@cincyresearch.bsky.socialA Cincinnati Children's led study, recently published in The Lancet Haematology, found that long-term data from the REACH trial show hydroxyurea safely treats children with #sicklecell anemia in Africa without increasing the risk of serious infections, expanding access to care.
@inviswarriorscd.bsky.socialOur pipetting practical is always a hit and a super fun way to experience what working in a lab is like 🧪🔬🧫
@cleverlychanging.bsky.socialWe're looking for a speaker to join our virtual 6th Annual SCD Caregiver Summit and inspire others with your story.
Apply by September 30, 2026: rebrand.ly/carespeak26
Share this opportunity with someone who can make a difference!
@sicklecelluk.bsky.social🩸 Just 3% of current blood donors are of Black heritage, yet Black heritage donors are more likely to have the Ro blood type needed by many people living with sickle cell.
This #SickleCellAwarenessMonth, could you become a donor?
@sicklecelluk.bsky.social⏰ 2 DAYS TO GO
The APPG on Sickle Cell and Thalassaemia’s Call for Evidence closes 30 September.
Your experiences and expertise can help inform its inquiry into improving sickle cell and thalassaemia services.
Find out more via our website.
@sicklecelluk.bsky.social🩸 For Portia, donated blood means more time feeling healthy and spending time with her family.
This #SickleCellAwarenessMonth, we’re highlighting the difference blood donors can make to people living with sickle cell.
Could you become a donor?
@choices-researchuf.bsky.socialThis Sickle Cell Month we acknowledge every sickle warrior, their families, and the sickle cell community. Thank you!
More CHOICES study quarterly updates to come
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#parenthood #sicklecell #sicklecellmatters #reproductivehealth
@sicklecelluk.bsky.social🧡 Knowing your status matters.
Taiwo lives with sickle cell disorder, while her twin sister does not – despite both parents having sickle cell trait.
This #SickleCellAwarenessMonth, know your status and make informed choices about your health and future.
#SickleCell #SickleCellTrait #KnowYourStatus
@getpalliative.bsky.socialLiving with #SickleCell Disease?
#PalliativeCare is key.
Learn more --> https://getpalliativecare.org/living-well-with-sickle-cell-disease-palliative-care-is-key/
@yalecancer.bsky.socialDr. Cece Calhoun joined the #HemeTalks #Podcast to discuss one of the most vulnerable moments in #sicklecell care: the transition from pediatric to adult management. open.spotify.com/episode/53Be...
@yale-hematology.bsky.social @ash.hematology.org
@getpalliative.bsky.socialIf your child has #sicklecell disease, you know the heart ache of watching a child in pain.
There is a way to help your child feel better and live as well as possible: ask for #palliativecare.
https://getpalliativecare.org/living-well-with-sickle-cell-disease-palliative-care-is-key/
@sritransfusion.bsky.socialđź”—Links to:
đź”·Interventions for chronic kidney disease in people with #sicklecelldisease
www.cochranelibrary.com/cdsr/doi/10....
đź”·Interventions for improving adherence to iron chelation therapy in people with #sicklecell disease or #thalassaemia
www.cochranelibrary.com/cdsr/doi/10....
@sicklecelluk.bsky.social🧡This #SickleCellAwarenessMonth, we’re shining a light on our Youth Mentoring Programme. With 300+ referrals, the programme has grown beyond London to Liverpool, Manchester & Sheffield, connecting young people with mentors who understand. Find out more: buff.ly/XEzQ83Q
#YoungVoicesRising #SickleCell
@mariaberghs.bsky.socialWe need to ensure and protect human time and work. Policy and legislation need to change and understand how time is now becoming hyper-ableist. #time #employment #discrimination #sicklecell #humanwork
www.tandfonline.com/eprint/R4P7T...
@ash.hematology.orgThe transition from pediatric to adult practice is a vulnerable time for someone with #sicklecell. The new HemeTalks shows how adult providers can build trust and discusses management considerations for a smoother transition.
🎧Listen https://ow.ly/JkQ450ZOGF7
#Hematology #SCD #HemeSky
@scienceinvancouver.comA recent multi-omics study led by Dr. Abhinav Checkervarty at @providenceresearch.bsky.social is challenging a long held assumption: that #SickleCell is benign in infancy.
Researchers found measurable differences within days of birth. Learn more: https://bit.ly/4hw8ugg
@sicklecelluk.bsky.social🧡 Do you know your sickle cell status?
You can find out through newborn screening, during pregnancy or by asking your GP for a blood test.
This #SickleCellAwarenessMonth, get informed, ask questions and #KnowYourStatus.
@providenceresearch.bsky.socialFor decades, sickle cell trait has been considered benign in infancy. However, a recent multi-omics study led by Providence Researcher Abhinav K. Checkervarty, suggests that this long-held assumption may not tell the whole story.
Read more: buff.ly/8cDeTE3
@valjpauls.bsky.socialSome good news!
First person functionally cured of sickle cell in Louisiana!
@ipro1984.bsky.socialSeptember is National Sickle Cell Awareness Month.
Approximately 100,000 Americans live with sickle cell disease, a rare chronic condition that causes the red blood cells to harden and form a sickle shape.
