"Many of us don’t really open up about such things [like #ChronicIllness ] as well, especially if there’s a #mental aspect to it, which still holds quite a bit of #stigma in most #Asian #societies.": buff.ly/f6ITgUV

#singapore #MentalHealthAwareness #culture #InvisibleIllness #inclusive #humanity

Well, the neurology techs today said it would take up to three weeks for a neurologist to thoroughly review the results of today's test. So, it’s hurry up and wait. 😕 I'm hopeful for good results. Aside from that, I'm exhausted, and my everything hurts. 😫
#chronicillness

Does Fibromyalgia Control Your Life? An Honest Reflection From a Fellow Warrior
substack.com/@chikocfm/no...

#fibromyalgia #mecfs #chronicillness

The Unfinished Symphony
fessupblog.substack.com/p/the-unfini... #depression #music #musician #chronicillness #chronicpain #cello #cellist #composer #life

So is it the brain fog that's got me over here tryna open my front door deadlock with my car fob clicker or do normal people do this too
#chronicillness #outofspoons

"10 weeks of #rehabilitation therapy became 2 years..for Smith..only to be told that, “despite yr Herculean effort..we deem you totally #disabled for.. #work for the rest of your life,” she recalls..the heartbreak of losing her #career.": buff.ly/DMzcFzS

via healthing_ca
#disability #ChronicIllness

Some days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.

#ChronicIllness #InvisibleIllness #Spoonie

If your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.

#ChronicIllness #PatientAdvocacy #Spoonie

Take a moment today to recognize your progress: https://bit.ly/4kUuC33

It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.

#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews

That's why I built HealthOS (Notion): 10 modules covering symptoms, meds, appointments, diet, mood and costs, all linked.

Rated 5 stars by 7 buyers. One-time, no subscription:
lakwaddivyendu.gumroad.com/l/HealthOS

Repost if someone needs this.

#ChronicIllness #Notion

I dropped a #new piece of #flashfiction today!
Give it a read and enjoy!

#amwriting #writingcommunity #chronicillness #fiction #flashfiction #authors #writersofbluesky #urbanfantasy

buymeacoffee.com/wordwitchlif...

The mental load of managing a chronic condition is exhausting on its own. Appointments, medications, insurance calls, symptom tracking. It's basically a part-time job nobody signed up for.

#ChronicIllness #MentalHealth #InvisibleIllness

Celebrating small victories today: got out of bed, took my meds on time, and managed a short walk. On a rough week, that's a win.

#ChronicIllness #SmallWins #Spoonie

“Never in my life did I think that taking a shower would actually be hard. It’s an exhausting activity that usually requires me to sit or lie down for a while afterward to recover.” Challenging Daily Decisions https://buff.ly/4d11C5j #PainAwarenessMonth #Disability #ChronicIllness

I have slept maybe an hour. This bronchial problem is kicking my ass. I'm pretty sure that I've just been hyperventilating until I pass out, instead of lying down and going to sleep. 😕

#ChronicIllness

How is a person with vertigo supposed to hop on one foot? #chronicillness

Active users rated a digital self-management Platform more positively than nonusers; reported benefits included time savings, accessibility, and greater patient autonomy. #SelfManagement #ChronicIllness #PrimaryCare doi.org/10.2196/38424