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@kingtiger.bsky.socialOct 10, 2026, 2:36 AM

fri nite SHAW

BanShi is playing Silksong! LIVE NOW on Twitch

twitch.tv/felineroyalt...

#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness

#FelineRoyalty #cozy #disabled #LGBTQIAPlus

@rarectadvocate.comOct 9, 2026, 2:00 PM

Hereditary Spastic Paraplegia (HSP) is a group of rare inherited disorders where long nerve fibers to the legs slowly degenerate, causing progressive leg stiffness, weakness, & trouble walking.

Learn more: sp-foundation.org

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Hereditary Spastic Paraplegia (HSP), a group of rare inherited disorders in which the nerve fibers that carry movement signals to the legs slowly degenerate. The card notes that more than 80 genes have been linked to the condition and that the most common type, SPG4, is caused by variants in the SPAST gene. Key symptoms include progressive leg stiffness, weakness, and bladder urgency. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@rarectadvocate.comOct 8, 2026, 2:00 PM

GM3 synthase deficiency is a rare inherited disorder that stops the body from making a fat the brain needs, causing severe infant epilepsy, hearing and vision loss, and developmental delays

Learn more https://www.cdgcare.org

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for GM3 Synthase Deficiency, a rare inherited disorder in which the body cannot make GM3, a fatty molecule the brain needs. The card notes that the condition is caused by variants in the ST3GAL5 gene and affects about 1 in 1,200 births among the Old Order Amish. Key symptoms include infant-onset seizures, hearing and vision loss, and severe developmental delays. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@kingtiger.bsky.socialOct 8, 2026, 4:05 AM

break it down

We need a chill night so we're playing more Ship Graveyard Sim 2! LIVE NOW on Twitch w/ @queencheetah.bsky.social

twitch.tv/felineroyalt...

#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness

#FelineRoyalty #cozy #disabled #LGBTQIAPlus

@rarectadvocate.comOct 7, 2026, 2:00 PM

Hyperprolinemia Type II is a rare inherited disorder where the body can't break down proline. A toxic byproduct inactivates vitamin B6, which can trigger seizures in childhood.

Learn more: https://dub.sh/HP-II

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Hyperprolinemia Type II, a rare inherited metabolic disorder in which the body cannot fully break down the amino acid proline. The card notes that a toxic byproduct called P5C builds up and inactivates vitamin B6, and that blood proline levels can run 10 to 15 times higher than normal. Key symptoms include childhood seizures, often triggered by infection. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@angioedemanews.bsky.socialOct 6, 2026, 2:02 PM

#HAE #HereditaryAngioedema #LifeWithHAE #HAEAwareness #ChronicIllness #HaeCommunity #HaeWarrior #RareDiseaseAwareness #LivingRare #PatientEducation #ChronicCondition #SelfAdvocacy #InvisibleIllness #RareDiseaseCommunity #BioNews #AngioedemaNews

@rarectadvocate.comOct 6, 2026, 2:00 PM

Carnitine Palmitoyltransferase II (CPT II) Deficiency is a disorder that stops the body from burning long-chain fats for energy, causing muscle breakdown during exercise or illness.

Learn more: https://www.fodsupport.org

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Carnitine Palmitoyltransferase II (CPT II) Deficiency, an inherited disorder in which the body cannot burn long-chain fats for energy. The card notes that the milder myopathic form is the most common and that attacks are triggered by exercise, fasting, or illness. Key symptoms include muscle pain, rhabdomyolysis with dark urine, and kidney injury. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@rarectadvocate.comOct 5, 2026, 2:00 PM

Spastic Tetraplegia, Thin Corpus Callosum, and Progressive Microcephaly (SPATCCM) is an inherited neurodevelopmental disorder caused by changes in the SLC1A4 gene.

Learn more: https://dub.sh/SPATCCM

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Spastic Tetraplegia, Thin Corpus Callosum, and Progressive Microcephaly (SPATCCM), an ultra-rare brain disorder caused by changes in the SLC1A4 gene, which supplies the brain with serine. The card notes that fewer than 1 in 1,000,000 people are affected and that it was first described in 2015. Key symptoms include slowing head growth after birth, stiffness in all four limbs, and seizures. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@rarectadvocate.comOct 4, 2026, 2:00 PM

Sorsby Fundus Dystrophy is a rare inherited retinal disease caused by TIMP3 mutations. It resembles macular degeneration but typically starts decades earlier, in a person's 30s to 50s.

Learn more: https://dub.sh/sorsby

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Sorsby Fundus Dystrophy, a rare inherited retinal disease caused by mutations in the TIMP3 gene that leads to abnormal blood vessel growth beneath the retina. The card notes that symptoms often begin in a person's 30s to 50s and that anti-VEGF injections can help preserve vision. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@rarectadvocate.comOct 3, 2026, 2:00 PM

Pyoderma Gangrenosum is a rare skin disorder causing painful ulcers that are not caused by infection. About half of cases occur alongside inflammatory bowel disease or arthritis.

