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Version devBuilt at: 2026-10-12 04:31:30 EDT

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@germainehypher.bsky.socialSep 29, 2026, 11:23 AM

The View From The River Bed popped into my mind while resting with my eyes shut for my usual number of 3-5 hours one afternoon. It is drawn with bronze & white gel pens, but the photo makes the bronze look orange.

#drawing #chronicillness #chronicpain #chronicfatigue #ME/CFS #mecfs #art ✍🏻 🐟 🐠 🛌

A drawing in metallic bronze gel pen (though the photo makes the bronze look orange) on black paper of a dull looking fish lying on a bed amongst rocks at the bottom of the page, with with the words: the view from the river bed. Swimming up towards the surface of the river, and swimming along with the flow of collaged blue water (torn from a magazine), and even leaping out of the water, are all kinds of patterned fish drawn in white gel pen.
@elzzadoll.bsky.socialSep 28, 2026, 2:07 AM

I found the BEST #chronicillness sweatshirt in Goodwill's Halloween section last week. And then ice-dyed over several stains.

"Being alive is exhausting." That's been my experience
#chronicfatigue #fibro #hEDS #perimenopause #audhd

A person's torso wearing a neon green crewneck sweatshirt, collar and hem band cut off, the sleeves and belly ice dyed darker shades of green to black, and a comic book style pin-up zombie girl yawning and stretching in her grave, with a speech bubble saying "BEING ALIVE IS EXHAUSTING. "The back of a person's torso wearing a neon green crewneck sweatshirt, collar and hem band cut off, ice dyed darker shades of green to black
@smartpatient.bsky.socialSep 27, 2026, 10:35 AM

Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie

@smartpatient.bsky.socialSep 27, 2026, 10:35 AM

Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie

@serenebutterfly.bsky.socialSep 25, 2026, 3:30 PM

"For me, the real F-word is Fatigue because it is my most formidable adversary – an intensely debilitating symptom that not only obliterates my energy but also the might to make my existing symptoms worse." www.brainlesionandme.com/fatigue-a-mo...

#ChronicIllness #ChronicFatigue #ChronicallyIll

@smartpatient.bsky.socialSep 25, 2026, 3:29 PM

Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie

@mgnews.bsky.socialSep 24, 2026, 11:15 PM

“My tired” isn’t solved by a nap 😅

#ChronicFatigue

@sacrifusion.comSep 24, 2026, 8:55 PM

I need a lot of energy to spare to venture out to explore the feeds of others on this platform

This is rarely the case for me

Otherwise I'm typically stuck in my own little corner of the #Void here, hoping others will chance upon me

#ND #ASD #AuDHD #Fatigue #ChronicFatigue #IntellectualLoneliness

@mavnn.bonfire.mavnn.eu.ap.brid.gySep 24, 2026, 9:56 AM

TL;DR: if you're consistently extremely low on energy, especially if exercise comes with mental 'fog' or delayed feelings of being drained, do **not** follow medical advice to gradually increase exercise to rebuild capacity until you've read up on #ChronicFatigue and #PEM (post-exertional […]

@mgnews.bsky.socialSep 23, 2026, 10:02 PM

Rethinking rest and rebuilding strength: https://bit.ly/4bOZKz8

#ChronicFatigue #InvisibleIllness #MyastheniaGravis #MyastheniaGravisNews #Bionews

@angioedemanews.bsky.socialSep 23, 2026, 2:03 PM

#HAE #SpoonieLife #ChronicIllness #FatigueIsReal #InvisibleIllness #ChronicWarrior #ShowCompassion #SpoonieSupport #BeKind #ChronicFatigue #BioNews #AngioedemaNews

@achronicvoice.comSep 23, 2026, 9:30 AM

"I have severe #fatigue all day..I don’t feel any better after sleep or..pampering like a massage. Long ago, I’ve come to #accept my situation. Most days I do my best to accomplish something, even if it’s just #blogging.": buff.ly/hylajT5

by ehrmanlisa1
#ChronicFatigue #pwME #ChronicIllness

@serenebutterfly.bsky.socialSep 23, 2026, 9:30 AM

"How do I maintain some independence without constantly pushing myself into a crash? How do I decide what deserves today’s limited supply of energy?" asmyjointsturn.com/2026/09/20/p...

#ChronicIllness #ChronicPain #ChronicFatigue #ChronicallyIll #NEISVoid

@cwengaard.bsky.socialSep 23, 2026, 5:15 AM

#chronicillness #invisibleillness #chronicpain #chronicfatigue #pain #fatigue #spoonie #Endometriosis #Adenomyosis #ME #CFS #Fibromyalgia #Sjøgren #youarenotalone 💖🙏

@fabulousphoenixboy.bsky.socialSep 22, 2026, 11:02 PM

feeling a lot of grief today

whatever this constant heaviness & lack of energy is

whether it's #ChronicFatigue or Long Covid or something else...

I didn't have it 10+yrs ago

I used to navigate a small cobbled town, sing in choir, sing/act/crew in plays despite being on & off crutches/in & out >

@alsnewstoday.bsky.socialSep 22, 2026, 8:30 PM

Post-rest can still feel exhausting when your body doesn’t recover the way it used to.

#ChronicFatigue

@mgnews.bsky.socialSep 22, 2026, 5:31 PM

A softer plan for bodies that shift: https://bit.ly/3ZELxh8

#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #ChronicFatigue

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