@cleverlychanging.bsky.socialThe book educates readers from start to finish using word searches, crossword puzzles, secret codes, writing prompts, and more.
Ready to get your copy? Shop now on Amazon: www.amzn.to/47dAiQE
#SickleCellAwareness #SickleCell #SickleCellBooks #SickleCellDisease
@wileyhealth.bsky.socialA study from the American Journal of Hematology reveals that blood levels of hydroxyurea - the most commonly prescribed disease-modifying treatment in #SickleCellDisease - were undetectable in the majority of patients 🩸
@ashclinicalnews.bsky.social dives into the findings: https://bit.ly/4yItqqK
@cleverlychanging.bsky.socialHolding books I created to help children and families better understand sickle cell disease reminds me: education crosses borders, and advocacy crosses oceans.
Visit www.cleverlychanging.com/shop to get a copy of my books.
@pecarn.bsky.social🚨 New PECARN Study Alert! 🚨
The PECARN STArT trial asked an important question: Could IV arginine help children and young adults with sickle cell disease recover faster from acute pain episodes?
@radeep.bsky.socialThank you to all national coordinators, data managers and centres who make this possible! 🤝
Being a network is what makes RADeep work!
#RareAnaemias #SickleCellDisease #RealWorldEvidence #EHDS
@erneurobloodnet.bsky.social
@hematologyadvisor.bsky.socialThe phase 3 STArT trial in @jama.com show IV arginine does not shorten time to crisis resolution for youth with #SickleCellDisease acute pain
Median time to crisis resolution was 60.8 hours with arginine vs. 65.8 hours with placebo
Read the article here:
🔗 https://bit.ly/3TImb2v
@sritransfusion.bsky.social🩸September was #SickleCellAwareness month and also saw the publication of our updated overview of #systematicreviews, looking at red cell #transfusion interventions in #sicklecelldisease, and led by Professor Lise Estcourt.
@liseestcourt.bsky.social @thrinaline.bsky.social
#MedSky
@fedexeca.bsky.socialSeptember is Sickle Cell Awareness Month. Living with Sickle Cell disease means managing constant fatigue, low energy, and severe pain attacks caused by stiff blood cells blocking small vessels. Awareness changes the way we see people. #SickleCellDisease #HealthAwareness
@pematchop.bsky.socialAs #SickleCellAwarenessMonth closes, we’re excited by advances in gene therapy, stem cell transplant & emerging approaches like CAR-T. We hope continued funding, research & innovation bring more treatment options and better outcomes for people with #SickleCellDisease.
@pecarn.bsky.socialDoes IV arginine make a difference when it come to #pain crisis in patients with #SickleCellDisease? This recent PECARN trial in @JAMAnetwork sought to evaluate that question.
@cleverlychanging.bsky.socialI’m honored to be in the room, listening, learning, and helping ensure our community remains part of the conversation.
#SickleCellDisease #SickleCellAwareness #HealthEquity #PatientAdvocacy #CongressionalBriefing
@4040rec.bsky.social
@swhr.bsky.socialSeptember is #SickleCellAwarenessMonth. #SickleCellDisease is a #RareDisease impacting 100K people in the US. Read SWHR’s blog to learn about rare disease research and hear working group member Maia Lang share her experience with sickle cell disease: https://ow.ly/g41V50ZOuzn. #SWHRtalksRareDisease
@sritransfusion.bsky.social🔗Links to:
🔷Interventions for chronic kidney disease in people with #sicklecelldisease
www.cochranelibrary.com/cdsr/doi/10....
🔷Interventions for improving adherence to iron chelation therapy in people with #sicklecell disease or #thalassaemia
www.cochranelibrary.com/cdsr/doi/10....
@hopelabstl.bsky.socialSeptember is #Sicklecellawarenessmonth 🩸 This month, we recognize people living with sickle cell disease, their families, healthcare teams, and researchers working toward better treatments and cures.
Swipe to learn more!
#sicklecelldisease #healthequity #washumedicine
@fedexeca.bsky.socialSeptember is Sickle Cell Awareness Month. Those with Sickle Cell experience pain as their restricted blood flow struggles to carry oxygen. A little empathy goes a long way for this invisible illness! Join us as we wear red on Wednesdays to help raise awareness! #SickleCellDisease #HealthAwareness
@familyvoicesal.bsky.social"September is National Sickle Cell Awareness Month, designated by Congress to help focus attention on the need for research and treatment of sickle cell disease."
@thenotsocommongal.com#SickleCellAwareness #SickleCellMonth #TheNotSoCommonGal #TNSCG #BlackWomensHealth #WomensHealth #ChronicIllnessAwareness #RepresentationMatters #EmpowerHer #SickleCellDisease #HealthEquity #AmplifyHer
@caffeinehusky.bsky.socialAdd to #Booksky #SickleCellDisease
@jhospmedicine.bsky.socialBias in medicine has consequences. Sickle cell patients deserve to be heard, believed, respected, and treated without bias.
Read More: https://doi.org/10.1002/jhm.12800
✍️: Julia E. LaMotte PhD
🖼️: #VisualAbstract: Shaheen Fatima
