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@smartpatient.bsky.socialSep 13, 2026, 1:00 PM

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

@achronicvoice.comSep 13, 2026, 10:30 AM

"[ #ChronicPain ] causes more than physical symptoms. It likes to bring along its friends to the party — #BrainFog, fear, guilt, #anxiety & #depression ..takes a toll on relationships, careers and & life.": buff.ly/PwKC2ne

by @despitepain.bsky.social
#NEisVoid #ChronicIllness #disability #spoonie

@chronicloaf.bsky.socialSep 13, 2026, 9:12 AM

#MurderSheWrote is playing in the #ChronicLoaf stream tonight

mzelo.com/app/rooms/ch...

#MidnightMysteries #neisvoid #mecfs #DisCo #ForTinu #spoonie #MurderMystery #wakenbake #SLSC

@achronicvoice.comSep 13, 2026, 7:30 AM

"I had hoped that with the right answers [at #medical consultations] I could find something that would make me better, but nothing has worked. I am stable now..& I’ve accepted that there is nothing more to be done.": buff.ly/M9z7ru2

by @raisiebay.bsky.social
#ChronicIllness #disabled #spoonie

@achronicvoice.comSep 12, 2026, 9:30 PM

" @lisaalioto shares how her initial skepticism..about using a #gratitude #journal which turned into #appreciation, when she saw the #positive changes it made in her life. If u have trouble forming new #habits, there r some nifty tips here as well.": buff.ly/2JG8FBV

#ChronicIllness #pwME #spoonie

The Value in Seeking Out Moments of Gratitude (and How to do it). Gust Post by: Lisa Alioto. Read the post on: A Chronic Voice .com
@chronicloaf.bsky.socialSep 12, 2026, 7:35 PM

#StarTrekDeepSpaceNine is playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#StarTrek #Trekkies #mecfs #FilmDis #TinusFavoriteTings #spoonie #cannabiscommunity #ChronicPain #longcovid

Star trek deep space nine cast poster
@chronicloaf.bsky.socialSep 12, 2026, 5:23 PM

Time for our Daily Dose of Joy!

#TheJoyofPaintingwithBobRoss is playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#DisabilityCommunity #neisvoid #mecfs #ForTinu #spoonie #ChronicPain #cannabisculture #FuckBRI #BobRossTheJoyofPainting

@apsfaorg.bsky.socialSep 12, 2026, 4:06 PM

What is your biggest pet peeve about your chronic illness(es)? #spoonie #autoimmune #chronicillness #petpeeve #APSFA

Photo, no description
@tomkindlon.bsky.socialSep 12, 2026, 3:57 PM

Therapy via Messaging

chroniclivingtherapy.com/insights-tex...

Screenshot from latest edition of the Chronic Living Therapy @chronicliving123.bsky.social email bulletin

#MEcfs #Spoonies #PwME #Spoonie #SevereME @lammasleaves.bsky.social

Therapy via Messaging
Severe and Very Severe patients with ME/CFS often experience huge cognitive issues, as well as photophobia and other sensory impairments. This can make using screens for hour-long video therapy sessions impossible. 

Using the written word for therapy provides a way to support some patients who are experiencing quite extreme health difficulties. Where appropriate, this can give people access to support they badly need but can access no other way. 

Pamela Phillips, one of our therapists (see above), has trained in delivering therapy via Messaging and writes about her experience, sharing her reflections and some key tips.

Read Insights into Text-based therapy

Image of somebody holding their mobile phone
@achronicvoice.comSep 12, 2026, 12:30 PM

"Eating a #LowHistamine #diet is tough, especially when eating out. There aren’t many recipe books with low #histamine #recipes, or even much recognition of the need for this kind of diet.": buff.ly/Ytu9esU

by @lowhistamine.bsky.social
#MCAS #ChronicIllness #HealthyEating #ChronicPain #spoonie

@spoonkie.bsky.socialSep 12, 2026, 11:37 AM

Couldn't even get outta bed yesterday felt like utter garbage. Spent half the day at the ER. They said they think it's a stomach bug

It's a hella of a bug I tell ya🫠
#stomachproblems #spoonie #louisiana

@achronicvoice.comSep 12, 2026, 4:30 AM

"Whilst I do agree that everyone has the #freedom to choose the qualities they want in a partner, I also think that #ghosting is an #impolite & cowardly thing..It’s so easy to hide behind a screen these days & not even prac being a decent #human being.": buff.ly/AFO3tZ8

#dating #disabled #spoonie

@chronicloaf.bsky.socialSep 12, 2026, 3:17 AM

A double feature of #BookClub (2018) and #BookClubTheNextChapter (2023) are playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#comedy #NEISvoid #insomnia #ForTinu #cannabiscommunity #ChronicPain #spoonie #FilmFriday #FilmDis #TellyTavern

Book Club movie posterBook Club The Next Chapter movie poster
@lightningduck.bsky.socialSep 12, 2026, 1:46 AM

Is there such a thing as having a high spoons appetite with low spoons motivation?

#Spoons #Spoonies #Spoonie #ChronicIllness #ChronicFatigue

@lightgrw.bsky.social @mal-pram.bsky.social

@chronicloaf.bsky.socialSep 12, 2026, 1:36 AM

#TheFabulousFour movie just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#comedy #FilmDis #FilmFriday #ForTinu #spoonie #cannabisculture #mecfs #chronicpain #longcovid #autism

The Fabulous Four movie poster