@alsnewstoday.bsky.socialLou Morentin’s story raises an important conversation for World Mental Health Day.
His column is a deeply personal account of fatherhood, caregiving, loss, and finding ways to move forward while carrying grief: https://bit.ly/4B05GQk
@alsnewstoday.bsky.socialExplore the details: https://bit.ly/3VAjAbH
An experimental treatment for ALS caused by mutations in a specific gene called CHCHD10 showed promise in one person, a study reports.
@alsnewstoday.bsky.socialTake a closer look: https://bit.ly/4zmaUEn
A team of U.S. scientists says measuring blood levels of toxic TDP-43 protein may help diagnose ALS, speeding what's now a lengthy process.
@alsnewstoday.bsky.socialExplore the details: https://bit.ly/3VDSgt1
Columnist Kristin Neva shares how her husband, Todd, seems to emotionally focus less on ALS and being paralyzed than he previously did.
@alsnewstoday.bsky.socialGet the scoop: https://bit.ly/4yAVdJk
Disease history was linked to higher ALS risk, while better cardiovascular health was associated with lower risk in a large UK study.
@alsnewstoday.bsky.socialDiscover more: https://bit.ly/4ATX91a
We are all adapting to modern life, writes columnist Dagmar Munn, who says changes made to navigate ALS sometimes mirror cultural shifts.
@alsnewstoday.bsky.socialExplore the details: https://bit.ly/4rTWR6v
Common viral infections such as influenza and COVID-19 may accelerate the onset and progression of ALS, a new mouse study suggests.
@alsnewstoday.bsky.socialThe ALS community is mourning the loss of advocate Brooke Eby, who passed away Oct. 1 at age 37.
Read more about Brooke’s life and legacy: https://bit.ly/4AKA0OV
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For people with neuromuscular diseases at MDA Engage: Chicago, the biggest takeaway was realizing they are not alone.
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Guest writer Cristy Hardin shares how defining friendship took on new meaning when she became a caregiver for a close friend.
@alsnewstoday.bsky.socialExplore the details: https://bit.ly/3VsRE9x
Medicinova completed the last patient visit in the placebo-controlled portion of a trial testing MN-166, its experimental treatment for ALS.
@alsnewstoday.bsky.socialDiscover more: https://bit.ly/4jtayXO
Advocates are cheering as legislation to renew the ACT for ALS headed to President Trump's desk days before the program is set to expire.
@alsnewstoday.bsky.socialKiersten, who lives with Friedreich’s ataxia (FA), speaks to that unseen exhaustion and why understanding from others can matter.
Join the ALS News Today Forums to connect with others affected by ALS: https://bit.ly/47daX9H
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A walk past fruit trees reminds columnist Kristin Neva of her father, and she thinks about what will remind her children of their dad.
@alsnewstoday.bsky.socialGet the scoop: https://bit.ly/4AH1QLQ
Early rehabilitation and a care team that works together are crucial for helping people with neuromuscular disease stay active and safe.
@alsnewstoday.bsky.socialA computer-based analysis of whole-blood samples identified 10 genes with altered activity that researchers say may have potential as biomarkers for diagnosing and tracking ALS.
🔗 Read more: https://bit.ly/4hD5DRF
@alsnewstoday.bsky.socialExplore the details: https://bit.ly/4iVGUdG
Voice Back, an AI app, helps people with ALS and other causes of speech loss communicate using a voice that sounds like their own.
@alsnewstoday.bsky.socialOver 16 years of living with ALS, Dagmar Munn says she has changed the way she responds when her body does not move the way she expects: https://bit.ly/4e39UN4
@alsnewstoday.bsky.socialExplore the details: https://bit.ly/4hAsKMH
A progressive decline in lung function is unavoidable in ALS, but there are steps that patients can take to improve breathing issues.
@alsnewstoday.bsky.socialDiscover more: https://bit.ly/3TT7da2
Low muscle mass in the arms and legs and sarcopenia were linked to poorer survival in people with ALS in a small prospective study.