Before #SickleCellAwarenessMonth draws to a close, we’re sharing some key facts from the Sickle Cell Disease Association of America, Inc. ...

Before #SickleCellAwarenessMonth draws to a close, we’re sharing some key facts from the Sickle Cell Disease Association of America, Inc. ...
As #SickleCellAwarenessMonth closes, we’re excited by advances in gene therapy, stem cell transplant & emerging approaches like CAR-T. We hope continued funding, research & innovation bring more treatment options and better outcomes for people with #SickleCellDisease.
🩸 Just 3% of current blood donors are of Black heritage, yet Black heritage donors are more likely to have the Ro blood type needed by many people living with sickle cell.
This #SickleCellAwarenessMonth, could you become a donor?
🩸 For Portia, donated blood means more time feeling healthy and spending time with her family.
This #SickleCellAwarenessMonth, we’re highlighting the difference blood donors can make to people living with sickle cell.
Could you become a donor?
September is #SickleCellAwarenessMonth, and it remains important that we raise awareness, promote research, and stay educated on sickle cell disease. To learn more, visit: sicklecelldisease.org
Every share, conversation, and donation can make a difference. #StJudeAmbassador Red lips, bold purpose. 💄
#KissSickleCellGoodbye #SickleCellAwarenessMonth #SickleCellAwareness #StJude
🧡 Knowing your status matters.
Taiwo lives with sickle cell disorder, while her twin sister does not – despite both parents having sickle cell trait.
This #SickleCellAwarenessMonth, know your status and make informed choices about your health and future.
#SickleCell #SickleCellTrait #KnowYourStatus
This #SickleCellAwarenessMonth UHF highlights one of our Health Equity Fellows who is tackling disparities faced by sickle cell patients with a new yoga and mindfulness program in Brooklyn.
Read more about the project here: uhfnyc.org/news/article...
Living with #SickleCell Disease?
#PalliativeCare is key.
Learn more --> https://getpalliativecare.org/living-well-with-sickle-cell-disease-palliative-care-is-key/
Teachers, support staff and educators are invited to an NHS England webinar on 29 September on new school resources for sickle cell. Join to find out more, explore the resources and ask questions. Register for the webinar here: buff.ly/RXbla1j. #SickleCellAwarenessMonth
September is National Sickle Cell Awareness Month.
Laboratory testing plays a critical role in distinguishing sickle cell disease from sickle cell trait, a distinction that can have lifelong implications for patients and families.
September is #SickleCellAwarenessMonth. #SickleCellDisease is a #RareDisease impacting 100K people in the US. Read SWHR’s blog to learn about rare disease research and hear working group member Maia Lang share her experience with sickle cell disease: https://ow.ly/g41V50ZOuzn. #SWHRtalksRareDisease
For our next #IntheSpotlight interview, we caught up with Elfy Chiang, a scientific illustrator who worked with Linda & Louisa to create an animation of Louisa’s story!
Read the full interview 👉️ buff.ly/SPutWPa
#sicklecellawarenessmonth❤️
🩸In honour of #SickleCellAwarenessMonth this September, we are proud to highlight our latest two #systematicreviews in the field.
🔗See links for these two articles in the comments
🧡This #SickleCellAwarenessMonth, we’re shining a light on our Youth Mentoring Programme. With 300+ referrals, the programme has grown beyond London to Liverpool, Manchester & Sheffield, connecting young people with mentors who understand. Find out more: buff.ly/XEzQ83Q
#YoungVoicesRising #SickleCell
This #SickleCellAwarenessMonth, we encourage researchers and funders to use the Sickle Cell Genomics PSP priorities to shape future research.
🌟Identified by people with lived and professional experience, they highlight the questions that matter most.
Explore the priorities: buff.ly/73u6TYb
September is #Sicklecellawarenessmonth 🩸 This month, we recognize people living with sickle cell disease, their families, healthcare teams, and researchers working toward better treatments and cures.
Swipe to learn more!
#sicklecelldisease #healthequity #washumedicine
This #SickleCellAwarenessMonth, we’re highlighting what matters every day: #listening to patients and families. Read why #communication and #partnership are essential to better care.
🔗: https://doi.org/10.1002/jhm.13239
✍️: Tarun Aurora MD
🖼️: #VisualAbstract: Shaheen Fatima
#JHM #SHM
This #SickleCellAwarenessMonth, we’re working towards a better future for young voices. 🧡
The Sickle Cell APPG is up and running again, bringing our community together to continue important conversations and drive change.
📢 Call for Evidence closes 30 September. Swipe for details.
#SickleCellAPPG
Sickle cell pain is real and timely treatment matters.
This #SickleCellAwarenessMonth, read this article to learn 8 key recommendations that can improve sickle cell pain care.
🔗: https://doi.org/10.12788/jhm.3556
✍️: Charles D Pham MD, Duong T Hua MD
🖼️: #VisualAbstract: Shaheen Fatima