@bowelresearchuk.bsky.socialBeth is helping us raise awareness of life with a stoma today, on #StomaAware Day 2026, which was created by Colostomy UK.
đ Please share widely, so that others can learn more about life with a stoma.
#SlowTransitConstipation #BowelDisease #InvisibleIllness #ChronicConstipation #SomasUnlocked
@achronicvoice.com"Iâve always been interested in #cultures ..the #differences & whatâs considered ânormalâ..This #linkup will be about the ins & outs of the city or town u live in, in relation to the #QualityOfLife as someone with an #InvisibleIllness.": buff.ly/OivAPm9
@msnewstoday.bsky.socialIâm fluent in a language called âpretending to feel okay.â #InvisibleIllness
@angioedemanews.bsky.socialDiscover Hollie's story: https://bit.ly/4lDaF0K
From patient to powerhouse, sheâs now fighting for a healthcare system that truly sees rare disease patients.â đâ Â
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@mgnews.bsky.socialA reminder that resting isnât a setback, itâs strategy: https://bit.ly/49CsoTd
#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarriorÂ
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@mgnews.bsky.socialAccepting help can be hard but necessary. When have you reached out for support? #InvisibleIllness
@mgnews.bsky.socialLeave a â„ïž for the people who make your days a little lighter: https://bit.ly/4qUNvqj
#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGWarriorÂ
@achronicvoice.com"It looks like being told that your condition is common in people with yr #body & leaving the appointment with that info but no plan â as if the demographic fact is the answer rather than the context.": buff.ly/WEnZUH6
by @thethrivingspoonie.com
#ChronicIllness #InvisibleIllness #MedicalGaslighting
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@tomkindlon.bsky.socialIn case of interest: âHow do you deal with negative comments on social mediaâ - SocialHealthNetwork (for health/illness advocates and similar)
@angioedemanews.bsky.social@mgnews.bsky.socialYou donât have to understand it to respect it. đŹ #InvisibleIllness
@smartpatient.bsky.socialThe mental load of managing a chronic condition is exhausting on its own. Appointments, medications, insurance calls, symptom tracking. It's basically a part-time job nobody signed up for.
@apainprincess.bsky.socialâIt might appear they are lazy because they are up and functioning fine one day and in bed the next. This isnât a personal choice, #ChronicPain goes up and downâthe real challenge is to not overdo it on good daysâthen pay for it dearly the next.â https://buff.ly/3tZA2BD #InvisibleIllness
@mgnews.bsky.socialA little space to acknowledge how unpredictable MG weakness can beđ«¶: https://bit.ly/4rj7kXu
#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessWarrior #MGJourney #MGWarrior #ChronicIllness
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@smartpatient.bsky.socialThe worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.