In general, we need to think from the perspective of the respondent. Memorably, first question on one survey: Do you have #LongCOVID, #MECFS, "or" #POTS?
You could only choose one.
@exceedhergrasp1.bsky.social
@exceedhergrasp1.bsky.socialIn general, we need to think from the perspective of the respondent. Memorably, first question on one survey: Do you have #LongCOVID, #MECFS, "or" #POTS?
You could only choose one.
@hardknoxfirst.bsky.social"Brain Scans of 24 People With #LongCOVID Reveal Signs of Injury to Dopamine Neurons" (Science Alert) on SmartNews: l.smartnews.com/p-8CuTXPA4/P... #SmartNews
@hardknoxfirst.bsky.social"Study Finds Shared Cause of Chronic Fatigue" #MECFS #LongCOVID #PTSD #RA #MS on SmartNews: l.smartnews.com/p-8CuEE03C/B... #SmartNews
@lesserspottedh.bsky.socialVery interesting, but it’s a pity only 24 patients were studied.
And isn‘t it ever so depressing that #LongCovid manifests in so many diverse symptoms.😢
@longcovidnieuws.bsky.socialZelfs jaren na besmetting blijft situatie van veel postcovidpatiënten uitzichtloos
news.google.com/rss/articles/CBMiwgFBVV95cUxN…
#longcovid #longcovidnieuws
@johanvawe.bsky.social#ME/CVS #MCAS #LongCOVID on stage 👇🧪
vrtnws.be/p.3BxZ83e1J
@benking01.bsky.socialInteresting that pulling heavy weights on the lateral pull-down and working on the leg machines hardly raised my heartrate, nor did I used any more 'Moderate' movement minutes 🤔
And I'm reclining on the floor as much as I usually do (around half of my time at the gym).
@benking01.bsky.socialFirst treadmill run felt AMAZING - I could have continued for much longer, but I have #LongCovid #PEM to avoid 🙏
5 extra 'Moderate' movement minutes and 2 'Vigorous' minutes during my 3 minutes of actual running.
Before my LC Rehab course here at #NuffieldHealth I hadn't run since early childhood!
@benking01.bsky.socialPre-gym check-in with my #KiActiv movement data for the day so far:
35 minutes of 'Moderate' movement; so around 25 minutes remaining today.
I'll be making the most of my 5-minute treadmill runs at the start and end of my gym session, and I reckon I'll reduce my weight-training today 🙏
@dustcircle.bsky.social#BrainScans of 24 People With #LongCOVID Reveal Signs of Injury to #Dopamine #Neurons
@robotistry.fediscience.org.ap.brid.gyOnce again, frustrated by #LongCovid support apps.
After a month of worsening symptoms, I have finally managed to establish a baseline combination of exertion and targeted rest that enables me to sleep at night.
Once I have slept well for at least three nights in a row, sustaining improved […]
@covidactionscot.bsky.socialVery interesting article with a section about the deliberate failure to protect people from the ongoing Covid pandemic: #LongCovid
@longcovidnieuws.bsky.social9 op 10 patiënten met postcovid herstelt niet volledig
#longcovid #longcovidnieuws
@longcovidnieuws.bsky.socialSusanne E. Baars start als directeur bij PostCovid NL
https://www.postcovidnl.nl/nieuws/susanne-e-baars-start-als-directeur-bij-postcovidnl
#longcovid #longcovidnieuws
@chronicloaf.bsky.socialS1E1 of the #CreatureCommandos series is playing in the #ChronicLoaf stream
#Criptober #DCcomics #DCU #ForTinu #insomnia #spoonie #ChronicPain #longcovid #mecfs #spookyseason
@iballesty.mastodon.ie.ap.brid.gy#LongCovid #CFS This seems interesting. I'd love the opinion of an expert. Scientists may have found a “unifying theory” of chronic fatigue https://www.sciencedaily.com/releases/2026/09/260929053543.htm
@desiraemessenger.bsky.social#cfs/me #me/cfs #longcovid #healthcare
@amtgegengesundheit.bsky.socialLebensstiländerungen bringen medizinisch enorm viel. Wer Lungenkrebs hat, hört auf zu rauchen und gut ist. Wer #LongCovid hat, geht Sport machen und in die Reha - geheilt. @nzz.ch @tagesanzeiger.bsky.social @karenparker2016.bsky.social @unispitalzuerich.bsky.social
@halcionandon.bsky.socialI’d really like a chance at life.
I need a stable, safe environment. Without it, I will continue to decline & die.
#MutualAid #ChronicIllness #MyalgicEncephalomyelitis #MECFS #MCAS #POTS #EhlersDanlos #LongCovid #Endometriosis #ChronicPain #Dysautonomia