A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.

@meassociation.org.uk
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.
Petition: Take urgent action so those with Severe ME in Wales are no longer left without vital medical care
Please can you consider showing your support, to increase the amount of signatories (10K), so this may be considered for a debate in Welsh Parliament:
Inspired by Connor's bake sale and want to do one of your own? Register your fundraiser:
This #FundraisingFriday, we'd like to say a big thank you to Connor and everyone at RAF Boulmer Catering Flight who bought his yummy bakes and raised over £400 for the ME Association!
If you'd like to donate, please visit: https://www.justgiving.com/page/connor-mackie-4
2/2: N.B. Having a positive mental attitude may help some people to deal with the emotional aspect of having ME/CFS, as a chronic long-term illness can be understandably difficult to deal with. However, we are all individuals and what may help one person may not be suitable for another person.
1/2: Kieran Barnaville , who was bedbound for 10 years with severe ME, has shared his story on Radio Jackie to help raise awareness of ME/CFS. Dr Charles Shepherd, MEA Hon. Medical Adviser, was also interviewed on this local South West London radio station!
This leaflet explores the history & causes of #MECFS, its overlap with #LongCovid, & predisposing, precipitating & perpetuating factors. It reviews what we know - & don’t know - about this multisystem illness, & current & future research. Written by Dr Shepherd.
Nature: Safety of cardiopulmonary exercise testing in patients with severe post-COVID-19 condition: a matched case-control study
Read more, including comment from Dr Charles Shepherd, MEA Hon. Medical Adviser, on the blog: https://meassociation.org.uk/dijw
Opening hours: Monday-Friday: 10am-5pm Thursday: late night until 9pm Saturday: 10am-12noon
Get in touch today:
0808 801 0484
meconnect@meassociation.org.uk
ME Connect is our free, confidential support service offering a safe, understanding space where you're truly listened to. Whether you need someone to talk to, emotional support or simply a compassionate ear, we're here for you.
The Sick Times: Biological pathways and mechanistic trials centered at new Long COVID conference in Amsterdam
David Tuller has shared a write up of the recent Long Covid conference, including key takeaways and research news, on the Sick Times website: https://tinyurl.com/yx5ssxmu
2/2: If you would be happy to have your story shared on our website, social media or magazine, please give us an email to communications@meassociation.org.uk and tell us a brief bit about yourself and how the MEA has helped you.
Thank you!
1/2: We're looking for people who want to share their experience of ME/CFS and how the ME Association has helped them over the years.
In the interview, Monbiot says of #pwME “They need more advocates. They need people like you … and they need far more journalists and far more other people, far more politicians supporting them.”
David Tuller interviews George Monbiot on recent Guardian article: 'Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed'.
Read a summary and extracts or watch the full interview here: https://meassociation.org.uk/y82q
This MEA pilot funded project, led by Dr Amanda Heslegrave with the laboratory work being conducted by Sophie Hicks at UCL, aims to identify biomarkers that are unique to ME/CFS, unique to LC, or shared between the two conditions.
Read the latest update: https://meassociation.org.uk/pyw9
Ready for a challenge? Take on the London Landmarks Half Marathon, Sunday 4th April 2027, and raise vital funds to support people with ME/CFS!
Find out more on our website: https://tinyurl.com/38pn7r2e
The HERITAGE study needs people with lived experience of ME/CFS or Long Covid. Complete 5 surveys over 12 months to share your experiences and help shape better care and support. Join: https://heritage.leeds.ac.uk/join/
An article looking at conditions such as "fibromyalgia, long COVID, endometriosis, chronic fatigue syndrome, and autoimmune disorders, [which] put patients at high risk of experiencing “medical gaslighting”"
The American Psychological Association: The hidden harms of medical gaslighting
Read more: https://www.apa.org/monitor/2026/10/harms-medical-gaslighting
#pwME #MECFS #LongCovid #Fibromyalgia #Endometriosis #MedicalGaslighting