🧡 Vitória is 13. She lives with Long Covid and wants to learn.
Her story, reported by Portuguese news agency @lusa.pt describes years of debilitating symptoms, numerous medical appointments and the struggle to have her health needs recognised.
To drive meaningful action on public health planning and preparedness, so children are better considered and protected in future.
Children deserved better then. They deserve better now. 🧡
Please 🙏 watch and share, give the film the attention it deserves.
❌What happened was wrong.❌
Participating in the @ukcovid-19inquiry.bsky.social has meant revisiting experiences that remain painful.
With the M8 report on children & young people expected in 2027, every bone in my body wants its recommendations to matter.
👀 this 🎥 again, 6 yrs on, brings back so much.
Children living with #LongCovid were too often overlooked & disbelieved. The consequences are still felt today, new infections continue.
We cannot give back lost childhood years, but we can learn, act & do better.
Wanted: children to rear harvest mice at home for wild release in Devon
Kids housebound or bedbound with Long COVID created superheroes inspired by their experiences with chronic illness and disability. Their heroes find strength in resting, asking for help and compassion. The characters now feature in a 72-page full-colour comic, Long Covid Superheroes.
The current #COVID strain IS MORE transmissible.
Please take steps to reduce risk of infection and transmission.
Avoiding COVID is the only way to reduce risk of #LongCovid - which can be a result of any infection, of any level of severity.
Her words are so powerful. They get me very time I hear them.
A good reminder for all of society to take prompt action.
Advocate for, and supoort, children and young people will prolonged, fluctuating, energy limiting conditions.
#LongCovidKids 🧡
In this video, children and young people with lived experience of Long Covid share how the illness affects their everyday lives, helping others understand what it can feel like to live with Long Covid.
Thank you so much. ☺️ excited for our work to be recognised.
Thank you.
Thank you 🙏
Thank you 🙏
It feels very special to have the work we do at LCK recognised in this way.
What started in 2020 with families coming together to make sure children
& young people with LC were seen & heard has become something I could never have imagined at the time.
#WomenOfTheYear #WOY2026 #CelebratingWomen
“Look beyond absence. See the child living with Long Covid.”
We’re really pleased to share that Long Covid Kids & Friends is featured by the National Attendance Portal.
#LongCovidKids #LongCovid #SchoolAttendance #InclusiveEducation #ChildHealth #MedicalNeeds
For those too unwell to read the full paper or thread, here is short animation to show what happened in the ERASE-LC trial which tested the drug Remdesivir with people who have long Covid
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed.
@georgemonbiot.bsky.social
Congratulations to all involved. Thank you for working with lived experience partners to ensure this study took the upmost care of participants.
