My Mother Had to Be Dying Before Anyone Would Take Her Off the Drugs
By Kat Vu
madintheuk.com/2026/09/my-m...
#AkathisiaAwareness #MedicationSafety #Deprescribing #PatientAdvocacy #MentalHealth
@madintheuk.bsky.social
@madintheuk.bsky.socialMy Mother Had to Be Dying Before Anyone Would Take Her Off the Drugs
By Kat Vu
madintheuk.com/2026/09/my-m...
#AkathisiaAwareness #MedicationSafety #Deprescribing #PatientAdvocacy #MentalHealth
@smartpatient.bsky.socialTip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.
@smartpatient.bsky.socialIf your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.
@smartpatient.bsky.socialTip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.
@smartpatient.bsky.socialIf your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.
@smartpatient.bsky.socialIf your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.
@gmj-georgia.bsky.socialA father's quest to save his daughter from a ultra-rare genetic disorder is transforming how the FDA approaches gene therapy development. The Wilse… #Drugdevelopment #Genetherapy #NGLY1deficiency #Patientadvocacy #Precisionmedicine #Drugdevelopment #Genetherapy #NGLY1deficiency #Patientadvocacy…
@smartpatient.bsky.socialIf your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.
@smartpatient.bsky.socialIf your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.
@sma-europe.bsky.socialThe first #SMAcademy SMA Patient Advocate Training cohort has started. 🌍 19 trainees from 17 countries are beginning a six-month programme designed to strengthen the knowledge and skills needed for effective SMA patient advocacy. 🔗 https://www.sma-europe.eu/smacademy
#SMA #PatientAdvocacy #WeAreOne
@cancercoachusa.bsky.socialBefore a follow-up, write down three things: what changed, what worries you most, and what needs clarification. You deserve information you can understand and use. #PatientAdvocacy #cansky #cancer #oncosky
@madintheuk.bsky.socialMy Mother Had to Be Dying Before Anyone Would Take Her Off the Drugs
By Kat Vu
madintheuk.com/2026/09/my-m...
#AkathisiaAwareness #MedicationSafety #Deprescribing #PatientAdvocacy #MentalHealth
@cleverlychanging.bsky.socialI’m honored to be in the room, listening, learning, and helping ensure our community remains part of the conversation.
#SickleCellDisease #SickleCellAwareness #HealthEquity #PatientAdvocacy #CongressionalBriefing
@madintheuk.bsky.socialMy Mother Had to Be Dying Before Anyone Would Take Her Off the Drugs
By Kat Vu
madintheuk.com/2026/09/my-m...
#AkathisiaAwareness #MedicationSafety #Deprescribing #PatientAdvocacy #MentalHealth
@cancercoachusa.bsky.socialA useful question for your next appointment: “What should I watch for, what is expected, and when should I call?” Write the answer in your own words. #PatientAdvocacy #cancer #oncosky #cansky
@madintheuk.bsky.socialMy Mother Had to Be Dying Before Anyone Would Take Her Off the Drugs
By Kat Vu
madintheuk.com/2026/09/my-m...
#AkathisiaAwareness #MedicationSafety #Deprescribing #PatientAdvocacy #MentalHealth
@health-wrregion.bsky.social85% Burn Survivor Faces His Hardest Fight Yet—Against Ontario’s Bureaucracy
waterloohealthcoalition.org/health-care-...
#ONpoli #HealthcareCrisis #PatientAdvocacy #OHIP 😡 😨
@health-wrregion.bsky.socialThe Ultimate Bureaucratic Betrayal: Former Queen’s Park Insider Left Stranded by OHIP
bsky.app/profile/thep...
#ONpoli #HealthcareCrisis #PatientAdvocacy #OHIP
@madintheuk.bsky.socialMy Mother Had to Be Dying Before Anyone Would Take Her Off the Drugs
By Kat Vu
madintheuk.com/2026/09/my-m...
#AkathisiaAwareness #MedicationSafety #Deprescribing #PatientAdvocacy #MentalHealth
@moogie14.bsky.socialMom used her call button four times. I rarely used mine—and once waited until I could barely say my blood sugar was low.
Maybe I’m not the best example. Asking for help shouldn’t come with guilt.
Full story:
nielflamm.com/blog