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Colostomy UK

@colostomyuk.bsky.social

15 Following75 Followers

Charity that SUPPORTS and EMPOWERS people living with a #stoma. Your voice on the bigger issues; campaigning, & running projects. #StomaAware
www.ColostomyUK.org

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@colostomyuk.bsky.socialOct 10, 2026, 2:00 PM

Join us for our free webinar: Parastomal Hernias: Prevention, Recovery and Real-Life Insights - in partnership with @convatec.bsky.social Wednesday 11th November 2026 - 1pm–2pm - Online - Free to attend. Find out more and book your free place: https://www.colostomyuk.org/parastomal-hernias-webinar/

Join us for our free webinar: Parastomal Hernias: Prevention, Recovery and Real-Life Insights - in partnership with Convatec.
@colostomyuk.bsky.socialOct 10, 2026, 6:55 AM

What’s helped you most with the emotional side of living with a stoma? Talking to someone, finding a support group, connecting with others online, getting back to something you love? Tell us in the comments. Support is available from Colostomy UK: https://www.colostomyuk.org/support/

Living with a stoma can bring all sorts of emotions. Sometimes, hearing from someone who’s been there can make a real difference.
@colostomyuk.bsky.socialOct 9, 2026, 2:00 PM

We’re looking for a Corporate & Commercial Partnerships Manager to help us build partnerships and develop new income opportunities to support people living with a stoma. £42k FTE | 21 hrs/week | Hybrid 📅 Closing: 12 October, 9am
Find out more & apply: https://ow.ly/lagY50ZQTz3

@colostomyuk.bsky.socialOct 9, 2026, 9:50 AM

Every journey should be one of dignity, understanding and inclusion.
At Colostomy UK, we work with the aviation industry to raise awareness, deliver training and help organisations better understand the needs of people living with a stoma.

Read the full story: https://ow.ly/ltTg50ZWb0t

@colostomyuk.bsky.socialOct 9, 2026, 6:55 AM

Javier's journey has taken him from Nicaragua to Costa Rica and then the USA, surviving political upheaval, Crohn's disease, sepsis, a seven-day coma, and an unexpected ileostomy.

Read Javier's story: https://www.colostomyuk.org/life-with-a-ileostomy/

Javier's journey has taken him from Nicaragua to Costa Rica and then the USA, surviving political upheaval, Crohn's disease, sepsis, a seven-day coma, and an unexpected ileostomy.
@colostomyuk.bsky.socialOct 8, 2026, 2:00 PM

Play the Colostomy UK lottery today to be in with a chance to win big while also giving back! Every week you have the chance to win the £25,000 lottery jackpot, plus many other fantastic cash prizes, whilst also supporting us! https://ow.ly/4lt150WnBwm #Stoma #StomaAware

Could you be our next winner? Play the Colostomy UK lottery today to be in with a chance to win big while also giving back! 💪

Every week you have the chance to win the £25,000 lottery jackpot, plus many other fantastic cash prizes, whilst also supporting us! ⭐

For every £1 entry at least 50p is donated directly to us. The more people that play, the more money we raise! 💜

Play the lottery today!  https://www.colostomyuk.org/get-involved/fundraising/unity-lottery/

#Stoma #StomaAware
@colostomyuk.bsky.socialOct 8, 2026, 6:55 AM

Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by Coloplast 📅 Tuesday 20th October 2026 ⏰ 1pm–2pm 💻 Online via Microsoft Teams 🎟️ Free to attend.Find out more and book your free place https://ow.ly/F1by50ZP4zR

Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by @coloplast.uk 

Join Di Davies, Senior Coloplast Nurse, for a practical and reassuring session exploring why mucus is produced, what you might experience from both your rectum and stoma, and practical ways to manage it. Di will also explain what’s normal, what changes to look out for, and when to seek further advice or support.
@colostomyuk.bsky.socialOct 7, 2026, 2:50 PM

Colostomy UK's CPD-accredited Caring for a Person with a Stoma Workshop covers the basics of stoma care for professionals who are new to stoma care or looking for a refresher. 19th November - 2:00–3:30pm - £20–£35 per person, depending on organisation. https://ow.ly/q6Ku50ZVsMW

Colostomy UK's CPD-accredited ‘Caring for a Person with a Stoma’ Workshop covers the basics of stoma care for professionals who are new to stoma care or looking for a refresher. Delivered by a stoma care nurse, the 90-minute session aims to better stoma awareness, knowledge and confidence to improve stoma care across healthcare settings.
@colostomyuk.bsky.socialOct 7, 2026, 6:55 AM

'Proctectomy surgery' or 'Barbie Butt' surgery, is where your rectum and anus are removed and sewn up permanently. This article in our Tidings magazine, discusses this surgery, the recovery period and what life is like afterwards https://ow.ly/8WX950XJKJR #barbiebutt #stoma

What is ‘Barbie Butt’ surgery – and why do some people need it?

'Proctectomy surgery' or 'Barbie Butt' surgery, is where your rectum and anus are removed and sewn up permanently.