Learn more: https://www.allthingspg.org

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Pyoderma Gangrenosum, a rare inflammatory skin disorder that causes small red bumps to erode into painful, rapidly expanding open sores. The card notes that about half of cases occur alongside another condition such as inflammatory bowel disease, and that treatment often includes corticosteroids or biologic medications. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@kingtiger.bsky.socialOct 3, 2026, 3:40 AM

hide

The three of us are playing Meccha Chameleon! LIVE NOW on Twitch w/ @queencheetah.bsky.social

twitch.tv/felineroyalt...

#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness

#FelineRoyalty #cozy #disabled #LGBTQIAPlus

@angioedemanews.bsky.socialOct 2, 2026, 2:02 PM

#HAE #HereditaryAngioedema #HaeAwareness #DiagnosisJourney #ChronicIllness #PatientStory #RareDisease #AngioedemaNews #Misdiagnosed #HAECommunity #RareDiseaseAwareness #HAEStrong #InvisibleIllness #BioNews #AngioedemaNews

@rarectadvocate.comOct 2, 2026, 2:00 PM

Anti-GBM Disease (Goodpasture Syndrome) is a rare autoimmune disease where antibodies attack the kidneys and lungs, causing rapid kidney damage and lung bleeding within days to weeks.

Learn more: https://dub.sh/anti-gbm

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Anti-GBM Disease, also known as Goodpasture Syndrome, a rare autoimmune disease in which antibodies attack small blood vessels in the kidneys and lungs. The card notes that it affects about 2 people per million worldwide and that the lungs are involved in about half of patients. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@rarectadvocate.comOct 1, 2026, 2:00 PM

Peutz-Jeghers Syndrome is a rare inherited condition causing gastrointestinal polyps, distinctive dark spots around the mouth, and a lifetime cancer risk of roughly 83 percent by age 70.

Learn more: https://dub.sh/peutz

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Peutz-Jeghers Syndrome, an inherited condition caused by STK11 gene mutations that leads to gastrointestinal polyps, characteristic dark spots around the mouth and on the hands, and a substantially elevated lifetime cancer risk. The card notes that overall cancer risk reaches about 83 percent by age 70. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@kingtiger.bsky.socialOct 1, 2026, 2:23 AM

break something

We're playing Ship Graveyard Simulator 2! LIVE NOW on Twitch w/ @queencheetah.bsky.social

twitch.tv/felineroyalt...

#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness

#FelineRoyalty #cozy #disabled #LGBTQIAPlus

@angioedemanews.bsky.socialSep 30, 2026, 2:06 PM

#HAE #HereditaryAngioedema #RareDisease #HumanSideOfRare #RareDiseaseAwareness #HAEAwareness #ChronicIllness #PatientAdvocacy #RareCommunity #HAEForum #BioNews #AngioedemaNews

@rarectadvocate.comSep 30, 2026, 2:00 PM

Idiopathic Subglottic Stenosis (iSGS) is a rare airway disease in which unexplained scarring narrows the windpipe below the vocal cords, mostly in women. It is often mistaken for asthma.

Learn more: https://dub.sh/SGS1

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Idiopathic Subglottic Stenosis, or iSGS, a rare disease in which unexplained inflammation and scarring narrow the windpipe just below the vocal cords. The card notes that about 98 percent of patients are women, that noisy breathing is often mistaken for asthma, and that treatments range from endoscopic dilation to open airway surgery. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@kingtiger.bsky.socialSep 30, 2026, 3:22 AM

bonk

KingTiger is playing Ballionaire! LIVE NOW on Twitch

twitch.tv/felineroyalt...

#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness

#FelineRoyalty #cozy #disabled #LGBTQIAPlus

@rarectadvocate.comSep 29, 2026, 2:00 PM

Balamuthia Infection is a rare, often fatal brain infection caused by a free-living ameba in soil, dust, and water. Early signs can include slow-healing skin wounds, fever, and headache.

Learn more: https://dub.sh/BALA

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Balamuthia Infection, also called granulomatous amebic encephalitis, a rare and serious brain infection caused by a free-living ameba found in soil, dust, and water. The card notes that about 9 out of 10 people with the disease do not survive, and that early signs can include slow-healing skin wounds, fever, and headache. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@rarectadvocate.comSep 28, 2026, 10:21 PM

I am excited to be an Exhibitor at Rare New England's 2026 Annual Conference, Advancing Rate Together! 💙 Turning Rare Disease Experience Into Advocacy

Learn more: https://www.rarenewengland.org/

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

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