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@serenebutterfly.bsky.socialSep 25, 2026, 12:30 PM

"My chronic illness is just a facet in my many-faceted self. There’s an actual woman underneath all the diagnoses. I’ve survived enough bullshit to understand what really matters." medium.com/contemplate/... via @ellebecker.substack.com

#ChronicIllness #ChronicallyIll #NEISVoid #Dating

@serenebutterfly.bsky.socialSep 25, 2026, 11:00 AM

"The terrible irony is that this became one of the central questions of my life: When is a person #disabled enough to need help?" www.myseveralworlds.com/2026/08/25/c... via @myseveralworlds.com

#ChronicIllness #ChronicallyIll #Disability #NEISVoid

@darklunarlotus.bsky.socialSep 25, 2026, 5:00 AM

Getting cozy with Dreamlight tonight for the start of Halloween, unlocking Oogie Boogie n Zero 🎉

#vtuber #deathvtuber #lunarlotus #cozystoner #ghostie #chronicallyill

💚 kick.com/lunarlotus
💜 www.twitch.tv/darklunarlotus
❤️ www.youtube.com/@morelunarlo...

@unionizedcryptids.bsky.socialSep 24, 2026, 10:36 PM

i STRONGLY dislike how fast a medications effect can wear off, despite the fact that it took MONTHS for the effects to start working in the FIRST PLACE

#disabled #chronicallyill #medicated

@achronicvoice.comSep 24, 2026, 10:30 PM

"If u were to get a #UTI, u could go to your #PrimaryCare #doctor & get medication to treat it, but because my #bladder does not work properly, I don’t go to my primary care when I am having a bladder issue and go to a #urologist.": buff.ly/B20o8wH

by sarahlynn358
#ChronicallyIll #disability

@heidylouisa.bsky.socialSep 24, 2026, 3:55 PM

#medicaltrauma #nursinghomelife #bigfeelings #chronicallyill #wildernessera #prayforme #discipleship #skillednursing #JesusTakeTheWheel #GoWhereYoureCelebrated #ostomy #longtermcare #MissMovinOn #facilitylife #institutionalized #PTSDTRIGGER #chronicillness #IAmDisabled #faithinChrist

The Lord is able to provide us with a way to escape difficult circumstances; even ones of our own making!!!My time at the Sanctuary at Wilmington Place is coming to an end. I was informed on Friday, September 18th that the they feel that they can no longer meet my needs. Therefore I will be moving to CareCore at Mary Scott in the very near future. I have bonded with some really wonderful people at the Sanctuary who I will always consider family. I will miss them dearly, but just as the Lord directed my move to my soon to be former home in 2024 and His hand has been very evident throughout the past two years, I believe this move is His guidance and grace as well and I look forward to the next chapter of this wild journey. Please keep me in your prayers as I navigate this move while also navigating learning to cath again. Anyone who has ever had my address, please DM me for the new one!!!
@monadart.bsky.socialSep 24, 2026, 1:16 PM

This is me and my ME/CFS, first it was a horror to diagnose, now I simply have no support from the state as it's not on the recognized disease list for extra aid or to qualify for disability, I already have other 9 chronic diseases and no one cares.

#ME/CFS #disabled #autistic #chronicallyill

@serenebutterfly.bsky.socialSep 23, 2026, 5:01 PM

"The parts people don’t see. The parts I hide so I can try to be normal for a day, or because I don’t want my #disability to be all that I talk about." themighty.com/topic/degene...

#ChronicIllness #ChronicallyIll #InvisibleIllness #NEISVoid

@serenebutterfly.bsky.socialSep 23, 2026, 12:30 PM

"My relationship needs to be the safe space to share my fears and my suffering just as it is, knowing it might not change and having you say it’s ok if it doesn’t." itsmevox.substack.com/p/i-thought-...

#Disability #DisabledLife #ChronicallyIll #NEISVoid

@serenebutterfly.bsky.socialSep 23, 2026, 11:00 AM

"Developing your own illness-proof personal curriculum can provide a sense of purpose and fulfillment that supports your mental health." thehealthsessions.com/personal-cur...

#ChronicIllness #ChronicPain #ChronicallyIll #NEISVoid

@serenebutterfly.bsky.socialSep 23, 2026, 9:30 AM

"How do I maintain some independence without constantly pushing myself into a crash? How do I decide what deserves today’s limited supply of energy?" asmyjointsturn.com/2026/09/20/p...

#ChronicIllness #ChronicPain #ChronicFatigue #ChronicallyIll #NEISVoid

@achronicvoice.comSep 23, 2026, 3:30 AM

"Many frameworks place #compassion at the beginning. Be kinder, then things improve. For many #ChronicallyIll people, the sequence is reversed..When the system feels slightly more stable, #kindness has somewhere to land.": buff.ly/QnNXlBK

by @thethrivingspoonie.com
#stability #ChronicPain #pacing

@darklunarlotus.bsky.socialSep 23, 2026, 3:20 AM

idk what to do! hand cam rolllin joints to start 🤷‍♀️

#vtuber #deathvtuber #lunarlotus #cozystoner #ghostie #chronicallyill

💚 kick.com/lunarlotus
💜 www.twitch.tv/darklunarlotus

@darklunarlotus.bsky.socialSep 23, 2026, 1:28 AM

Letting tummy digest food before setting up for strim

thinking between a few game
Dead Cells/Windblown, MIO Memories In Orbit, or restarting OkamiHD(i have forgor how play)

#vtuber #deathvtuber #lunarlotus #cozystoner #ghostie #chronicallyill

@msnewstoday.bsky.socialSep 23, 2026, 12:30 AM

No one mentions how lonely it is to live in a body that seems to actively fight against you. #ChronicallyIll

@serenebutterfly.bsky.socialSep 22, 2026, 3:45 PM

"Sometimes my body gives me flashes of my old self, only to snatch them back. I never know which version of me I’ll wake up to." www.brainlesionandme.com/dynamic-disa...

#ChronicIllness #ChronicallyIll #DynamicDisability #NEISVoid

@serenebutterfly.bsky.socialSep 22, 2026, 2:12 PM

"Is my internalised ableism preventing me from accepting that I am disabled, or is it a mixture of denial, shock and grief for the body I once had?" www.vogue.co.uk/article/self...

#ChronicIllness #ChronicallyIll #Disability #NEISVoid

@serenebutterfly.bsky.socialSep 22, 2026, 12:30 PM

"Identity isn't something chronic illness took from you. It's something that's still updating." www.thethrivingspoonie.com/who-are-you-... via @thethrivingspoonie.com

#ChronicIllness #ChronicallyIll #NEISVoid #Identity

@serenebutterfly.bsky.socialSep 22, 2026, 11:01 AM

"To know that there is still #beauty in this world despite my #pain helps me to endure it with more #grace." achronicvoice.com/how-to-live-... via @achronicvoice.com

#ChronicIllness #ChronicPain #ChronicallyIll #NEISVoid #ChronicLife

@serenebutterfly.bsky.socialSep 22, 2026, 9:30 AM

"It can be surprisingly difficult to remember to take #medications and #supplements on a regular basis, especially if you take them by the boatload." invisiblyme.com/6-ways-remem...

#SpoonieHacks #ChronicIllness #ChronicPain #ChronicallyIll #NEISVoid #ChronicLife

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