We’d love to hear your story! Share your experience in the comments or drop us a DM. 

This article in our Tidings magazine, discusses this surgery, the recovery period and what life is like afterwards 💜 https://www.colostomyuk.org/wp-content/uploads/2023/12/Dear-Nurse-Barbie-Butt.pdf

#barbiebutt #stoma #stomaaware
@colostomyuk.bsky.socialOct 6, 2026, 5:00 PM

Ready for a challenge?
Our new Challenge Events webpage is live! Find your next challenge and raise vital funds for Colostomy UK.
❗Just a few Manchester Marathon places left, this is your sign to run for a cause!❗
Sign up: https://www.colostomyuk.org/fundraising/events-and-activities/

@colostomyuk.bsky.socialOct 6, 2026, 2:00 PM

Missed our webinar on Wind, Gas and Pouch Problems with a Stoma?
Toni Johnson, Senior Coloplast Nurse, shares practical advice on understanding why wind, gas and occasional pouch problems happen, and simple ways to manage them.

Watch the webinar and find out more: https://ow.ly/G9Oc50ZTQOs

Missed our webinar on Wind, Gas and Pouch Problems with a Stoma?
@colostomyuk.bsky.socialOct 6, 2026, 6:55 AM

Take a look at our stoma-friendly toilet venues across the UK on our website! There are over 1360 venues and growing! This work forms part of our ongoing campaign to improve public toilet provision and reduce stigma: https://www.colostomyuk.org/information/stoma-friendly-toilets-finder/

Take a look at our stoma-friendly toilet venues across the UK on our website! There are over 750 venues and growing!

This work forms part of our ongoing campaign to improve public toilet provision and reduce stigma. We welcome organisations who would like to join the initiative and help create more inclusive spaces: https://www.colostomyuk.org/information/stoma-friendly-toilets-finder/

#notalldisabilitesarevisible #Stoma #StomaAware #ColostomyUK #urostomy #ilostomy #colostomy
@colostomyuk.bsky.socialOct 5, 2026, 6:55 AM

Thank you to everyone who shared a story, raised awareness, got involved, donated or helped make Stoma Aware Day such an impactful day for the stoma community. There’s still time to donate: https://www.colostomyuk.org/donate/ To continue campaigning email us: [email protected]

@colostomyuk.bsky.socialOct 4, 2026, 2:00 PM

Our new 3 Questions to ask at your Stoma Review leaflet can help you feel informed, ask about your options and get the support that’s right for you.
Take a look and use it to prepare for your next review: https://ow.ly/IwPh50ZHHbr

Your stoma. Your choice. Your voice.
Every person living with a stoma is different. The best decisions about your stoma care are made when you feel informed, listened to and involved.
@colostomyuk.bsky.socialOct 3, 2026, 10:50 AM

We're at Paddington Station! Come and see us at our two stands and let's raise awareness for people living with a stoma! Happy Stoma Aware Day! Colostomyuk.org/campaigns/stomas-unlocked

@colostomyuk.bsky.socialOct 3, 2026, 9:43 AM

Come and visit us at Morrisons in Cardiff, Newport Road! We're raising awareness for people living with a stoma for Stoma Aware Day! Find out more: colostomyuk.org/campaigns/stomas-unlocked

@colostomyuk.bsky.socialOct 3, 2026, 8:00 AM

For Debs, something as simple as using a public toilet can involve challenges that other people may not see. Debs’ message this Stoma Aware Day is simple: be kind.

Today is Stoma Aware Day! Read more about our campaign Stomas Unlocked: https://www.colostomyuk.org/campaigns/stomas-unlocked/

@colostomyuk.bsky.socialOct 3, 2026, 6:55 AM

TODAY IS STOMA AWARE DAY! Today, 3rd October, we’re celebrating Stoma Aware Day! Help us spread the word and get Stomas Unlocked trending by sharing our campaign on your social media. Find us today in London, Leeds, Greater Manchester, Cardiff & Edinburgh: https://ow.ly/91wx50ZShJg

@colostomyuk.bsky.socialOct 2, 2026, 2:01 PM

For Stoma Aware Day, Arella’s mum shares their story of adjusting to life with a stoma after her daughter had her stoma. “Your feelings are valid too. You’re allowed to find it hard. You’re allowed to have bad days.” colostomyuk.org/you-dont-have-to-do-it-alone-arellas-story

For Stoma Aware Day, Arella’s mum shares their story of adjusting to life with a stoma after her daughter had her stoma in May 2026.

From learning new routines and navigating stoma care, to finding a community of people who understand, she shares an honest reminder that it’s OK to find things difficult - and that support is there when you need it.
@colostomyuk.bsky.socialOct 2, 2026, 6:55 AM

Come and visit us tomorrow for Stoma Aware Day! Come and meet our team and find out what Stomas Unlocked is all about! Pop along, say hello and help us unlock understanding, support and choice!
Find out more and see how you can get involved: https://ow.ly/Ht4f50ZS9e4

Come and visit us tomorrow for Stoma Aware Day! Come and meet our team and find out what Stomas Unlocked is all about!
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