been lowkey annoyed at what a pharmacist said to me about #fibro.
he could’ve just said it wasn’t considered part of the list of “long term health problems.” he didn’t have to add another sentence of “that’s just general pain,” because it’s not.

[that is a rethorical q, obvs

what happened to that guy is one devastating trauma too many the year I got top surgery, and felt on top of the world, and like I was finally healing and everything was finally in the process of being okay

I remember being explained the link between trauma & #fibro, >

It only took 8 years and 4 applications for #disability benefits, but was okayed today to meet with an actual judge to review my case. I should feel good, as if it's progress, but if a judge denies benefits? I have no other recourse. Send positive vibes. Will share when a date is set. 😳
#Fibro

For Fibro and ME/CFS warriors, an appointment can take much more than the time spent in the doctor’s office. Travel, waiting, paperwork, explaining symptoms, and processing information can drain precious energy. Planning rest afterwards isn’t weakness. It’s part of caring for yourself💜 #Fibro #mecfs

The #fibro says I am not Allowed to exist today, so I guess no writing updates or games until I can breathe again x.x Augh.

Am I sad about missing the event, or am I sad about missing the version of me that would have had the energy to go? A profound question to ask when FOMO shows up. Sometimes it's the loss of the energy, freedom and spontaneity you are missing more than the event... #fibro #mecfs #chronicillness

I found the BEST #chronicillness sweatshirt in Goodwill's Halloween section last week. And then ice-dyed over several stains.

"Being alive is exhausting." That's been my experience
#chronicfatigue #fibro #hEDS #perimenopause #audhd

#fibro #chronicillness #rainydays

PEM is more than ordinary tiredness. With ME/CFS, physical, mental,or emotional effort can make symptoms worse, sometimes hours or days later. Pacing means respecting your energy limits, taking breaks before you reach your limit, and adjusting plans when your body needs more recovery.
#mecfs #fibro

Press release from Spain

"New pathways identified to reduce pain and depressive symptoms associated with fibromyalgia"
www.uab.cat/en/incuab/ne...

Open access paper
www.mdpi.com/2076-3921/15...

#Fibromyalgia #Fibro #FMS #FM

Your pain is real, even when it isn’t visible. Fibromyalgia and ME/CFS can bring widespread pain, tenderness, and exhaustion that affect everyday life. You deserve to be believed, supported, and given space to pace yourself. 💜

What helps you feel supported on difficult days?

#chronicpain #fibro

shivering cold and unable to lower my shoulders even tho i'm inside and the heat is on oh joy!'n!! #fibro things

Divergence requires healthcare privilege.

The overlap of #neurodivergence and non genetic immune disorders caused by unmitigated stress is significant. And seems to disproportionately affect a single demographic.

This seems sus, at best. Thoughts?

#nd #spoons #eds #longCOVID #mcas #fibro

As an aside: For my #fibro I have been prescribed 30mg codeine, tramadol and even OxyContin… I don’t want them because they make me sleepy. I control it with diet and exercise mostly, with occasional pain killers when I absolutely need them. If I had a broken arm, no problem. Headache? Here you go!

Literally me right now #painsomnia #migraine #fibro #mecfs

Sabe aquela dor que da vontade de sacar a perna esquerda e dar com ela na direita pra ver se passa? #fibro

Goodnight friends and bluesky 🦋💭✨
Just in too much pain to even function right now so just going back to bed.
tv isn’t even keeping my attention.

#chronicillness #nospoons #fibromaylgia #fibro #fibromaylgiawarrior #chronicallyill #health

"Each time I thought I was improving I would hit the rocks again. A lot of this was to do with #stress (which is lethal when you have #Fibro ) & resulted in me asking my #employer to dismiss me.": buff.ly/olfp2Nn

by @creativefibro.bsky.social
#working #ChronicIllness #fibromyalgia #career #NEisVoid

#FibromyalgiaAwareness #Fibro #FibroWarrior #FibroLife #FibroCommunity #ChronicIllness #ChronicIllnessAwareness #ChronicPain #ChronicPainWarrior #InvisibleIllness #InvisibleDisability #Disability #DisabilityAwareness #Disabled

#Fibromyalgia #FibromyalgiaAwareness #Fibro #FibroWarrior #FibroLife #FibroCommunity #ChronicIllness #ChronicIllnessAwareness #ChronicPain #ChronicPainWarrior #InvisibleIllness #InvisibleDisability #Disability #DisabilityAwareness #Disabled