Explore the details: https://bit.ly/4cXwy9l
ALS may change what marriage looks like for guest columnist Nancy Muirhead and her husband, but it cannot change their love.
@alsnewstoday.bsky.social
@alsnewstoday.bsky.socialExplore the details: https://bit.ly/4cXwy9l
ALS may change what marriage looks like for guest columnist Nancy Muirhead and her husband, but it cannot change their love.
@mgnews.bsky.socialA softer plan for bodies that shift: https://bit.ly/3ZELxh8
#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #ChronicFatigue
@angioedemanews.bsky.socialTake a closer look: https://bit.ly/46I2cnF
Columnist Natalie Sirota recently had the pleasure of meeting Friedreich's ataxia columnist Matt Lafleur, a key part of the Bionews family.
@msnewstoday.bsky.socialTake a closer look: https://bit.ly/4rs479w
European Union regulators recommended that the infusion therapy Ocrevus be approved to treat relapsing MS in patients ages 10 and older.
@mgnews.bsky.socialGet the scoop: https://bit.ly/3T2G4Bk
Thymectomy can help keep generalized myasthenia gravis under control in older patients without a thymus tumor, according to a study.
#MyastheniaGravis #RareDisease #MG #MyastheniaGravisNews #Bionews
@alsnewstoday.bsky.socialTake a closer look: https://bit.ly/4Aokzvz
Researchers identified changes in 10 genes that may help diagnose or track ALS, according to a computer analysis of thousands of genes.
@angioedemanews.bsky.socialJust diagnosed with HAE? https://bit.ly/3TnH4zF
Here’s what to do next, from building your care team to managing daily life.
#NewDiagnosis #HAESupport #CareTeam #PatientGuide #LivingWithHAE #AngioedemaNews #Bionews
@mgnews.bsky.socialLeave a ♥️ for the people who make your days a little lighter: https://bit.ly/4qUNvqj
#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGWarrior
@mgnews.bsky.socialA gentle hour for the people sorting through new information and new limits: https://bit.ly/4i3xtpZ
#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #Plasmapheresis
@angioedemanews.bsky.socialTake action after a hereditary angioedema diagnosis: https://bit.ly/4yGcZeF
#HAEJourney #PatientEmpowerment #RareDiseaseSupport #TakeAction #HealthResources #AngioedemaNews #Bionews
@mgnews.bsky.socialFor years, walking was something MG had taken from Sarah. Slowly, that began to change.
🔗 Read Sarah’s full column: https://bit.ly/47aK5XA
#MyastheniaGravis #ChronicIllness #Disability #MyastheniaGravisNews #Bionews
@angioedemanews.bsky.socialGet the scoop: https://bit.ly/4rkCYoJ
Lower blood levels of the FAP enzyme may help distinguish idiopathic angioedema from other angioedema types, a study suggested.
@mgnews.bsky.socialA gentle reset can bring clarity where there was overwhelm: https://bit.ly/4rq1LH3
#MyastheniaGravis #MyastheniaGravisNews #Bionews #MGWarrior
@alsnewstoday.bsky.socialA woman with a progressive motor neuron disease was able to generate her own words in real time using an investigational brain-computer interface: https://bit.ly/475unNs
#ALS #ALSResearch #BrainComputerInterface #ALSNewsToday #Bionews
@msnewstoday.bsky.socialDiscover more: https://bit.ly/4rr6QjB
Tiziana has inked a deal to support a clinical trial testing its experimental treatment foralumab in people with hard-to-treat RRMS.
@mgnews.bsky.socialGet the scoop: https://bit.ly/4cSuyzc
Columnist Shawna Barnes did everything right to pace herself, but the reality of life with MG caused other obligations to fall off her radar.
#MyastheniaGravis #RareDisease #MG #MyastheniaGravisNews #Bionews
@alsnewstoday.bsky.socialTake a closer look: https://bit.ly/4ApNKyi
The first healthy participant has been dosed in a Phase 1 clinical trial of ACE-2223, an experimental treatment for ALS.
@angioedemanews.bsky.socialStay up to date: https://bit.ly/44RWD5b
Learn about promising experimental treatments and clinical trials for hereditary angioedema
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
