Explore the details: https://bit.ly/3VAjAbH
An experimental treatment for ALS caused by mutations in a specific gene called CHCHD10 showed promise in one person, a study reports.
@alsnewstoday.bsky.social
@alsnewstoday.bsky.socialExplore the details: https://bit.ly/3VAjAbH
An experimental treatment for ALS caused by mutations in a specific gene called CHCHD10 showed promise in one person, a study reports.
@stowersinstitute.bsky.socialCan #AI predict the protein changes behind #Alzheimer's and #ALS? 🧬
Investigator Randal Halfmann, Ph.D., will receive ~$4.1M from @arpa-h.bsky.social to generate 10 billion+ measurements to train it, part of a $28.6M national effort led by @innovativegenomics.bsky.social.
@alsnewstoday.bsky.socialTake a closer look: https://bit.ly/4zmaUEn
A team of U.S. scientists says measuring blood levels of toxic TDP-43 protein may help diagnose ALS, speeding what's now a lengthy process.
@bridgingvoice.bsky.social"Take things one day at a time, and accept help sooner than you think you need it. Your diagnosis changes your path, but it doesn't define you." 💙
Meet Monica Martinez, Bridging Voice Ambassador. Office hours: Tuesdays 4:30pm ET, bridgingvoice.org/office-hours
@alsnewstoday.bsky.socialSome days I mourn. Some days I find moments of peace. Often it’s both.
#ALS
@molneurodegen.bsky.socialNucleoporin 50 rescues hallmarks of #TDP43 proteinopathy in #ALS/FTD disease models
Courtney L. Smith, Bilal Khalil, Alyssa C. Walker... Wilfried Rossoll @rossolllab.bsky.social @mayoclinic.org #FrontotemporalDementia
@alsnewstoday.bsky.socialExplore the details: https://bit.ly/3VDSgt1
Columnist Kristin Neva shares how her husband, Todd, seems to emotionally focus less on ALS and being paralyzed than he previously did.
@inkytrace.bsky.socialCan this year please stop ! Wrestling world has lost another great #jeffcannonball has lost his battle with #als
He was too young and the world is a cruel place. My heart goes out to his wife and young son. People hug your loved ones and tell them you love them 💔
@communicationfirst.bsky.socialOur movement is 7 years strong! Let’s all keep fighting for everyone with #CommunicationAccess needs due to #aphasia, #ALS, #autism, #TBI, #Parkinsons, #CerebralPalsy, & other causes. Please help us meet our birthday goal before the end of the day on 10/9! lnk.to/C1hbd7
[Image: A 7-shaped balloon…
![[Image: A 7-shaped balloon & the words “We’re SEVEN” within a circle. Set against CommunicationFIRST blue, confetti floats in the background.]](https://cdn.bsky.app/img/feed_fullsize/plain/did:plc:rttsf4zrtbea47kiv56ec4vb/bafkreicxbzznoqhi6mnfgo7xueugj2ecbkqnwitvuxdzaxnajsuiyzwuhq@jpeg)
@bridgingvoice.bsky.social"One of my goals early in my ALS diagnosis was to share what I learn along the way to help others navigate this horrible disease."
Meet Steve Hughes, Bridging Voice Ambassador, diagnosed with ALS in 2022. Office hours: Tuesdays 4:30pm ET, bridgingvoice.org/office-hours
@breakingnews06.bsky.social90 Day’s Jenny Slatten and Sumit Singh Reveal How Their Love Has Strengthened Amid Her ALS Battle - Us Weekly #90DayFiance #JennySlatten #SumitSingh #ALS #LoveStory
@health81.bsky.social90 Day’s Jenny Slatten and Sumit Singh Reveal How Their Love Has Strengthened Amid Her ALS Battle - Us Weekly #90DayFiance #JennySlatten #SumitSingh #ALS #LoveStory
@erc.europa.eu🧬 Mina Gouti her team @mdc-berlin.bsky.social developed self-organising human neuromuscular organoids that recreate interactions between motor neurons and muscle cells.
This could help researchers better understand diseases such as #ALS 💙 & #SMA, and their potential treatments.
@alsnewstoday.bsky.social“Hearing from others who’d lived through those same emotions and could both normalize them and offer practical advice felt like the ultimate gift of empathy and compassion” -Juliet Taylor: https://bit.ly/44bgFI2
#ALS
@alsnewstoday.bsky.socialIn honor of National Family Caregivers Month, join us for In This Together: Life & Caregiving with ALS, a candid round-table conversation.
📅 November 5, 2026
⏰ 2 PM ET
💬 60-minute round-table discussion + audience Q&A
: https://bit.ly/4hB7OpZ
@alsnewstoday.bsky.socialGet the scoop: https://bit.ly/4yAVdJk
Disease history was linked to higher ALS risk, while better cardiovascular health was associated with lower risk in a large UK study.
@alsnewstoday.bsky.social“Each of us develops our own means of coping with heartbreak” -Juliet Taylor: https://bit.ly/4a8B2cF
#ALS
@plosbiology.org#TrendingNow | Disease-associated #microglia are associated with #AlzheimersDisease, #ALS and #aging. This Essay discusses the dynamics, origins and therapeutic potential of these microglia in neurodegeneration 🧪 #ICYMI #NeuroSky plos.io/49mmzcm
@alsnewstoday.bsky.socialDiscover more: https://bit.ly/4ATX91a
We are all adapting to modern life, writes columnist Dagmar Munn, who says changes made to navigate ALS sometimes mirror cultural shifts.
@nile11.bsky.socialBrooke Eby, ALS Creator Behind 'LimpBroozkit,' Dies at 37
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https://nile1.com/brooke-eby-als-creator-behind-limpbroozkit-dies-at-37/
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#als #alsAssociation #alsNetwork #amyotrophicLateralSclerosis #brookeEby #ellePotruch #iceBucketChallenge #limpbroozkit #louGehrig'
