio exercises today, I think.

Better to play on the side of caution 🙏

#LongCovid #Pacing

Movement graphs from KiActiv
@benking01.bsky.socialSep 20, 2026, 11:03 AM

Micropacing the gardening.

Another session like this 👇 using my second 20-minute quota of 'Moderate' movement [ #KiActiv ] and then I'll have enough for a gym visit 🙏

#Pacing #LongCovid

Visible heartrate graphPacepoints graphicsKiactiv movement data graphed
@shirley11.bsky.socialSep 20, 2026, 6:55 AM

Leitfäden JGU Mainz zu #Pacing (PDF)

Pacing auf der körperlichen Ebene:
www.sportmedizin.uni-mainz.de/files/2023/0...

Pacing auf kognitiver und emotionaler Ebene:
www.sportmedizin.uni-mainz.de/files/2023/0...

#PEM #MECFS #Longcovid /3

@shirley11.bsky.socialSep 20, 2026, 6:32 AM

Zusammenfassung des Konzepts von Univ.-Prof. Dr. Dr. Perikles Simon mit Quellen:
www.ergo-lindauer.com/30sekundenpa...
zB Die zentralen Elemente des 30/30 Trainings: youtu.be/yTUcYYCbgKo?...
Artikel: www.healthrising.org/blog/2024/06...

#Pacing #PEM #Longcovid #MECfs /2

@shirley11.bsky.socialSep 19, 2026, 6:26 PM

Das "Management" von #Pacing zur Vermeidung von #PEM ist schwierig.

Der Ansatz von Prof. Dr. Dr. Simon ist sehr schlüssig & funktioniert bei mir besser als alles andere.
#MECfs #Longcovid

Podcast:
youtu.be/eYmZsyPwDvI?...
Interview
Teil 1: youtu.be/9NoOtxNyEPQ?...
Teil 2: youtu.be/FwAlG6zg0jQ?...

@benking01.bsky.socialSep 19, 2026, 2:13 PM

Invigilating exams is itself pretty sedentary.

Moving chairs and tables beforehand and afterwards is more energetic...

Repeatedly walking upstairs to the staffroom in-between the four exams also resulted in exertion 🤔

But the overall impact has been low 🙏

#Pacing to avoid #PostExertionalMalaise

Visible Health pacesetterHeartrate graph from Visible showing short periods of exertion
@benking01.bsky.socialSep 18, 2026, 5:36 AM

Friday on waking. Reset by 12 hours of REST, including a good night's sleep 🙏

#Pacing #Dysautonomia #PEM #LongCovid #Disability

Visible Health morning check in. 4 out of 5. Looking Stable. Resting HR lower than my normal range. Morning HRV higher.Readiness 8 out of 10 on EliteHRV69% Readiness on Kubios
@stillrollingoutdoors.comSep 18, 2026, 12:00 AM

Trusting that nothing lost in stillness is wasted.

After long seasons of effort, the world slows itself.

Leaves fall. Rivers thin.

Rest isn't retreat. It's repair.

buff.ly/DhX9fQ2

#ChronicIllness #Pacing #Rest

@alemmatthees.bsky.socialSep 17, 2026, 6:08 PM

Bluesky is not properly showing me all my replies I posted to @tomkindlon.bsky.social about #Pacing for #MECFS so I am creating a new thread and tagging him here. 🧵👇

@benking01.bsky.socialSep 17, 2026, 3:08 PM

Eight and a half hours on the go, and I have taught a full day of five hour-long lessons today.

Proud of this #pacing 😊

I managed to keep my heartrate low at times - including during some of the lessons.

Feet-up for a few minutes now in the staff-room 🙏

#LongCovid

Visible Health heartrate graph for every minute of the day so far3.7 pace points behind my Visible pacesetter
@schreibgarten.bsky.socialSep 17, 2026, 2:44 PM

Seit 1880 und heute bis 19 Uhr geöffnet, an der Bahnhofstrasse; das reicht. 👌 #Pacing 🍒
#Victoria #Zureich Apotheke an der Bahnhofstrasse Zürich – Rotpunkt Apotheke | Victoria Pharmaworld share.google/yLRJ3aVKxWRU... #Interaktion

@obol-the-ponderer.bsky.socialSep 16, 2026, 6:00 PM

ON PERCEIVED TIME

Does the current hour feel like it is dragging, or rushing past you?

Put the phone face down. Count to sixty without a clock, and see how your internal rhythm aligns.

#TimePerception #Pacing

@smartpatient.bsky.socialSep 16, 2026, 1:00 AM

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing