New from France
Interesting long Covid research where all participants satisfy ME/CFS criteria
Evidence for transcriptomic changes impacting muscle contraction in patients with post-acute COVID-19 syndrome

New from France
Interesting long Covid research where all participants satisfy ME/CFS criteria
Evidence for transcriptomic changes impacting muscle contraction in patients with post-acute COVID-19 syndrome
Shop #BettytheBattery plushies, T-shirts, socks and more, featuring artwork by Amanda Francey & Shiloh Moore.
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Might be of interest for anyone with ME/CFS. #ME/CFS #disability #longcovid #health
Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 28 - Oct 4:
6 hours since the gym and I've mostly been lying down.
In fact, of the past 24 hours, I've been resting (mostly lying down, otherwise sitting) for 20 hours.
Just under 3 hours of 'Light' movement.
61 minutes of 'Moderate' movement.
And 4 glorious minutes on a treadmill 😔
Life with #LongCovid
An odd opinion piece: especially in light of the fact that #COVID is not yet endemic (steady/predictable); surges at least 2x p.a.; there's 0 cure for #LongCOVID, vaccination slightly reduces the risk of which; & vaccine acquired immunity is short lived (so 2x yearly vaccination makes sense).
Another study relevant to my #longcovid friends
Covid fatigue linked to reduced brain blood flow
Interessante Studie zu #Darmgesundheit und #Parkinson, die mir gerade in die TL gespült wurde.
Mehr B-Vitamine könnten auch für #LongCovid #MECFS und #MCAS relevant sein und gibt's in der Drogerie. Probier ich gleich mal aus.
September round-up. This month’s scribbles from the wayside. 🧵
Any favourite?
./4
Bedenke: Jede(!) weitere Reinfektion, auch asymptomatisch, ist eine erneute Lotterie-Teilnahme für #LongCovid !🧐
Mit jeder #Covid19 Reinfektion kumuliert das Risiko. Das bedeutet, mit jeder Infektion wird das Risiko größer (LongCovid, teils lebenslange Beeinträchtigungen)! Wird so hingenommen?🤬
My #LongCovid life...
Resting in an armchair with my legs crossed for as much time as I'm actually cooking (cauliflower soup) 🙏
Yes - we‘ve gone from only a tiny minority of HCPs having heard of the term PEM, to many more referencing it - but without really understanding what it is and what it means to live with PEM.
I don’t know what’s worse…
In general, we need to think from the perspective of the respondent. Memorably, first question on one survey: Do you have #LongCOVID, #MECFS, "or" #POTS?
You could only choose one.
"Brain Scans of 24 People With #LongCOVID Reveal Signs of Injury to Dopamine Neurons" (Science Alert) on SmartNews: l.smartnews.com/p-8CuTXPA4/P... #SmartNews
"Study Finds Shared Cause of Chronic Fatigue" #MECFS #LongCOVID #PTSD #RA #MS on SmartNews: l.smartnews.com/p-8CuEE03C/B... #SmartNews
Very interesting, but it’s a pity only 24 patients were studied.
And isn‘t it ever so depressing that #LongCovid manifests in so many diverse symptoms.😢