Some days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@smartpatient.bsky.social
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@apainprincess.bsky.social“Being in pain 24/7 not only affects you physically, it also affects you emotionally and mentally… It’s hard to live with #ChronicPain, but it’s also hard to see someone you love in pain.” 7 Things We Should Know About Chronic Pain https://buff.ly/RRg8qFM #NeurologicalLyme #CRPS #InvisibleIllness
@angioedemanews.bsky.socialAntihistamines don’t always keep these symptoms in check, so new options matter.
#HAE #HereditaryAngioedema #ChronicSpontaneousUrticaria #Angioedema #Hives #Urticaria #ClinicalTrials #HAEAwareness #RareDisease #ChronicIllnessCommunity #InvisibleIllness #PatientAdvocacy #BioNews #AngioedemaNews
@thesilentspin.bsky.socialThe room starts spinning… but nobody else can see it!!
❤️Comment “SEEN” if this feels familiar.
#Vertigo #LivingWithVertigo #VertigoAwareness #Dizziness #ChronicIllness #InvisibleIllness #InvisibleDisability #ChronicIllnessAwareness #Dizzy #YouAreNotAlone #HealthAwareness #RealLife #DailyStruggles
@apainprincess.bsky.social“I tend to put pressure on myself to ‘power through’ pain to prove that I am capable: But powering through pain can cause more harm than good, and it is okay to not ‘power through’!” Why Do I Pretend To Be Well? #ChronicPain #InvisibleIllness
@mgnews.bsky.socialNavigating MG unpredictability: https://bit.ly/4rV3bJA
#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness
@painassocscotland.bsky.socialPeople living with chronic pain may look well, but that doesn’t mean they feel well.
Pain isn’t always visible. Watch our Understanding Pain video to learn more:
bit.ly/48ESlAy
#ThoughtfulTuesday #ChronicPain #SelfManagement #InvisibleIllness
@unveilingunicorns.bsky.socialWhen your immune cells overreact to everyday life 🩵 MCAS: mast cells overreact to everyday things — flushing, hives, digestive trouble, fatigue. Invisible but real. Follow 🦄 #MCASAwareness #InvisibleIllness 🤖 AI-assisted; do your own research
@mgnews.bsky.socialYou are stronger than you think and capable of more than you know. #InvisibleIllness
@mgnews.bsky.socialA calmer next step begins with releasing expectations: https://bit.ly/4q11NUt
#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior #Mindful #Hope
@cwengaard.bsky.socialIt’s about time doctors educate themselves 😡😡😡
#Endometriosis #Adenomyosis #pain #fatigue #chronicillness #invisibleillness
@thesilentspin.bsky.socialVertigo hitting in public is terrifying. The room spins, balance feels impossible, and explaining an invisible condition is the hardest part. Stopping, grounding, and breathing slowly can create space without apology when the world starts swaying. You are not alone. #vertigo #invisibleillness
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@achronicvoice.com"If you view the world around you through #empathetic & observant eyes, you will notice how many stories there are waiting to be told, both happy and sad..A little more #kindness, #thoughtfulness & willingness can go a long way.": buff.ly/3edF31G
@angioedemanews.bsky.social
@grumpyhobbit.bsky.socialThis. Retweeting to amplify. #ChronicIllness #InvisibleIllness
@smartpatient.bsky.socialThe worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.
@chikocfm.bsky.socialChronic illness can change your routines, relationships and independence. Missing your old life doesn’t mean you’re ungrateful for the life you have now. It means you’re acknowledging what has changed. Your feelings deserve space💜
#Fibromyalgia #MECFS #ChronicIllness #ChronicPain #InvisibleIllness
@unveilingunicorns.bsky.socialPOTS (postural orthostatic tachycardia syndrome-form of dysautonomia. Heart rate climbs when standing. Dizzy, fainting, brain fog & fatigue are reported. AI assisted; do your own research.
#UnveilingUnicorns #InvisibleIllness #Spoonie #POTSAwareness #Dysautonomia #ChronicIllness #ButYouDontLookSick
@mgnews.bsky.socialA tiny spark of strength deserves recognition, no matter how small: https://bit.ly/4hLgGYt
#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior