Grilled Cheese

ExploreLog inSign up

ME Association

@meassociation.org.uk

143 Following929 Followers

A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.

RPs do not necessarily mean endorsement.

https://linktr.ee/meassociation

PostsRepliesMedia
@meassociation.org.ukOct 9, 2026, 12:08 PM

Petition: Take urgent action so those with Severe ME in Wales are no longer left without vital medical care

Please can you consider showing your support, to increase the amount of signatories (10K), so this may be considered for a debate in Welsh Parliament:

petitions.senedd.wales/petitions/24...

@meassociation.org.ukOct 9, 2026, 10:04 AM

Inspired by Connor's bake sale and want to do one of your own? Register your fundraiser:

@meassociation.org.ukOct 9, 2026, 10:03 AM

This #FundraisingFriday, we'd like to say a big thank you to Connor and everyone at RAF Boulmer Catering Flight who bought his yummy bakes and raised over £400 for the ME Association! 
If you'd like to donate, please visit: https://www.justgiving.com/page/connor-mackie-4 

#MECFS #MEAssociation

@meassociation.org.ukOct 9, 2026, 8:56 AM

2/2: N.B. Having a positive mental attitude may help some people to deal with the emotional aspect of having ME/CFS, as a chronic long-term illness can be understandably difficult to deal with. However, we are all individuals and what may help one person may not be suitable for another person.

@meassociation.org.ukOct 9, 2026, 8:56 AM

1/2: Kieran Barnaville , who was bedbound for 10 years with severe ME, has shared his story on Radio Jackie to help raise awareness of ME/CFS. Dr Charles Shepherd, MEA Hon. Medical Adviser, was also interviewed on this local South West London radio station!

https://meassociation.org.uk/rdus

#MECFS

@meassociation.org.ukOct 8, 2026, 2:46 PM

This leaflet explores the history & causes of #MECFS, its overlap with #LongCovid, & predisposing, precipitating & perpetuating factors. It reviews what we know - & don’t know - about this multisystem illness, & current & future research. Written by Dr Shepherd.

https://meassociation.org.uk/w6ph

IMAGE DESCRIPTION: Someone holding the MEA's booklet 'What causes ME/CFS?' on a purple background. 
Wording reads: What Causes ME/CFS? Updated booklet.
@meassociation.org.ukOct 8, 2026, 12:46 PM

Nature: Safety of cardiopulmonary exercise testing in patients with severe post-COVID-19 condition: a matched case-control study

Read more, including comment from Dr Charles Shepherd, MEA Hon. Medical Adviser, on the blog: https://meassociation.org.uk/dijw

#MECFS #LongCovid #PostCovid #pwME #CPET

@meassociation.org.ukOct 7, 2026, 3:31 PM

Opening hours: Monday-Friday: 10am-5pm Thursday: late night until 9pm Saturday: 10am-12noon

@meassociation.org.ukOct 7, 2026, 3:31 PM

Get in touch today:
0808 801 0484
meconnect@meassociation.org.uk 

#pwME #LongCovid #SevereME

@meassociation.org.ukOct 7, 2026, 3:31 PM

ME Connect is our free, confidential support service offering a safe, understanding space where you're truly listened to. Whether you need someone to talk to, emotional support or simply a compassionate ear, we're here for you.

#MEConnect #MECFS

IMAGE DESCRIPTION: Photo of a man in bed, on his phone. Wording reads: "I was so happy to talk to someone who understands the condition." 
MEA and ME Connect logos.
@meassociation.org.ukOct 7, 2026, 12:59 PM

The Sick Times: Biological pathways and mechanistic trials centered at new Long COVID conference in Amsterdam

David Tuller has shared a write up of the recent Long Covid conference, including key takeaways and research news, on the Sick Times website: https://tinyurl.com/yx5ssxmu

#LongCovid

@meassociation.org.ukOct 7, 2026, 8:15 AM

2/2: If you would be happy to have your story shared on our website, social media or magazine, please give us an email to communications@meassociation.org.uk and tell us a brief bit about yourself and how the MEA has helped you.

Thank you!

@meassociation.org.ukOct 7, 2026, 8:15 AM

1/2: We're looking for people who want to share their experience of ME/CFS and how the ME Association has helped them over the years. 

#MECFS

IMAGE DESCRIPTION: Photo of a cup of tea and a notepad and pen with 'Share Your Story' written on it.
Heading: "Can you share your story with the ME Association?"
@meassociation.org.ukOct 6, 2026, 2:16 PM

In the interview, Monbiot says of #pwME “They need more advocates. They need people like you … and they need far more journalists and far more other people, far more politicians supporting them.”

@meassociation.org.ukOct 6, 2026, 2:16 PM

David Tuller interviews George Monbiot on recent Guardian article: 'Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed'. 

Read a summary and extracts or watch the full interview here: https://meassociation.org.uk/y82q

#MECFS

IMAGE DESCRIPTION: Photo of a person interviewing another by holding a microphone to them. 
Wording reads: David Tuller interviews George Monbiot on recent Guardian article. 
MEA logo.
@meassociation.org.ukOct 6, 2026, 1:31 PM

This MEA pilot funded project, led by Dr Amanda Heslegrave with the laboratory work being conducted by Sophie Hicks at UCL, aims to identify biomarkers that are unique to ME/CFS, unique to LC, or shared between the two conditions.

Read the latest update: https://meassociation.org.uk/pyw9

#MECFS

@meassociation.org.ukOct 6, 2026, 8:55 AM

Ready for a challenge? Take on the London Landmarks Half Marathon, Sunday 4th April 2027, and raise vital funds to support people with ME/CFS!

Find out more on our website: https://tinyurl.com/38pn7r2e

#MECFS #Fundraising #LLHM2027 #LondonLandmarksHalfMarathon

IMAGE DESCRIPTION: Photo of people running a marathon. Heading: "Ready to take on a challenge for the MEA? Secure your place at the London Landmarks Half Marathon 2027!"
Logos: ME Association and London Landmarks Half Marathon.
@meassociation.org.ukOct 5, 2026, 10:55 AM

The HERITAGE study needs people with lived experience of ME/CFS or Long Covid. Complete 5 surveys over 12 months to share your experiences and help shape better care and support. Join: https://heritage.leeds.ac.uk/join/

@meassociation.org.ukOct 2, 2026, 1:41 PM

An article looking at conditions such as "fibromyalgia, long COVID, endometriosis, chronic fatigue syndrome, and autoimmune disorders, [which] put patients at high risk of experiencing “medical gaslighting”"

@meassociation.org.ukOct 2, 2026, 1:41 PM

The American Psychological Association: The hidden harms of medical gaslighting  

Read more: https://www.apa.org/monitor/2026/10/harms-medical-gaslighting 

#pwME #MECFS #LongCovid #Fibromyalgia #Endometriosis #MedicalGaslighting

IMAGE DESCRIPTION: Photo of a woman sat in bed, with her head in her hands. 
Wording reads: The American Psychological Association: The hidden harm of medical gaslighting. 
MEA logo.
Older posts
Terms of UsePrivacy PolicyCommunity StandardsHelpGet the app

Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-10 01:38:52 EDT