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@alsnewstoday.bsky.socialSep 24, 2026, 5:37 PM

Take a closer look: https://bit.ly/46Ie6Os

Columnist Kristin Neva takes note of the changing seasons with an initial sense of dread, then refocuses on the good things that also come.

#ALS #ALSNewsToday #Bionews #ALSCommunity

@mgnews.bsky.socialSep 24, 2026, 5:31 PM

A little room to feel overwhelmed is completely human: https://bit.ly/4hRd2MT

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #MGJourney #MGWarrior #MGFinancialAssistance

@mgnews.bsky.socialSep 24, 2026, 4:06 PM

Pacing for one important thing can sometimes mean quietly sacrificing everything else around it.

A ton of planning and energy management can go into simply making it through a commitment.

🔗 Read Shawna’s full column:

#MyastheniaGravis #MyastheniaGravisNews #Bionews

@msnewstoday.bsky.socialSep 24, 2026, 3:45 PM

Take a closer look: https://bit.ly/4d2GEWo

MRI study finds signs of myelin and iron loss in RRMS, but not in AQP4-positive NMOSD, using a specialized imaging technique.

#MultipleSclerosis #MS #MultipleSclerosisNewsToday #Bionews

@mgnews.bsky.socialSep 24, 2026, 3:44 PM

Explore the details: https://bit.ly/4AvfSjl

A study linked a type of minimally invasive thymus removal surgery to reductions in disease severity and medication use in MG patients.

#MyastheniaGravis #RareDisease #MG #MyastheniaGravisNews #Bionews

@alsnewstoday.bsky.socialSep 24, 2026, 3:43 PM

Discover more: https://bit.ly/4d3W4tt

Phase 3 FUSION results suggest a targeted therapy may slow disease progression in FUS-ALS, with benefits seen versus placebo.

#ALS #ALSNewsToday #Bionews #ALSCommunity

@alsnewstoday.bsky.socialSep 24, 2026, 12:30 AM

“While scrolling through social media the other day, I came across a question that stopped me in my tracks: How has having ALS impacted your life for the better?” -Dagmar Munn

Continue with this reading: https://bit.ly/47evVoo

#ALS #LifeWithALS #ALSDiagnosis #ALSNewsToday #Bionews

Dagmar, a woman seated in a meeting room holding up a green-blue lacy knitted shawl.
@angioedemanews.bsky.socialSep 23, 2026, 11:31 PM

Stay in the know—and never miss an update! https://bit.ly/3FHecMk

Sign up for the weekly newsletter, because knowledge is power, and you’re not alone!

#Angioedema #HAE #PatientSupport #Newsletter #RareDisease #AngioedemaNews #Bionews

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@mgnews.bsky.socialSep 23, 2026, 10:02 PM

Rethinking rest and rebuilding strength: https://bit.ly/4bOZKz8

#ChronicFatigue #InvisibleIllness #MyastheniaGravis #MyastheniaGravisNews #Bionews

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@mgnews.bsky.socialSep 23, 2026, 9:30 PM

A body that’s trying is a body worth honoring: https://bit.ly/3ZJy7QV

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #MGCaregiver

@mgnews.bsky.socialSep 23, 2026, 7:31 PM

A gentle pace is absolutely a brave one: https://bit.ly/3McrOCn

#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #ChronicIllness

@angioedemanews.bsky.socialSep 23, 2026, 6:46 PM

Your mental health matters: https://bit.ly/4jEt387

Self-care, mindfulness, support groups, and therapy can all help you cope 💙

#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews

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@msnewstoday.bsky.socialSep 23, 2026, 5:38 PM

Take a closer look: https://bit.ly/4xFRoRQ

Columnist Desiree Lama offers advice about how parents of adult children with MS can assist them in their journey with their disease.

#MultipleSclerosis #MS #MultipleSclerosisNewsToday #Bionews

@alsnewstoday.bsky.socialSep 23, 2026, 5:37 PM

Get the scoop: https://bit.ly/4xNkXRH

ALS disrupted her relationship with her body, so columnist Dagmar Munn developed small, intentional habits to restore her confidence.

#ALS #ALSNewsToday #Bionews #ALSCommunity

@mgnews.bsky.socialSep 23, 2026, 5:31 PM

A soft reminder that visual fatigue deserves real compassion: https://bit.ly/49Fc5Fa

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #OcularMG

@mgnews.bsky.socialSep 23, 2026, 4:07 PM

🔋 MG fatigue is like starting the day with 50% battery EVERY DAY. No matter what, you can't get to 100% full.

How do you explain MG to others? Share in the comments, then read Shawna's full piece: https://bit.ly/4ycYDSH

#MyastheniaGravis #MGSymptoms #MGWarrior #Bionews #MyastheniaGravisNews

Battery and message: MG fatigue feels like starting the day with a 50% battery, with activities draining energy.
@msnewstoday.bsky.socialSep 23, 2026, 3:44 PM

Discover more: https://bit.ly/3UYm2IO

Breathing problems are common in advanced MS, and patients should be screened for them as part of routine care, a study suggested.

#MultipleSclerosis #MS #MultipleSclerosisNewsToday #Bionews

@mgnews.bsky.socialSep 23, 2026, 3:43 PM

Explore the details: https://bit.ly/4At9itF

A targeted cell therapy aimed at immune cells producing antibodies that drive myasthenia gravis showed promise in lab and mouse models.

#MyastheniaGravis #RareDisease #MG #MyastheniaGravisNews #Bionews

@alsnewstoday.bsky.socialSep 23, 2026, 3:43 PM

Take a closer look: https://bit.ly/3VMK4qj

Mouse model study finds molecular changes in inflammation, RNA, and protein processing before ALS symptoms appear.

#ALS #ALSNewsToday #Bionews #ALSCommunity

@angioedemanews.bsky.socialSep 23, 2026, 2:03 PM

#HAE #SpoonieLife #ChronicIllness #FatigueIsReal #InvisibleIllness #ChronicWarrior #ShowCompassion #SpoonieSupport #BeKind #ChronicFatigue #BioNews #AngioedemaNews