The media's collusion with those psychs and their acolytes ensured that people with a hellish illness were besmirched instead of supported. So thank you, George Monbiot,
again. #pwME

Great rant by George Monbiot about the fact despite new guidelines patients with ME are still poorly treated in the UK. Unfortunately it doesn't seem be much better elsewhere such as the Netherlands...

#pwme #myalgicE #millionsmissing #severeME #LongCovid #PAIS #IACI

George Monbiot has written an excellent article on the ongoing appalling gaslighting of ME patients. Please see below reposting. My 2008 novel The State of Me fictionalises my own diagnosis in eigties. I was fortunately seen by consultant neurologist Peter Behan who was researching ME. #pwME

Can't think of any other physical disease where sufferers are treated this way without it being a massive scandal. I'm lucky in that I have family, friends, and a GP who all understand my situation and support my need to pace, rather than try to push myself #MECFS #pwME

Important topic:
#longcovid #pwME #chronicillness #disability #NEISVoid #inquiry #MEcfs
#publicinquiry

@yvettecooper-mp.bsky.social
@andyburnham.bsky.social
@zackpolanski.bsky.social
@eddavey.libdems.org.uk
@tessamunt.bsky.social

Post exertional malaise is delayed by days when the illness starts. If it is not well managed (there is no cure or treatment) it gets worse; shorter interval on the delay, and higher intensity and range of symptoms.
200 recorded symptoms. No test. Your doctor will not know what to do. #pwME will.

Please read and share @georgemonbiot.bsky.social column about the ongoing mistreatment of people with ME. Can we break through the wall of indifference?

#MyalgicEncephalomyelitis #pwME

Please read and share @georgemonbiot.bsky.social column about the ongoing mistreatment of people with ME. Can we break through the wall of indifference?

#MyalgicEncephalomyelitis #pwME

Thank you so much, George! Your conclusion speaks volumes, reflecting so much that I hear from #pwME.

Thank you so much for writing in support of #pwME ! It’s sorely needed.

"Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed" - George Monbiot
#ME #pwME #MEcfs

www.theguardian.com/commentisfre...

The health news site "Sundhedspolitisk Tidsskrift" has an article about the short film; "Best Practice" on severe ME & conflicts with the authorities.

Google translation:
sundhedspolitisktidsskrift-dk.translate.goog/nyheder/helb...

Screenshot from Science for ME update

#MEcfs #PwME #CFS #SevereME

Ror Preston:

Whilst we know the average quality of life for ME/CFS patients is amongst the very worst for chronic diseases, I think in advocacy the true disaster that is severe / very severe ME has been significantly underplayed.

New @wecrunchme visual on this topic 💙

#SevereME #MEcfs #PwME

1/

2/
I have just read it will be recorded.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

On in 13 hours 43 minutes

5 pm Sydney today
7 pm NZ today

12 am midnight California tonight
8 am UK tomorrow morning
9 am Germany tomorrow morning

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@cgatist.bsky.social

Thank you @spichaksimon.bsky.social for this fantastic article highlighting the “bogus quackery” that continues to surface in this landscape.

And thank you to @thesicktimes.org for your part in making this happen.

#LongCOVID #PAIS #IACCIs #MEcfs #pwME

thesicktimes.org/2026/09/22/p...

Scientific Director Jaime Seltzer @exceedhergrasp1.bsky.social reporting live (virtually) from the NIH From Mechanisms to Medicine conference.

#pwME #MyalgicEncephalomyelitis #MECFS #LongCovid #ChronicIllness #NIH

I'm late posting today's #MorningView again. I recorded it first thing after a sleepless night, but then fell asleep before I managed to post it 😴💤

I hope your day is going well (with plenty of naps in it, if needed) ❤️🐌

#MECFS #pwME #Wales #CreativeHabit