@actionforme.bsky.social
Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
@actionforme.bsky.socialNew research!
We’re working with National Energy Action on new research exploring experiences of home energy use, comfort and affordability among people living with ME or Long Covid.
actionforme.org.uk/keeping-me-warm-take-part-in-new-research/ www.actionforme.org.uk/keeping-me-w...
@actionforme.bsky.social😇 Our Christmas Angels project is back!
This heartwarming project enables people with ME to send Christmas cards to each other via Action for ME.
Register & find out more info here 👇
@actionforme.bsky.socialRegister for the 4th PRIME webinar: The Neurology of ME/CFS
🗓️ Weds 28th Oct
🕑 2-5pm GMT
📍 Online via Zoom
Join leading international researchers to explore neurology in ME/CFS & why it’s become an important area of research.
Register & read more 👇
@actionforme.bsky.social🎥 The recording of our Annual General Meeting (AGM) 2026 is now available!
Our AGM was on Tues 22 Sept & was led by our CEO, Sonya Chowdhury.
Watch the recording on our YouTube channel 👇
Our Annual Report 2025-2026 is also available 👇
@actionforme.bsky.socialDay 2 of the PRIME International Symposium!
Today's programme focuses on current ME research and collaboration with people with lived experience. Sessions include the Research Involvement Hub, Big Survey findings and emerging research.
@actionforme.bsky.socialThe HERITAGE study is looking to recruit participants who have ME/CFS or long Covid who have not accessed an NHS specialist service within the last 2 years.
Find out more 👇
Please note, Action for ME is not involved in this study & sharing is not an endorsement.
@actionforme.bsky.socialToday marks the start of the PRIME International Symposium, bringing together researchers, industry and people with lived experience to explore ME research and build collaborations.
@actionforme.bsky.socialA powerful piece from @georgemonbiot.bsky.social in The Guardian on the decades of neglect, dismissal and disbelief experienced by people with ME.
Read the full article 👇
www.theguardian.com/commentisfre... www.theguardian.com/commentisfre...
@actionforme.bsky.socialWe’ve provided a submission to the government for their Autumn Budget.
We’re urging the HM Treasury to:
1) Fund implementation of a national framework for severe & very severe ME
2) Accelerate ME research & innovation
Read more 👇
@actionforme.bsky.socialWe’ve issued a joint letter with the Overlapping Illness Alliance raising concerns about the Telegraph article ‘How having a disability became cool’ & how it portrays complex health conditions, chronic illness & disability.
Read the full response: www.overlappingillnessalliance.org.uk/resources/
@actionforme.bsky.social📢 New self‑advocacy resource now available: Impact Statement Template.
Our new resource helps people with ME communicate how ME affects them and what support they need.
Download here 👇
@actionforme.bsky.social😇 Our Christmas Angels project is back!
This heartwarming project enables people with ME to send Christmas cards to each other via Action for ME.
Register & find out more info here 👇
@actionforme.bsky.social⏰ Our AGM is next week!
Join us online on Tuesday 22nd Sept from 2pm–3pm to hear about Action for ME's work over the past year and our future priorities.
There's still time to register: us02web.zoom.us/webinar/regi...
@actionforme.bsky.social💻 Join our ME Friends Online forum & connect with others who truly understand life with ME.
Enjoy peer support, friendly discussions & topics like TV, wildlife & more.
Our forum is open to adults with ME in the UK.
Sign up & read the Terms of Use 👇
@actionforme.bsky.socialWe’re attending the NHS Scotland Event 2026 and ALLIANCE Connect networking next week to share Learn about ME free resources for healthcare professionals.
More info: www.actionforme.org.uk/learn-about-...
@alliancescot.bsky.social #LearnAboutME #NHSScotlandEvent #MyalgicE
@actionforme.bsky.socialGood luck to all our fantastic Action for ME runners taking on the #GreatNorthRun this Sunday! 🏃
Every pound raised helps us support people with ME, campaign for change and bolster research.
Feeling inspired? Join our 2027 team 👇
www.actionforme.org.uk/great-north-...
#Fundraising #MyalgicE
@tessamunt.bsky.socialReposted by @actionforme.bsky.socialTo continue to put on the pressure, I’ve tabled three new amendments for next week’s Report stage of the Health Bill. Each asks the government to have regard to the needs of persons with long-term, complex or fluctuating conditions - #pwME 👇🏽
Thanks to @actionforme.bsky.social for help with these.
@actionforme.bsky.socialThank you @tessamunt.bsky.social for continuing to champion people with ME and pushing for their needs to be recognised.
@actionforme.bsky.socialThe ME Local Network are holding their Annual Meeting via Zoom and everyone is welcome!
🗓️ Fri 4 Sept
🕑 12 noon - 1pm
Sign up here: us06web.zoom.us/meeting/regi...
The ME Local Network works to strengthen mutual support between local ME groups across the UK. Read more 👇
mehub.uk/meln/
@actionforme.bsky.socialOur Family Support service is here for parents or carers of children with diagnosed or suspected ME.
We support families to access education & work with professionals, such as their child’s GP.
For more info👇