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@benking01.bsky.socialSep 8, 2026, 7:24 PM

My first Tuesday off-work of the new academic year was mostly focused on my Health 🙏

Ending the day with an early night, having used fewer than 5 of my daily 22 #VisibleHealth pace points.

More busy school days ahead.

#LongCovid #Pacing to avoid #PEM

Pacepoints summary and pacing graph for today. 4.9 out of 22 pace points used
@benking01.bsky.socialSep 7, 2026, 6:25 PM

Arrived at my rehearsal.

Just over my daily 'Moderate Movement' budget of 60 minutes. And an enormous (for me) 4 hours of 'Light' movement. So I stay seated for the next couple of hours 🙏

Day off tomorrow and plenty of REST is in order.

#Pacing where possible.

#LongCovid

KiActiv movement graphs
@benking01.bsky.socialSep 7, 2026, 4:43 PM

Lunchtime duty pacing the corridors really hit me hard.

#Pacing is difficult!

8 hours on the go - And it would have been 10 hours if I hadn't started late this Monday morning!

No muscle weakness, but feet have been getting 'heavy' and 'full' during all of this exertion 👇

#LongCovid #Teacher

Heartrate graph from 09:30 to 17:30 showing lots of Exertion and no Resting heartrates
@benking01.bsky.socialSep 7, 2026, 8:27 AM

Carefully #pacing as I know what's coming later today 😄

Avoiding overexertion and the #LongCovid Post-Exertional Symptoms that are so debilitating 🙏

Visible Health heartrate below 100bpm. Resting pace when reclined on sofa 08:10 to 08:39 and when sitting in car for 15 minutes on arrival at work early.
@tomkindlon.bsky.socialSep 6, 2026, 5:31 PM

3/

“rest is rarely respected as the critical & often sole medical intervention it is. For this reason, even those who mean us no harm may actively encourage us to push through dangerous symptoms, believing our mindset to be, at least in part, playing a role.”

#MEcfs #LongCovid #Pacing #PwME #CFS

On top of this, because conditions like long COVID, ME and dysautonomia, if they are even known to people, are widely misperceived as a bit of non-serious dizziness or tiredness, rest is rarely respected as the critical and often sole medical intervention it is. For this reason, even those who mean us no harm may actively encourage us to push through dangerous symptoms, believing our mindset to be, at least in part, playing a role.
@obol-the-ponderer.bsky.socialSep 6, 2026, 4:45 PM

ON PERCEIVED TIME

Does the current hour feel like it is dragging, or rushing past you?

Put the phone face down. Count to sixty without a clock, and see how your internal rhythm aligns.

#TimePerception #Pacing

@mdmsel.bsky.socialSep 6, 2026, 12:42 PM

Ganz wichtig: Brain retrain hilft nicht bei #MECFS, es ist nur eine andere Art von #CBT kognitiver Verhaltenstherapie.
Keinem hilft es, nicht mehr auf seine Symptome zu hören, das Gegenteil ist der Fall. Da es keine Therapie gibt, muss ein #MECFS Patient #Pacing betreiben. /5

@benking01.bsky.socialSep 6, 2026, 11:00 AM

Being as careful as ever and reclining on the floor on a mat between exercises.

And recovering very quickly as a result 👇

#Pacing to avoid overexertion and the post-exertional malaise and 'heavy' muscles associated with my #LongCovid

#PEM

Heartrate graph rarely reaching exertion and falling to resting pace when I recline
@benking01.bsky.socialSep 6, 2026, 10:27 AM

The SOEMAC trial is coming to an end for me this week. Looking forward to hearing all about it - and hoping that mine was a #placebo device 🙂

Got to the gym and #running for 3 whole minutes felt so very easy and 'natural' for me; I could have kept running for ages 😔 But #Pacing to avoid #PEM 🙏

Visible Health heartrate graph. Mostly resting HR this morning but up over 130bpm during my 3-minute run.
@benking01.bsky.socialSep 6, 2026, 5:12 AM

...And it took me 10 days to fully regain my body's Stability, Readiness and Nervous System Balance.

Good timing, as tomorrow is my first #teaching day since July.

Confident that I can finally return to the gym today 🙂

#LongCovid #Pacing to avoid #PostExertionalSymptomExacerbation #PEM

@rcatanho.bsky.socialSep 5, 2026, 9:38 AM

En pac c/IC y bloqueo rama izq haz de His, terapia de resincronización cardíaca c/marcapaso en sist de conducción es no inferior a marcapaso biventricular reduciendo vol VI de fin de sístole y mejora FEVI, QRS, sínt IC y capacidad funcional #pacing #HFrEF www.jacc.org/doi/10.1016/... l

@benking01.bsky.socialSep 3, 2026, 7:07 AM

Pausing and RESTING even though I need to get to work.

I'll be adjusting my wake-up times to accommodate my need for more #micropacing as the Autumn Term begins 🙏

Visible making it Visible 👇

#Pacing to avoid overexertion and the debilitating #PEM associated with my #LongCovid