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A Chronic Voice

@achronicvoice.com

2.6k Following3.2k Followers

I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people.

https://achronicvoice.com/

PostsRepliesMedia
@achronicvoice.comOct 11, 2026, 8:49 PM

Thanks for resharing 🌾

@achronicvoice.comOct 11, 2026, 8:30 PM

"I fancied myself competent at #SelfEducation, #skills development & execution. I taught myself welding, fabrication, machining, thermodynamics & aerodynamics with a library card..Of course, I thot I cld fix myself.": buff.ly/QpJY8R6

by @stillrollingoutdoors.com
#ChronicIllness #ChronicPain #denial

@achronicvoice.comOct 11, 2026, 7:30 PM

"This framing [of #resilience ] shifts the burden of #coping away from the system & onto the individual..This attitude perpetuates #stigma around #MentalHealth by creating a culture where #vulnerability is punished, not protected.": buff.ly/eAxo79u

via kevinmd
#disability #healthcare #MedicalSystem

@achronicvoice.comOct 11, 2026, 3:30 PM

"‘Pulsion’ simply means pushing, whilst ‘traction’ means pulling. Therefore, pulsion #diverticula push against the #esophageal wall, whereas traction diverticula are ‘sucked in’, which lead to the formation of indentations in [it].": buff.ly/DSSM6Hb

#esophagus #disability #EsophagealDiverticulum

Learn more about the rare disease, esophageal diverticulum, in the infographic
@achronicvoice.comOct 11, 2026, 2:30 PM

"I #mourn her.
I miss her.
I #love her.
But I cannot go back to her.
Perhaps in time she will stop walking ahead of me, just out of reach.
Perhaps she will walk beside me..No longer a phantom, but a #companion" (She is Me): buff.ly/G1zylTP

by @leighlouharper.bsky.social
#ChronicIllness #poem

@achronicvoice.comOct 11, 2026, 12:30 PM

"Because #helminths need to remain in the host to survive, they have found a way to dial down this #inflammatory, #parasite -fighting response and shift the host into a more regulatory state.": buff.ly/C283uzO

via YaleMed
#autoimmunity #rheumatology #MedSky #parasitic #immunology #ImmuneSystem

@achronicvoice.comOct 11, 2026, 10:30 AM

"I belong to that strange strain of #humanity that spends a lot of time #horizontal. By simply rotating down that 90-degree angle, life's possibilities flounder. I become flaky, distant, & unavailable.": buff.ly/POfTiZC

by @robinboardman.com
#NEisVoid #ChronicFatigue #pwME #ChronicIllness #spoonie

@achronicvoice.comOct 11, 2026, 9:30 AM

“Some #tasks I have to complete in a slightly different way to #accommodate my #disability, but I can still do these tasks independently. Never #assume that a #DisabledPerson cant do something without asking.”: buff.ly/VLO0Zyy

by Sarahlynn358
#mobility #disabled #ChronicIllness #DynamicDisabilities

@achronicvoice.comOct 11, 2026, 7:30 AM

"“I fought to bring the software legitimacy so that it — & those building it — would be given its due respect & thus I began to use the term ' #software #engineering '..When I first started using this phrase, it was considered to be quite amusing.": buff.ly/vViQax7

via @mit.edu
#MargaretHamilton

@achronicvoice.comOct 11, 2026, 6:30 AM

"Over time, many #caregivers find that the most effective #communication does not rely on finding the right words to say. Instead, it is a calm #presence & a steady willingness to meet yr loved one where they’re at": buff.ly/LNgyrcl

via @psyche.co
#dementia #support #carers #family #aging #brain

@achronicvoice.comOct 11, 2026, 4:30 AM

"When dealing with an #injury or #illness that results in #ChronicPain, it is easy to develop #toxic thinking without even being aware of it. #Emotions such as anger, frustration, and resentment are common. Stress, anxiety, and worry add to the mix.": buff.ly/OIb3riT

#ChronicPain #MentalHealth

The Chronic Pain Cycle and How to Break It (Top Tips From an Occupational Therapist)
@achronicvoice.comOct 11, 2026, 3:09 AM

buff.ly/gw4shFV

@achronicvoice.comOct 11, 2026, 1:30 AM

"Adicet also noted that there were no serious cases of #cytokine release syndrome or.. #neurological #SideEffects, both of which are concerns with #CellTherapy treatments..intends to start up a pivotal study in #lupus in the 4th quarter.": buff.ly/U0s5mT3

via @biopharmadive.com
#MedSky #immunology

@achronicvoice.comOct 10, 2026, 10:30 PM

"The #bacterium most responsible for the “wet rag” #smell is called Moraxella osloensis..the species tolerates drying & UV exposure unusually well..proof that #bacteria can indeed survive the #wash & start thriving in a wet [ #laundry ] load": buff.ly/xc5pCwR

via @theconversation.com
#chores

@achronicvoice.comOct 10, 2026, 9:37 PM

Thank you my friend 😊😊

@achronicvoice.comOct 10, 2026, 9:34 PM

@markdignam69.bsky.social Thanks for resharing 🥟

@achronicvoice.comOct 10, 2026, 9:33 PM

I think I'm trying to grasp it. By the time i figure it out i might be in the next phase of life though 🤣

@achronicvoice.comOct 10, 2026, 9:30 PM

"I’ve often been asked #ignorant #questions. I have a very expressive face so I have to work hard to keep that in check, but people make it very difficult to remain neutral sometimes.": buff.ly/fIFTt1L

Featuring: roysamuelgeorge
#communication #ChronicIllness #NEisVoid #disability #RareDisease

“It’s in My Blood”: Roy George — A Dramatic Life with a Short Bowel. Read on: A Chronic Voice .com
@achronicvoice.comOct 10, 2026, 8:30 PM

"I think #naming something u r #scared of can make it seem less #scary. When my #daughter was having lots of CT scans we called the scanner Duncan Doughnut & it made her feel better.": buff.ly/U5elMuN

by @RaisieBay.bsky.social
#ChronicPain #SelfConfidence #MentalHealth #disability #spoonie

@achronicvoice.comOct 10, 2026, 3:30 PM

"Many people also [clarified], as #medications that enable 1 to function cover a wider range than [ #PainMeds ]. 1 woman said that HRT..helps her #migraines, & sometimes it is anti- #anxiety meds or steroids you need instead.": buff.ly/6KPPByp

#PainManagement #ChronicIllness #ChronicPain #disabled

Tips and Tools to Help Regain Independence with a Disability or Chronic Illness. Read on: A Chronic Voice .com
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