1/2: Daily Mail Online: The cause of your chronic and severe fatigue: Scientists studied the make-up of people with the illness... and now think they've found the genetic traits to blame [PAYWALLED]

Full article: https://tinyurl.com/2vkvhrvv

#MECFS #pwME #MyalgicE #Research

From Germany

Evaluation of an Integrated Multidisciplinary Care Model for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Prospective, Open-label, Non-randomized Controlled Intervention Study

www.amjmed.com/article/S000...

Screenshot from Science for ME weekly update

#MEcfs #PwME #CFS

Same here in the UK.
Electing that man twice may have undermined confidence beyond the repairable, when the US is leading the world on AI swarms too. But probably not. People still love caffeinated sugary drinks 😅
How does China look from your side of the planet? What happens to their #pwME?

MEpedia is going strong-- we just received notice that MEpedia reached 20,000 clicks from Google search in the past 28 days alone!
Your support helps important knowledge get in the right hands. Check us out at www.me-pedia.org!

#pwME #MEpedia #MECFS

Live in Wales? Want to know what new Welsh Gov-funded ME & Long Covid services offer locally?
Join ME Voices Wales’ webinar, Fri 2 Oct, 12.30–1.30pm.
Swansea Bay UHB’s team will present and answer questions. All Wales welcome!
Register: https://tinyurl.com/2rz2cupc

@wamesmecfs.bsky.social #pwME

I share your view that CFS and #ME are not the same illness and that it’s likely the CFS of MH does respond to GET and CBT

My POV is based on the many articles by the Wessely group who conflated #ME and CFS from the late 1980s - see attached - and imposed GET onto #pwME w disastrous effects

The Royal Colleges' quibble was about 'Encephalomyelitis' being a misnomer. @meassociation.org.uk medic agreed.
One trouble is, #pwME are too unwell to advocate for themselves, only making themselves more unwell when they try.
Few institutions are able to adjust for this type of disability.

#MyalgicEncephalomyelitis #ME #ME/CFS #pwME #PublicInquiryNow

Rob Wust (Amsterdam) shows that #pwME and #pwLC (all with PEM) *perfectly* separate from healthy controls with respect to their muscle microvasculature radius. Lower lumen radius in ME/LC. Needs replication, but this muscle biopsy metric has high diagnostic potential.
#MEcfs #PRIME26 #LongCovid

Still very tired today, but pleased to have made it out to my gate to look at my #MorningView.

I think I'm going to make sending out this post, my One Thing for today.

Wishing you as gentle a day as you need ❤️🐌

#MECFS #pwME #Wales #CreativeHabit

Dr Katharine Cheston on the @actionforme.bsky.social 2025 Big Survey Results. 5,424 people, 85.1% female; 18.4% v/severe. She is "shocked and appalled" by the data: by people's experience living with #MEcfs. Headline results will be released later in 2026.
#pwME #PRIME26

From the US

Hemodynamic Phenotyping in ME/CFS & ANOCA [Angina with Non-Obstructive Coronary Arteries]: Complementary Insights from Coronary Function Testing & Invasive Cardiopulmonary Exercise Testing

journals.physiology.org/doi/10.1152/...

Screenshot from Science for ME update
#MEcfs #PwME #CFS

Emerge Australia @emergeaustralia.bsky.social has posted a copy of an article published by The Australian

emerge.org.au/news/the-aus...

www.theaustralian.com.au/commentary/6...

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS

We’ve also connected with state health officials in California, Wisconsin, and Colorado, while pursuing connections in Alaska and Nevada.

Four advocates have shared their lived experiences directly with Medicaid leaders. Thank you, advocates!

#PwME #medicaid #pwLC

Almost nine out of ten people with #LongCovid do not fully recover from their symptoms. They have to learn to live with them.

This is shown in a study by researchers from Frisius MC and the UMCG in Groningen. For the study, 1,200 people were followed over the past three years.

#PAIS #pwme

It doesn't get easier, being so completely dependent on others for one's survival after losing one's health & independence.
I'm endlessly grateful to family & friends but I so wish they were spared the impact of this terrible illness.
💙
#ME #pwME #GreatestMedicalScandal